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    SCI Nurse-AD symptoms change

    Good afternoon,

    The sensation of chilled/sweating There's been a change in my pattern of dysreflexia sweating much of the time. Bowel care used to cause head and neck sweating, along with my chest, upper back, and shoulder blade region. Now, still my back, and upper chest, but my face and neck stay dry, even during digital stim. Blood pressure elevates as always.

    Like my ever worsening pains, it's not a symptom of an ascending searing, as my MRIs don't show my little upwards syrinx growing or anything.

    Sensation of sweating on my back can be there with high blood pressure, normal blood pressure, even low blood pressure.

    A medical mystery.

    Thank you.
    Last edited by SCI-Nurse; 21 Jan 2019, 1:48 PM.
    Alan

    Proofread carefully to see if you any words out.

    #2
    What do you want to know?
    pbr
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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      #3
      Do you have any idea what could be the cause of the change in dysreflexia symptoms?

      Thank you.
      Alan

      Proofread carefully to see if you any words out.

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        #4
        Everyone's body changes over time. This could be a part of that. Do you have any other symptoms of AD when you are not doing your bowel program?

        ckf
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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          #5
          My pack, shoulder blade area particularly, will feel chilled/sweaty, but that is always accompanied by elevated high blood pressure. My PP could be 85/60, or 155/95, with the same feeling (the low BP is without Nitro-Bid.)

          Another medical mystery like the ever worsening central pains with no cause seen on MRI, perhaps?

          Thank you, as always, for your help..
          Alan

          Proofread carefully to see if you any words out.

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            #6
            This continues. I have chilled/sweaty feeling on my upper back, including over shoulder blades (doesn't cool the constant burning, so somehow I feel both sensations at once) much of the time. It's a bothersome ssensation, on top of all the others I always feel. Such a sensation used to always be a signal of AD, as the BP would be elevated. Now, it may or may not be a signal. Facial sweating still always is.

            Meanwhile, the feeling of my body hardening (like turning to bone) gets worse. That sensation in my back, along with sticking shoulder blades, and the bones sticking through skin feeling, makes using my arms more and more difficult. Doctors are no help. :-(
            Last edited by alan; 31 Aug 2019, 4:38 PM.
            Alan

            Proofread carefully to see if you any words out.

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              #7
              Your description sounds like this is a change from your baseline condition of function and sensation is that correct?
              pbr
              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                #8
                Originally posted by SCI-Nurse View Post
                Your description sounds like this is a change from your baseline condition of function and sensation is that correct?
                pbr
                Yes, things change over the years. Annual MRIs show no ascending syrinx - it remains the same size, and same place (doctor measures it every year.) The sweating/chilled feeling changes are in recent years. My arms getting more and more difficult to move because of worsening shoulder blades sticking and feeling like they stick more out of my back (along with my vertebrae), and increasing back pains (hardness, burning, stiffness that resists movement, etc.) has been progressive, as has increasing pains in the rest of my body. I was blessed with a terrible case of central pain syndrome.

                I saw the doctor two days ago. He still had no idea.
                Last edited by alan; 7 Sep 2019, 5:46 PM.
                Alan

                Proofread carefully to see if you any words out.

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                  #9
                  This loss of sweating as a warning that something is going on in the bowel department isn't good.
                  Alan

                  Proofread carefully to see if you any words out.

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                    #10
                    The worsening continues, but the syrinx size remains the same.
                    Alan

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                      #11
                      alan-
                      While eI cannot comment on your sweating nor AD, I have a suggestion about the pain caused by your shoulder blades "sticking". This can be a result of lack of movement and droopy posture that has led to fascia in the area "freezing up". Read about it here: https://www.doctorschierling.com/fascia.html

                      I have been addressing this problem in several areas of my body now for 6 weeks and am making progress. My background in anatomy, plus my ability to move as an incomplete are invaluable advantages in addressing pain problems. I have been working and stretching the areas many times per day and find problems of the last 10 years abating significantly. I suspect you are complete quad, is that correct? If so, you would need someone to help stretch the problem areas as frequently as possible, which would be quite a stroke of luck, no? While it may be close to impossible to make big strides in reversing your shoulder blade problem, any modest relief would be welcome, I am sure.

                      Read the above article and let me know by PM if you think I can help.

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                        #12
                        Enemeez plus ( with benzocaine) for AD. Use lidocaine for checking rectal vault and with dig stim. How high does your blood pressure go with symptoms? Without symptoms? CWO
                        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                          #13
                          Originally posted by SCI-Nurse View Post
                          Enemeez plus ( with benzocaine) for AD. Use lidocaine for checking rectal vault and with dig stim. How high does your blood pressure go with symptoms? Without symptoms? CWO
                          It can reach the 160s or 170s over 100+, but 130s to 150s is more common. That's with or without symptoms, which is why my BP is regularly checked. I can also have symptoms with normal BP (90s to 100s.)

                          Earlier this afternoon, I had left side sweating, BP was 160/103. NitroBid was applied. Stool was found, and removed.

                          One occasion last week, I had left side sweating, BP of 107/73 or thereabouts. Stool was found. Left side sweating usually means something is there.

                          Stool can also be found with no sweating, elevated or non-elevated BP. Dig stim doesn't often cause sweating.

                          I've tried my Enemeez samples. Got good results three times, barely any results twice, so far.

                          Thank you for your reply.
                          Alan

                          Proofread carefully to see if you any words out.

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