Announcement

Collapse
No announcement yet.

Thinking about getting a Colostomy

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Thinking about getting a Colostomy

    I am t5 complete para thinking about getting a colostomy. I've read a few threads on here and have seen that for most people it has been a good decision to get a colostomy.

    I just have a few extra questions. I would like to get a temp colostomy so if I don't like I could go back and I also would like to use the irrigation method. So can you do the irrigation method with a temp. colostomy?

    Does any have a colostomy and play any wheelchair sports? I play wheelchair basketball and one of my main concerns would be something bad happening with the bag during a game or something. So is there products or something to

    make it more secure while playing sports? Also what do people do when they go swimming? I think I would like to get a colostomy because it would make my life easier. Right now I do a bp every other day when I am at a basketball

    tournament i have to do it every day(usually in the morning and it usually takes 1-1.5 hours to do). Usually I can go many months without having an accidents but sometimes I'll have a bad week due to something I eat or health reasons(liking being on certain antibiotics).

    So I think getting a colostomy would be life changing for me not having to worry about having accidents and would allow me to be more independent. I also would like to know more about the irrigation method- So if you do the irrigation

    method every other day is your bag usually pretty clear in between the time you do it and the next time you do it? I would like to keep the bag empty or close to as much as possible? Also how effective is the irrigation method does it

    clear you right out?


    Thanks In Advance
    Its only at the brink of our own destruction that we learn to change.

    #2
    sorry just bumping the thread.
    Its only at the brink of our own destruction that we learn to change.

    Comment


      #3
      Rarely is it recommended to irrigate for colostomy management now days. In order to do this and not also wear an appliance, you need to have a very distal colostomy (like a descending or sigmoid ostomy). The more proximal the colostomy, the more liquid the stool, and the more likely it is that you will get multple stool discharges into the appliance each day. Emptying the bag and cleaning up is not difficult.

      You would need to work with a ostomy nurse (usually a CWOCN) before your surgery and following it to find an appliance that will work for you, and also any additional securement devices that will work for very active sports. I have a number of clients who play quad rugby, wheelchair basketball, and who swim who have bowel ostomies.
      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

      Comment


        #4
        When I read some of the other threads there were some members who used the irrigation method. Do people not use this irrigation method anymore?
        Its only at the brink of our own destruction that we learn to change.

        Comment


          #5
          There are still people who had their colostomies done years ago who still irrigate, but it is rarely done with new ostomies.

          You should also keep in mind that a so-called "temporary" colostomy is often done as a double barreled colostomy, and these cannot be managed with irrigation generally. They are usually in the transverse colon, and stool is still too liquid. Not all "temporary" colostomies can be reverse, either.

          (KLD)
          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

          Comment


            #6
            Originally posted by twinkletoes View Post
            I am t5 complete para thinking about getting a colostomy. I've read a few threads on here and have seen that for most people it has been a good decision to get a colostomy.

            I just have a few extra questions. I would like to get a temp colostomy so if I don't like I could go back and I also would like to use the irrigation method. So can you do the irrigation method with a temp. colostomy?

            Does any have a colostomy and play any wheelchair sports? I play wheelchair basketball and one of my main concerns would be something bad happening with the bag during a game or something. So is there products or something to

            make it more secure while playing sports? Also what do people do when they go swimming? I think I would like to get a colostomy because it would make my life easier. Right now I do a bp every other day when I am at a basketball

            tournament i have to do it every day(usually in the morning and it usually takes 1-1.5 hours to do). Usually I can go many months without having an accidents but sometimes I'll have a bad week due to something I eat or health reasons(liking being on certain antibiotics).

            So I think getting a colostomy would be life changing for me not having to worry about having accidents and would allow me to be more independent. I also would like to know more about the irrigation method- So if you do the irrigation

            method every other day is your bag usually pretty clear in between the time you do it and the next time you do it? I would like to keep the bag empty or close to as much as possible? Also how effective is the irrigation method does it

            clear you right out?


            Thanks In Advance
            I've had my colostomy around 3 years. Best decision I've ever made. Wish I would have done it right after my accident 27 years ago. I use a disposable one piece system. Takes less than 5 minutes to change. Never did irrigation so can't help you there. Sports and swimming shouldn't be a problem.

            Comment


              #7
              KLD i would ask that you refer stony things to someone who knows what they are talking about. it is rarely done for new osteomates within the first few months as this is the healing period after that they are ok to irrigate if they wish and are trained to do it. i would encourage you to visit the UOAA website for forums as there is an entire forum there for irrigators.
              T6 Incomplete due to a Spinal cord infarction July 2009

              Comment


                #8
                Note above I recommended that she meet with a CWOCN for a pre-operative evaluation. I have worked with SCI patients with colostomies for over 40 years...so I do know something about it!!

                (KLD)
                The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                Comment


                  #9
                  Are there any concerns (and hopefully solutions if there are concerns) about odor?

                  Comment


                    #10
                    Originally posted by cjo View Post
                    Are there any concerns (and hopefully solutions if there are concerns) about odor?
                    You may need to adjust your diet for high gas forming foods if you have a problem with this. Also, get ostomy bags with a vent that includes a charcoal filter. Sometimes you may need to go into the bathroom to let excessive gas out of your bag. There are also specific deodorant drops or solutions you can put inside your bag when changing it. Your ostomy nurse (CWOCN) is your best resource for these types of issues.

                    (KLD)
                    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                    Comment


                      #11
                      Originally posted by cjo View Post
                      Are there any concerns (and hopefully solutions if there are concerns) about odor?
                      I dealt with odor when I first had mine and a friend turned me on to these. One a day and I'm good.

                      http://www.allegromedical.com/ostomy-supplies-c529/devrom-chewable-tablets-p176388.html?utm_campaign=Comparison%20Shopping&ut m_source=froogle&utm_medium=feed&CS_003=9164468&CS _010=8ab281020bb66dff010bb673a34b0be5&gclid=CjwKEA jw3pTJBRChgZ3e7s_YhAkSJAASG9Vr4vD_ypbNrB0SU1dj1bbz VKExZHLWUDaM4rB67ZT-choCI1Pw_wcB&kwid=productads-adid^53190000973-device^c-plaid^95325363613-sku^DEVROM@ADL4ALLEGRO-adType^PLA#DEVROM
                      "It is every man's obligation to put back into the world at least the equivalent of what he takes out of it. Try not to become a man of success but rather try to become a man of value." - Albert Einstein

                      Comment


                        #12
                        For those that experienced bloating and gas retention prior to having a colostomy, did you experience improvement after the colostomy?

                        Comment


                          #13
                          It will depend partially on the location of the ostomy. You may need to watch what foods give you gas and bloating, and regulate how much of them you eat at anyone time. I do know people feel as though they have less bloating - but I am not sure that is true for everyone. "You may need to adjust your diet for high gas forming foods if you have a problem with this. Also, get ostomy bags with a vent that includes a charcoal filter. Sometimes you may need to go into the bathroom to let excessive gas out of your bag. There are also specific deodorant drops or solutions you can put inside your bag when changing it. Your ostomy nurse (CWOCN) is your best resource for these types of issues." kld
                          I would encourage you to go to the Wound and Ostomy Care Website for further information.
                          ckf
                          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                          Comment


                            #14
                            Seriously , What foods don’t create gas? it’s almost ridiculous comment, A byproduct of digestion is methane gas, period. Yes , Some food do create more then some others but for sure I’d bet that it differs by person. I’d also bet that if you were a gassy person before then you’ll be a gassy person after. And if you’re a quad Just how Do you expect to step away to someplace private To release the gas from a belly bag that’s about to explode ?????
                            And if your abdominal appearance bothers you now then how discreet can a bloated bag be???

                            Comment


                              #15
                              I really don’t think that the tone used was necessary. That being said, not all foods cause gas. There are some that are characteristically do. And you are correct that it varies from person to person.

                              Managing a colostomy is no different in theory than managing any other part of your care. You will have to try different products, timing, etc, your level of injury is not the only thing that may impact your management . It may be more challenging to figure out how to make it work. And neither of us is passing on information that had not been added onto us y others who have gone through similar experiences.
                              ckf
                              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                              Comment

                              Working...
                              X