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  • #16
    Originally posted by lynnifer View Post
    Think again. This guy was sensory and functionally complete.

    https://www.reevebigidea.org/kent-story
    but im incomplete and can already move my legs voluntarily.

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    • #17
      Okay, lol. Never mind .. but it would stand to reason that an incomplete would fare better.
      Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

      T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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      • #18
        Things that you should have done in an ANNUAL check-up:

        • Abdominal ultrasound to include the kidneys, ureters, and bladder (and gall bladder for those who still have one).
        • CBC (complete blood count).
        • CRP (C-reactive protein) and albumin/prealbumin levels.
        • Urodynamics if your bladder management is not voluntary or managed with a long-term indwelling catheter.
        • Urinalysis and urine culture & sensitivity.
        • Chem 20 panel, lipid panel, TSH (thyroid stimulating hormone), 24 hour urine collection for creatinine clearance.
        • Since you have been living abroad, I would include a hepatitis screen panel for Hepatitis A, B, and C.
        • For those with an indwelling catheter for more than 5 years, urine cytology tests X3
        • Physical exam for any changes in neurologic status (an ASIA/ISNCSCI exam is best)
        • Assessment of any spinal deformity or instability (physical exam, perhaps Xrays)
        • Assessment for CTS (carpel tunnel syndrome) and hand therapy if indicated.
        • Since you have been walking and standing, a DEXA scan may not really be indicated, but you may want to discuss this with your provider.
        • For males, a prostate and testicular exam. PSA level is also recommended if over the age of 40.
        • For females, a PAP smear, pelvic exam and mammogram.


        I agree an MRI is not really indicated unless you have symptoms of spinal root impingement or a syrinx.

        (KLD)
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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        • #19
          Originally posted by SCI-Nurse View Post
          Things that you should have done in an ANNUAL check-up:

          • Abdominal ultrasound to include the kidneys, ureters, and bladder (and gall bladder for those who still have one).
          • CBC (complete blood count).
          • CRP (C-reactive protein) and albumin/prealbumin levels.
          • Urodynamics if your bladder management is not voluntary or managed with a long-term indwelling catheter.
          • Urinalysis and urine culture & sensitivity.
          • Chem 20 panel, lipid panel, TSH (thyroid stimulating hormone), 24 hour urine collection for creatinine clearance.
          • Since you have been living abroad, I would include a hepatitis screen panel for Hepatitis A, B, and C.
          • For those with an indwelling catheter for more than 5 years, urine cytology tests X3
          • Physical exam for any changes in neurologic status (an ASIA/ISNCSCI exam is best)
          • Assessment of any spinal deformity or instability (physical exam, perhaps Xrays)
          • Assessment for CTS (carpel tunnel syndrome) and hand therapy if indicated.
          • Since you have been walking and standing, a DEXA scan may not really be indicated, but you may want to discuss this with your provider.
          • For males, a prostate and testicular exam. PSA level is also recommended if over the age of 40.
          • For females, a PAP smear, pelvic exam and mammogram.


          I agree an MRI is not really indicated unless you have symptoms of spinal root impingement or a syrinx.

          (KLD)
          excellent. printed this for my provider.

          Comment


          • #20
            WOW...reading this thread made me realize it's been 16 yrs. May 16th. I almost can't believe it. Glad you're still healthy at 10. That's great. I dunno about the tests but i'm only having minor issues. I have a suprapubic and get uti's few and far between. I've been vaping but still can't completely get off the cigs. The last time i was in the hospital they said i had early stage COPD so i'm trying harder cause i am having some breathing problems. Not major but it's bugging me. The only other thing is low blood pressure. I take Midodrine, it helps for a few hours but just gets it up to like 100/60. The smoking is preventable and my own fault. So if you don't have that vice it sounds like you're doing good and will have many years of life to go.

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