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High Muscle Tone -- Swollen Legs - Low Urine Output

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  • High Muscle Tone -- Swollen Legs - Low Urine Output

    My injury level is c6-7.

    I started swimming once a week about seven weeks ago. I was hoping that would help the high tone I have in my core. I have swam before, and after the sessions I always had to empty my bladder. That has not occurred this time.

    About three weeks ago, they put weights on my legs and I dangled my feet for just a few minutes. After that, my legs started swelling up gradually in the next few weeks (I'm not sure if the dangling feet was associated with the swelling or not). Last week, I admitted myself to the hospital as my legs were rreally getting swollen and my urine output became low.

    They started me on antibiotics and thought that I might have a blood infection. The reason for this is that last November, I somehow ended up with sepsis and and an infection in the L5 area. I did six weeks of antibiotics for that. I had no open wounds but was treated for three different bugs. I guess they entered through my cathing.

    The infectious diseases Dr. who saw me last November cut the antibiotics when he saw me the next day after I was admitted since I wasn't feeling sick like I was before. Blood tests have looked good and they want me to follow-up with four weeks of blood tests.

    I did get a UTI in the hospital and was treated with seven days of IV antibiotics for that.

    Also, they found a blood clot in my left leg, which they say caused the swelling. I'm not so sure about that since I am still getting swelling and have low urine output.

    I'm really not sure what to do as I'm drinking fluids but not voiding them like I should. My tone is really high in my core area. It pulls me to the left and is even making it extremely difficult to cath as my penis is tightening and retracting in due to the high tone.

    I have a baclofen pump and a dye test scheduled for next Thursday, but I don't think that's the problem.

    They did a CAT scan and did not see kidney stones causing any problems.

    My main concern is I don't understand why my system isn't producing urine like it should and why I continue to swell in my legs. I feel this high tone arching my right side back in and pushing out in the front left. It just will not let up during the day or night now, which I feel is the culprit, but I don't know how to stop it.

    I see a nurse practitioner next Tuesday. I'm worried about this and don't know what to do.

  • #2
    Sounds like edema with all that water winding up in your tissues instead of your bladder. Are you eating a lot of salt? Does elevating your legs help at all?
    T3 complete since Sept 2015.


    • #3
      Originally posted by Mize View Post
      Sounds like edema with all that water winding up in your tissues instead of your bladder. Are you eating a lot of salt? Does elevating your legs help at all?
      I'm eating the same diet that I always have. I went to bed three hours early last night to help with the edema. It did work to some point (I cathed five times, but will need to do it again tonight as I can tell my legs are taking in the foot again today. This swelling/edema just started out of the blue.

      My body feels really cold inside. I want to put a heating bag on my shoulders, but if I do that my temperature spikes up over 100.


      • #4
        Have you had any kidney function tests, such as a creatinine clearance (24 hr. urine collection and blood draw during that 24 hour period)? A renal scan? An IVP is not a good idea if there is any concern about kidney function. Suggest you see a renal specialist (not a urologist) or nephrologist. Your PCP should be able to refer you.

        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.


        • #5
          My SCI and situation is different from yours (C3 incomplete with DVT in left leg) but I have swelling sometimes. Starts in ankles but has progressed to feet in the past before I figured out how to treat it.
          Sitting too long was the cause, in my case. Elevating legs so feet are higher than heart really helps reduce swelling AND increases urine output, for me. 2 hrs reclined, watching TV or asleep = need to pee, even if I haven't drank anything. Guess the fluid ends up in renal system some how (nurses chime in on this). Swelling feels like cold fluid inside. I use no salt and avoid high salt foods, same with sugar.
          My calves will swell too but after a day of reclining I can see blood vessels and skinny calves. Just my situation and maybe something to compare with yours.
          Attack life, it's going to kill you anyway
          Steve Mcqueen (Mr Cool)


          • #6
            Thanks for the input. Gives me more things I can talk to my nurse practitioner about on Tuesday. I've also had an increase in high tone at the same time, which I think is causing this. However, I don't know what is causing the high tone.. My back locks up and I can't get into certain positions.


            • #7
              Pain or anything irritating me (sometimes things I can barely feel) causes spasms and/or excessive tone. There is a medical term for this but I call it "Princess and the Pea" syndrom.
              Attack life, it's going to kill you anyway
              Steve Mcqueen (Mr Cool)