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Mutant infection, heeelp!!!

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    Mutant infection, heeelp!!!

    Ive been suffering from a serious chronic urinary tract infection for a long time , more frequently the past few months.
    The infection is mostly E coli but has even changed sometimes.
    I havent done any rehabilitation. Already waiting to be called from Santa Corona Pietra Ligure in Italy but the last times Ive been cured in hospitals unsuccesfuly because 1 week after using antibiotics prescript-ed by them the infection returns.
    Last infection I took a therapy of Ciproflaxin 500mg 2 times a day for 12 days , 3 days later I dealt with urine loss and fever so was forced to take Augmentin times a day for 6 days 125mg.
    Im feeling a little better now even though i still have terrible pain but at least I can hold more than 300ml up to 450ml safely.

    Doctors say that this is all because i have a neurogenic bladder which leads to using a lot of intermittent cathing which leads to infections.
    Im about to finish my cure which i dont believe will be succesful.
    Do you guys have any idea how I can be cured...or some kind of solution...

    Additional information :
    Im t9 paraplegic
    I take oxybutinine 5mg 3xday
    3 years post accident

    #2
    Also another thing ive noticed is that my abdomen is always swollen and im not even fat.
    Probably the intensines have something to do with it ?

    Comment


      #3
      Well, since it's not always the same bug, you technically don't have a mutant infection but actually just many infections, or an infection that isn't being treated properly...a mutant infection would imply that you get the same bug all the time and it comes back resistant to the antibiotics you took over and over.

      A few days to a week on antibiotics is for people with normal bladders and simple infections - 1 week of antibiotics isn't usually long enough to get rid of a UTI in neurogenic bladders, or at least that's what I was told. I know I get given 10 days to 2 weeks of treatment normally and any less than that in my experience, the UTI will come back. If it's an unusually strong bug, or comes back, then you go on a longer treatment. That usually does the trick and it doesn't come back.

      Maybe it's time to take a look at how you cath & bowels and if that's what could be causing frequent infections? Though some people can do everything right and still get infections...there's all kinds of supplements and tricks people try to reduce infections, search on here because there's tons of suggestions.

      Comment


        #4
        Well the antibiotics are getting less effective for sure , thats why i wrote mutant.
        What supplements would you suggest ? Doctors never mentioned any supplements to me before , only antibiotics.
        I tried taking some vitamin C once but didnt feel any difference so i quit

        Comment


          #5
          There is some evidence that d mannose can help prevent e. coli caused urinary tract infections. Search on this site for anecdotal accounts of its use and success. Search the internet for sources and dosage ideas.

          You are experiencing frequent and recurring urinary tract infections. I'd suggest that you see a specialist called an infectious disease doctor. I find that practitioners in this specialty are more adept at prescribing antibiotics than urologists or primary care physicians. That said, treating an e. coli caused infection, with Cipro is using a very powerful and broad spectrum antibiotic unnecessarily. There are likely other antibiotics that would be equally as effective without using an antibiotic that should probably be saved as a drug of last resort.

          Comment


            #6
            Originally posted by gjnl View Post
            That said, treating an e. coli caused infection, with Cipro is using a very powerful and broad spectrum antibiotic unnecessarily. There are likely other antibiotics that would be equally as effective without using an antibiotic that should probably be saved as a drug of last resort.
            It's funny you mention that. I've noticed that anyone *other* than urologists and infectious diseases all seem to jump straight to Cipro for UTIs. I agree with you, I'd been telling them for years I didn't do well on it, and sure enough the FDA and other agencies came out with blackbox warnings about it. I don't understand why it's still the go-to antibiotic in a lot of places...

            Comment


              #7
              Originally posted by twistties View Post
              It's funny you mention that. I've noticed that anyone *other* than urologists and infectious diseases all seem to jump straight to Cipro for UTIs. I agree with you, I'd been telling them for years I didn't do well on it, and sure enough the FDA and other agencies came out with blackbox warnings about it. I don't understand why it's still the go-to antibiotic in a lot of places...
              Doctors know it is a "big gun" that kills most anything. Most doctors don't treat complex urinary tract infections...so before they get the results of a culture & sensitivity, (C&S), they prescribe Cipro, and for most of their patient load, Cipro does the job. People with spinal cord injury using various forms of bladder management don't fall into the category of simple infections. Most doctors just want to get the infection treated and don't expect frequent and recurring urinary tract infections. Your doctor needs to understand your situation and be willing to look at your case through different eyes than what they normally treat.

              Comment


                #8
                There are many approaches to dealing with recurrent infections with a neurogenic bladder
                if you perform intermittent catheterization 1) do you use a new catheter every time? Or do you hand clean your catheters? 2) Have you had a cystoscopy lately? a cystoscopy could tell if you have little tears in your urethra from cathing frequently which makes you susceptible to infection. 3)have you been screened for stones in you bladder or kidney? Stones can make you prone to bacteria.

                pbr
                The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                Comment


                  #9
                  Originally posted by gjnl View Post
                  Doctors know it is a "big gun" that kills most anything. Most doctors don't treat complex urinary tract infections...so before they get the results of a culture & sensitivity, (C&S), they prescribe Cipro, and for most of their patient load, Cipro does the job. People with spinal cord injury using various forms of bladder management don't fall into the category of simple infections. Most doctors just want to get the infection treated and don't expect frequent and recurring urinary tract infections. Your doctor needs to understand your situation and be willing to look at your case through different eyes than what they normally treat.
                  Oh I'm aware and I have docs that agree now and understand that they aren't simple infections, I guess I was just pointing out what I noticed having seen a lot of random docs before. Most know Cipro is a "big gun" as you put it, so it makes even less sense that it's what they jump to right away. But then again like you said, a lot of docs just want to write a script and get people out the door.

                  Anyway, sorry to the OP, didn't mean to derail the original post.

                  Comment


                    #10
                    Hi Martiniani. Sorry you're feeling bad. You are probably drinking enough water and being clean with your cathing. Are you able to pee at all, other than by cathing? I am T9, as are you. I had constant UTI's with cathing and Foleys. I am an "incomplete", so I can pee without cathing,...and now that's what I do. I wear a diaper, don't cath, and I don't have UTI's.

                    I'm sending you a private message. Please let me know if you receive it. I studied Croatian for about a year. I really enjoyed it. Nice people.
                    Female, T9 incomplete

                    Comment


                      #11
                      Originally posted by SCI-Nurse View Post
                      There are many approaches to dealing with recurrent infections with a neurogenic bladder
                      if you perform intermittent catheterization 1) do you use a new catheter every time? Or do you hand clean your catheters? 2) Have you had a cystoscopy lately? a cystoscopy could tell if you have little tears in your urethra from cathing frequently which makes you susceptible to infection. 3)have you been screened for stones in you bladder or kidney? Stones can make you prone to bacteria.

                      pbr
                      Just like Martiniani77, I get klebsiella every time and I treat with oral antibiotics and afterwards I get prescribed with Cotrimoxazole as a maintenance drug (1 tab before sleeping) However, after the treatment, in about two weeks, urine after ICT comes out with infection again. Cloudy and with Pus. It becomes cyclic and I get klebsiella Pneumoniae.

                      PBR, I re-use my Nelaton catheter which I soap and dry after using for 3 times. I am clear with my KUB and with no stones but the constant ICT I believe is the cause for recurring UTI. What could we be doing wrong?
                      He ai'nt heavy, he is my brother!
                      Rufus Wainright

                      ronaldlora.blogspot.com

                      Comment


                        #12
                        Originally posted by iskumbro View Post
                        PBR, I re-use my Nelaton catheter which I soap and dry after using for 3 times. I am clear with my KUB and with no stones but the constant ICT I believe is the cause for recurring UTI. What could we be doing wrong?
                        Wild guess here I'm no doctor, but reusing catheters is playing with fire, especially if you say you use them 3 times before you clean them!?

                        I get it, maybe you have no choice. I know I've been so broke in the past that I couldn't afford to buy the single-use caths so I had to reuse them. And infectious diseases docs and urologists here anyway, tend to frown on maintenance antibiotics, you'll get resistant, not a matter of if but when. But who knows, maybe in some people it's the only choice, maybe your health care system is different than mine. Any kind of catheterization puts you at higher risk of UTIs, if that's what you meant by constant ICT?

                        Not sure what a KUB is, or ICT but if I were you I'd be looking at how you clean them. When I did reuse mine, I only reused them a few times and I made sure they were as clean as I could get them for every use with hot water, soap, and iodine, chlorexidine or rubbing alcohol. I made sure I had a few to rotate so that I had a clean ones on hand, and they got put away in a clean container or closeable "zip-lock" bag. Some people use other stuff and store them in iodine or other solutions so don't take what I say as gospel but it did work for me when I had no other choice, something else might work better for you. But just soap and water and only after 3 uses? Not sure that'll do the trick, yikes.

                        I'd say probably the first thing I'd try in your situation is to try brand-new catheters and no reusing if you can afford it, and see if that cuts down on UTIs...

                        Comment


                          #13
                          While ICT has many meanings, in this context, I think the poster means Intermittent Catheterization Technique, otherwise known to many of us as CIC (Clean Intermittent Catheterization) or sometimes just IC (Intermittent Catheterization).

                          KUB is an X-ray imaging of the kidneys ureters, and bladder.
                          X-ray beams are passed through the abdomen, producing images of the kidneys, ureters, and bladder on a special type of film. KUB radiography is often used as a first step in diagnosing problems of the urinary system.

                          Purpose of the KUB Radiography:
                          Determine the size, shape, and position of the kidneys and bladder
                          Detect obvious abnormalities of the urinary system, such as kidney stones
                          Help differentiate between urologic and gastrointestinal diseases
                          Locate a foreign object (e.g., that has been swallowed)

                          Many of us know Cotrimoxazole as Bactrim or Septra. It is a combination of antibiotics comprised of Sulfaethoxzole and Trimethoprim.




                          Comment


                            #14
                            Thanks twistties for the info, after catheterization I soap and rinse the nelaton cathether and dry it up. I reuse and do the same process. I believe the process you described is much better. When you say zip locked, are the catheters supposed to be soaked in alcohol or a clean container?

                            Hi gjnl, thank youy for the distinctions especially about Bactrim
                            He ai'nt heavy, he is my brother!
                            Rufus Wainright

                            ronaldlora.blogspot.com

                            Comment


                              #15
                              It is not recommended to soak or clean catheters with alcohol, Betadine, bleach, or vinegar. Even if you rinse the catheter well afterwards, residual can remain on the catheter and we have seen this lead to urethritis. Plain soap and water, and then air drying, has the best research evidence for use.

                              (KLD)
                              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                              Comment

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