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Any clever ideas for adaptive equipment when recovering from a pressure sore?

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    #16
    I understand the pains of having to be in bed laying flat, although I'm a C4 I use a portable cart with rollers that I put a monitor arm to attach my monitor, and I pull it right beside the bed and swing arm out so I can see the monitor. I do use voice controls for everything and it works out (sometimes not so well when DragonDictate "freaks out" and just start sending random commands, especially when I'm trying to change the channel and it'll start sending commands and sometimes I wound up ordering a movie from on-demand! Decided to go ahead and watch it Black Panther, good movie) but there are so many options that are available and doable even in Australia
    C4 incomplete since 1985

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      #17
      Well, almost 6 months since we noticed our son’s pressure sore. It?s been a long six months.... He’s spending a few hours in his chair each day now, but still spending a lot of time lying on his front. The sore has healed over, but the skin is still to fully grow back, so he still has a dressing on it full-time.

      All I can say is thank you to whoever invented gaming! It’s kept him in touch with his mates, and kept him sane! (Not sure the same can be said for my wife though!).

      One interesting thing - if he’s in his chair and his sore is getting some uncomfortable pressure (eg from a fold in his pants), he experiences a level of constant pain just beneath his left shoulder blade (ie around the level that he gains feeling - he’s T6 complete). The sore is on the left side. As far as we are concerned, it’s a really good thing, as it gives him warning that something isn’t right. With the exception of a couple of headaches when the sore must have been developing, he’s never experienced AD, so I’m assuming the pain isn’t AD related. Has anyone else experienced “pain relocation” like this?
      Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

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        #18
        Glad he is healing. What treatment is being used for the wound for the last bit of healing?

        Pain like this is called referred pain, and it can happen in people who are AB as well as those who have SCI/D. A common example is left arm pain in someone who is having a heart attack, or right shoulder pain in someone who has gall bladder problems.

        (KLD)
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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          #19
          Originally posted by SCI-Nurse View Post
          Glad he is healing. What treatment is being used for the wound for the last bit of healing?

          Pain like this is called referred pain, and it can happen in people who are AB as well as those who have SCI/D. A common example is left arm pain in someone who is having a heart attack, or right shoulder pain in someone who has gall bladder problems.

          (KLD)
          Thanks KLD.

          It currently gets cleaned/soaked with Prontosan (for 15 minutes), then Mepilex Border Flex is used as the dressing.
          Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

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            #20
            Originally posted by Gordy1 View Post
            Well, almost 6 months since we noticed our son?s pressure sore. It?s been a long six months.... He?s spending a few hours in his chair each day now, but still spending a lot of time lying on his front. The sore has healed over, but the skin is still to fully grow back, so he still has a dressing on it full-time.

            All I can say is thank you to whoever invented gaming! It?s kept him in touch with his mates, and kept him sane! (Not sure the same can be said for my wife though!).

            One interesting thing - if he?s in his chair and his sore is getting some uncomfortable pressure (eg from a fold in his pants), he experiences a level of constant pain just beneath his left shoulder blade (ie around the level that he gains feeling - he?s T6 complete). The sore is on the left side. As far as we are concerned, it?s a really good thing, as it gives him warning that something isn?t right. With the exception of a couple of headaches when the sore must have been developing, he?s never experienced AD, so I?m assuming the pain isn?t AD related. Has anyone else experienced ?pain relocation? like this?
            Another 6 months on...can’t believe how long skin takes to grow...it’s only just fully covered the pressure sore area. That’s over a year since the sore appeared...a fifteenth of his life!

            Thankfully his life has been back to normal since early 2019. No more referred pain, which we’ve taken as a good indicator that his butt isn’t feeling pain any more. He’s back to full-on sports again (parabadminton being the main one) and has put a bit of weight back on, which is good, as he lost a bit when doing nothing last year.

            No more prontosan/dressing changes, but he is now using a duoderm patch for protection, as the area is still redder than the surrounding area. Dr and nurses at his last check-up were ecstatic at the condition of his butt, which was a bit amusing to see/hear!
            Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

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              #21
              Originally posted by Gordy1 View Post
              Another 6 months on...can’t believe how long skin takes to grow...it’s only just fully covered the pressure sore area. That’s over a year since the sore appeared...a fifteenth of his life!

              Thankfully his life has been back to normal since early 2019. No more referred pain, which we’ve taken as a good indicator that his butt isn’t feeling pain any more. He’s back to full-on sports again (parabadminton being the main one) and has put a bit of weight back on, which is good, as he lost a bit when doing nothing last year.

              No more prontosan/dressing changes, but he is now using a duoderm patch for protection, as the area is still redder than the surrounding area. Dr and nurses at his last check-up were ecstatic at the condition of his butt, which was a bit amusing to see/hear!
              I'm a T6 complete as well, and the stage 2 sore I had years ago took about the same amount of time to heal. One suggestion I thought I would share is switching to a Ride Designs cushion (I use the Java) has been a huge help for me over the years. My pressure sore was on my left ischium, which now floats in my Ride cushion so it gets zero pressure. However the pressure is redistributed to my hips (trochanters) so I have to be careful about that but the skin in that area is tougher for me so I haven't had any issues. I'm pretty skinny as well so I don't have much natural padding anymore. Glad to hear your son has recovered at this point.

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                #22
                Originally posted by Brad09 View Post
                I'm a T6 complete as well, and the stage 2 sore I had years ago took about the same amount of time to heal. One suggestion I thought I would share is switching to a Ride Designs cushion (I use the Java) has been a huge help for me over the years. My pressure sore was on my left ischium, which now floats in my Ride cushion so it gets zero pressure. However the pressure is redistributed to my hips (trochanters) so I have to be careful about that but the skin in that area is tougher for me so I haven't had any issues. I'm pretty skinny as well so I don't have much natural padding anymore. Glad to hear your son has recovered at this point.
                Thanks Brad. He’s now using a Roho. I forget which one, but it’s air filled at the rear, foam at the front, and the air-filled sections can be at different pressures left/right. The primary cause of the pressure sore was his previous cushion being deliberately elevated slightly on one side to try and get his hips to sit square, to theoretically improve his scoliosis. The sore occurred at the point where the elevated inserts started, so well in front of his ischium. I was a little concerned that the sore would be directly above the inflated/foam transition point in his Roho, but that’s definitely not the case, and he was pressure mapped when several cushions were trialled, so we’re pretty confident that what he’s currently got is fine. Although I must admit that the Ride Designs cushion wasn’t one that was available for trial. In fact I’m not sure if there is a supplier of that cushion anywhere near us.

                Yep, our son hasn’t got much natural padding either. I guess that means there’s not too much excess weight above either, which is presumably a good thing, less load acting on the cushion!
                Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

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                  #23
                  After 22 years I got my first (only?) pressure sore, ischial stage 4.
                  At the time and for several years prior, my cushions were the Roho Sport? which is a fairly low profile pneumatic inside a foam peripheral surround.
                  Cause in the matter may have been a very long drive (Florida to NJ) in two days without a cushion on the car seat, but when I went through the subsequent wound travail, I was pressure mapped and that sport roho was quite inadequate compared to the Roho Quad!
                  69yo male T12 complete since 1995
                  NW NJ

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                    #24
                    Originally posted by SCI-Nurse View Post
                    What treatment is being used for the wound for the last bit of healing?
                    (KLD)
                    What is recommended for final healing? I spotted this thing last week, it's closing very slowly. I'm up 2hrs, twice a day...and a couple more times limited to 30 mins. I've not put anything on it.
                    Attached Files
                    Last edited by Rook98006; 16 Nov 2019, 1:02 AM.
                    "Never turn your back on fear. It should always be in front of you, like a thing that might have to be killed." - Hunter Thompson
                    T5/6 complete

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                      #25
                      After much reading over the weekend still not sure what steps to follow. Left it dry for the first few days until reading it should be kept moist. Put Iodosorb on it for a couple days. It had crunchy looking bits around the edges when I checked it. Assume that is granulation tissue... which should be a good thing right? I'm using bacitracin today to see how that works.

                      Ordered some Medi Honey and allevyn dressing pads. When should you use a collidal vs silvadene vs ??. Also is it good to scrub (debrid) the wound every couple days or leave alone. Sounds like washing with saline solution or wound wash like vetracyn is the right procedure.
                      "Never turn your back on fear. It should always be in front of you, like a thing that might have to be killed." - Hunter Thompson
                      T5/6 complete

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