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    #16
    Originally posted by SCI-Nurse View Post
    Try Mirgabetron (Myrbetriz) it is not an anticholinergic.
    I would cut down some on the fluids a bit.
    CWO
    Myrbetriq has been a game changer for me. My insurance covers most of it but I still pay $100/mo for it. I think it is $400 without insurance. Pricey, but for me it is worth the money.

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      #17
      Originally posted by Tman9513 View Post
      Myrbetriq has been a game changer for me. My insurance covers most of it but I still pay $100/mo for it. I think it is $400 without insurance. Pricey, but for me it is worth the money.
      Can you describe how Myrbetriq has been a "game changer" for you? Thanks
      .

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        #18
        Originally posted by Nowhere Man View Post
        I'm a c6-7 complete quad, 8 years post. I drink about 70 oz (2070 mL) of fluid per day. 36 oz of water, 10 oz of coffee, 24 oz of soda. I wear a binder & ted hose.

        My bladder can only hold 300 mL as max. Often I'll leak even at 250 mL. I cath 8-9 times per 24 hrs, which includes 1 hour after laying down for the night, then 4 hours later. But I still leak every night.

        I also have recurring UTI, probably from high bladder volumes that cause AD and leakage at night. I already cath 8-9 times a day.

        I'm not sure what I should do. Is intermittent cathing just not feasible for me? I'd hate to get an SP and get permanent kidney shrinkage. Should I drink less fluid? Tips?
        I am also a c6 complete quad like you. I do intermittent cath 6 times / 24 hours. I do not leak at night because i stop drinking fluid 2 hours prior going to bed. And start to drink after i wake up in the morning. I cover up for my fluid intake during the hours i am awake. Also you should minimize the fluids which contain caffiene.

        You can try detrocetol tablets 2 mg twice per 24 hours to increase bladder capacity.

        For further information on how to manage your bladder properly you can read this http://spinalinjury.info/neurogenic-bladder-management/ and http://spinalinjury.info/quadriplegi...lection-guide/
        Quadriplegic c6 complete.

        Bsc(HONS) Applied Physics / Msc Electronics from University of Karachi. Currently doing Mphil in AI/Robotics from IBA karachi.

        Physics / Maths high school instructor. Part time Web developer/ blogger . Have keen interest in Astronomy / physics/ World politics / Economics.

        Visit http://spinalinjury.info where people suffering from SCI share articles about post spinal cord injury life based on research and personal experiences

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          #19
          Originally posted by fahad283 View Post
          I am also a c6 complete quad like you. I do intermittent cath 6 times / 24 hours. I do not leak at night because i stop drinking fluid 2 hours prior going to bed. And start to drink after i wake up in the morning. I cover up for my fluid intake during the hours i am awake. Also you should minimize the fluids which contain caffiene.

          You can try detrocetol tablets 2 mg twice per 24 hours to increase bladder capacity.

          For further information on how to manage your bladder properly you can read this http://spinalinjury.info/neurogenic-bladder-management/ and http://spinalinjury.info/quadriplegi...lection-guide/
          Do you mean Detrusitol and Detrusitol XL, generically known as Tolterodine? Tolterodine is known as Detrol or Detrol LA in the United States.

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            #20
            Originally posted by gjnl View Post
            Do you mean Detrusitol and Detrusitol XL, generically known as Tolterodine? Tolterodine is known as Detrol or Detrol LA in the United States.
            YES exactly. I found it very effective for me. Now i don't need to attach condom cathether while asleep to save my pants. In addition, as you know, when quadrplegics leak, they tend to have an increase in their blood pressure for the time being. i have trained my mind to such an extent that in case there is going to be a bladder leak, i wake up immediately & urinate in a urine bottle.
            Quadriplegic c6 complete.

            Bsc(HONS) Applied Physics / Msc Electronics from University of Karachi. Currently doing Mphil in AI/Robotics from IBA karachi.

            Physics / Maths high school instructor. Part time Web developer/ blogger . Have keen interest in Astronomy / physics/ World politics / Economics.

            Visit http://spinalinjury.info where people suffering from SCI share articles about post spinal cord injury life based on research and personal experiences

            Comment


              #21
              Originally posted by August West View Post
              Dementia is a common side-effect and it's not even listed on the drug warning.
              That's a highly inaccurate choice of words. It is a feared, possible side-effect based on preliminary studies.
              T3 complete since Sept 2015.

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                #22
                Originally posted by Tman9513 View Post
                Myrbetriq has been a game changer for me. My insurance covers most of it but I still pay $100/mo for it. I think it is $400 without insurance. Pricey, but for me it is worth the money.
                I wish it worked for me but that experiment was just two weeks of leaking. Are there other, non-anticholinergic options? So far only oxybutynin has worked for me.
                T3 complete since Sept 2015.

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                  #23
                  Originally posted by gjnl View Post
                  Can you describe how Myrbetriq has been a "game changer" for you? Thanks
                  .
                  Before I started taking Myrbetriq I had intense pain every time my bladder was full. If I had a UTI it was unbearable when my bladder was at 100-200cc. I'd be at work and in a meeting with my crotch on fire trying to keep a straight face. Or, I'd wake up in the night with pain or leaking. The pain went away literally the day or two after I started taking Myrbetriq. I still get the occasional UTI but the pain is so much less now and without leaking. It felt like there was barb wire in my urethra and someone was yanking it back and forth.

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