Announcement

Collapse
No announcement yet.

Antibiotic-resistant UTI

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Antibiotic-resistant UTI

    I have been having some reoccuring UTIs. It seems like just as soon as I get on an antibiotic I get another UTI while being treated. The one they are treating now is only sensitive to Rocephin and I feel like I just got another one. I don't understand how I can get a UTI while on antibiotics. I am worried about getting fully resistant. Has anyone else experienced this?
    Marie
    Unbroken by the grace of God

  • #2
    This can happen if you have urinary stones, as the bacteria can hide out in the stone material. Have you been screened recently for urinary stones?

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

    Comment


    • #3
      After you rule stones in/out, get to an infectious disease doctor. I find that infectious disease doctors just handle frequent, recurring, stubborn urinary tract infections with much more skill than urologists or primary care physicians.

      All the best,
      GJ

      Comment


      • #4
        Ruling out the stones is first priority. But also you sound like you are in a similar position as me and I don't know how you're managing your bladder but with chronic infections it's not likely to get much better no matter what you do. Basically at this point all we can do is tolerate the infection, if you continue to take antibiotics at the first sign of an infection when your spasms get worse and a quite a bit of pain then you become resistant and if it gets bad enough it can kill you. So what all the urologist recommended is only treating the infection when it's getting life-threatening, when you start to hit a fever. But other than that you'll just have to tolerate it, I know it's hell.

        Good quality sources of vitamin C throughout the day seemed to help me keep it from getting out of hand, along with excessive amounts of water, and a good diet

        Comment


        • #5
          I have an indwelling catheter a suprapubic. I'm only sending a sample when I am getting chills and my spasticity goes up. I have never ran a fever and I'm wondering if I physically can. It seems like if I go a couple of hours without drinking a whole lot I start getting chills, headaches, twitches like I'm getting now. Should I just ignore it?
          Marie
          Unbroken by the grace of God

          Comment


          • #6
            I am C6/7 complete, 34 years post injury. In my entire spinal cord injury history, I have had my fair share of urinary tract infections (before using Vetericyn/HydroCleanse/Microcyn variations), and never once had a fever. When I have a urinary tract infection, I have a lot of autonomia, which include chills, sweats, lots of discomfort. You need to get a urine specimen to a lab to get a urinalysis (UA) and culture & sensitivity (C&S) to find out which bacteria is causing the infection and which antibiotic is most effective. Do not ignore symptoms that are your markers for urinary tract infections, just because you don't/aren't exhibiting symptoms that the medical community says you should be experiencing.

            All the best,
            GJ

            Comment


            • #7
              Originally posted by gjnl View Post
              I find that infectious disease doctors just handle frequent, recurring, stubborn urinary tract infections with much more skill than urologists or primary care physicians.
              GJ
              My experience agrees. I had longstanding chronic UTIs that were not cured until I saw an infectious disease doctor (even though I have a superb urologist).
              Last edited by xsfxsf; 09-04-2016, 01:10 AM.

              Comment


              • #8
                Originally posted by SCI-Nurse View Post
                This can happen if you have urinary stones, as the bacteria can hide out in the stone material. Have you been screened recently for urinary stones?

                (KLD)
                20 years, foley user. It is ALL in the quality of care. Drs can MEAN well and still not know shiRt from apple butter. Tossing anti-biotics at you around the clock isn't a solution, it's deadly. Find someone to check you for/REMOVE the stones, then use proper clean technique each time you change your cath, Let gjnl tell you about the microcyn solution for flush/prevention, get on a HEALTHY diet, avoid sugar(in foods also), drink water often to keep your pee clear or only slight color to it, look into douette caths or if not those, then silver coated caths.Silver coated prevent many infections, but douette design looks to prevent the irritation/damage the tip of the cath causes. I'm going to start using them asap. About to go get a 1,5cm stone and a bunch of smaller ones Wednesday. I had a multi year stretch infection/colonization free. Lots of life troubles prevented me from being able to take the right approach and been having problems for last 3 years but never taken antibiotics since last surgery. Many years before that round. Diet and clean technique are very important. UTIs have been discussed EXTENSIVELY here for ever. There is no need to live with that fear every day once you start doing things right, after getting rid of the stones in your bladder.
                Fluoroquinlones destroy connective tissues in your shoulders, among other places, antibiotics in general should not be taken regularly, but the info above negates the need for that. Look up, once you get clear, you CAN remain that way! Hang in there and get yourself knowledgeable.
                Last edited by CapnGimp; 09-03-2016, 11:58 PM.

                https://www.facebook.com/john.baxter.1213986

                Comment


                • #9
                  quadmarie:
                  Don't quit drinking a whole lot of water There is a new style catheter out(first thread was 2012 started by Dr Wise) did not see it myself until recently. Called a duette, has two balloons, surrounding the opening that seems to be the root cause of otherwise clean technique catheter use. I'll link the video here, watch it. In the past, I have used silver coated caths(about 16 bucks each, same as duette) when I had trying times. Had to change every two weeks to keep effective. I am going to switch to duette after having my present stones removed. Also in the past, I knew I had stones by the solid build up on the cath. Once that starts, you have stones. When you deflate the balloon, this encrustation falls off, most of it staying in your bladder and the pieces become increasingly larger. Waaay back 20 years ago, when I first started out, I took my cath out every day and cleaned the crust off/out of, by rolling /crushing it in my fingers. After two years, I FINALLY got to a place where the uro took them out. He said about 20 pencil eraser sized and a bunch of smaller ones. That's how I arrived at my conclusion. If you haven't been checked for stones in a year, get checked!

                  duette thread /forum/showthread.php?229736-New-catheter


                  video watch this about how cath damages your bladder leading to infection/ reason for redesign = duette
                  https://www.youtube.com/watch?v=2dB2RnUI64g
                  Last edited by CapnGimp; 09-04-2016, 12:24 AM.

                  https://www.facebook.com/john.baxter.1213986

                  Comment


                  • #10
                    Originally posted by quadmarie View Post
                    I have an indwelling catheter a suprapubic. I'm only sending a sample when I am getting chills and my spasticity goes up. I have never ran a fever and I'm wondering if I physically can. It seems like if I go a couple of hours without drinking a whole lot I start getting chills, headaches, twitches like I'm getting now. Should I just ignore it?
                    Could these symptoms be from bladder spasms? Are you taking an anticholinergic like oxybutynin?

                    All the best,
                    GJ

                    Comment


                    • #11
                      Originally posted by quadmarie View Post
                      I have an indwelling catheter a suprapubic. I'm only sending a sample when I am getting chills and my spasticity goes up. I have never ran a fever and I'm wondering if I physically can. It seems like if I go a couple of hours without drinking a whole lot I start getting chills, headaches, twitches like I'm getting now. Should I just ignore it?
                      To you guys saying you've never had a fever since your injury because of an infection, well it's simple you just never had an infection that was at the point where it was life-threatening. I assure you if it gets bad enough spreading to your kidneys and such you will get a fever, usually along with nausea and vomiting although it did not for me just a fever well over 40 ( which for an adult is apparently quite serious) And despite my body temperature being so high I couldn't stop shivering. And that is when you have no choice but to get your infection treated. But if you're just getting pain, chills, increased spasticity and have a history of chronic infections , Infections that come right back after you've treated them which you have described as the case. Guess what you're going to have to tolerate that, hell I got that right now and I have for the last year since I've had to stop taking antibiotics every time I was in terrible pain and going dysreflexic . It's just bad luck, some people get lucky with their injuries some people get lucky with how their bladder responses If you have a high-pressure bladder, and an a indwelling catheter Every time you go to get a culture/ urinalysis there will always be a few bad bugs it will always look like a complex UTI ALWAYS! When you go to the hospital you need to explain that the test will be positive, and that you should not be taking antibiotics unless it is very serious. So they can look for other things like bladder stones, gallstones, kidney stones, pancreatitis, prostatitis etc. If you don't they will just brush you off as a infection and give you some horrible drug like Cipro. and if it's none of those things well then you just have A common UTI that you will always have because of the injury and your individual bodily responds and circumstances. All you can do is manage your symptoms and prevent it from getting far far worse, which make no mistake it can if you get careless.

                      All in all you're always going to have bacteria in your bladder, you're always basically going to have a minor UTI! if your body is very sensitive to stimulus like mine that means you will always have spasticity that is increasing, as well as random uncontrollable chills/AD. Daily doses of antibiotics like Macrobid are very harmful but more importantly will not help long-term, even with bladder flushes of gentamicin one of the strongest antibiotics if you are unfortunate enough to deal with chronic infections the bacteria will keep coming back and be resistant sometimes very quickly,even after one dose for the most unlucky. Urologist, infectious disease I've seen them all and they will say in some cases there really isn't much they can do. They are starting to be much more hesitant to prescribe daily preventative antibiotics, as there's not really much evidence that they help when you have a neurogenic bladder and a indwelling catheter. Adequate water is key, but if antibiotic resistance is becoming a big enough problem with you they will tell you to simply not treat an infection until it is serious, they know that's easier said than done because even A minor UTI can be quite painful and troublesome, they know that and that's why they don't get so forcible with saying that until frankly it's too late. That is why you need to ask the questions, and make bold statements! You need to tell them straight up listen I've been popping antibiotics like skittles and the infection just comes back; what's going to happen if I keep aimlessly taking antibiotics, what are my other option etc. If you just stand idly by and go doctor this hurts, Dr. I'm sick it's just going to be a vicious cycle remember they got a lot of patients you need to do your own research and be able to ask your own questions that are going to help you figure things out for better or worse!

                      I have asked these questions and they don't like to say it but if you just keep getting it treated every time you feel a UTI coming you'll die eventually, and you're not gonna feel any better for more than a week well you're on the drug that's the reality of it I'm sorry. I've been dealing with this for quite some time, I've had just about ever bug you can think of and I've been on about ever antibiotic you can think of even the ones that I really should not have; the ones that are our last resorts all because of the neglect in acute care,it's possible that that sent me down the rabbit hole of chronic infections, superbugs etc. I have had urine cultures come back where no oral antibiotics would work and only one or two intervenous drugs can kill each bug; problem is needed to take both drugs. When you have common bacteria that that is completely resistant to almost every antibiotic we have you know you have a serious problem, and you and your doctors done fucked up. Why did it get so serious, to wear simple bugs are now all of a sudden superbugs well I just kept doing what the doctors/specialist told me which was taking antibiotics like their candy. Now when I go to see my urologist I make the suggestions she gives me her input, and I don't beat around the bush anymore if something can get out of hand I want to know!

                      The final defence is to get a urostomy, a very invasive surgery but that is the steps you have to take when you're severely disabled and dealing with chronic infections.

                      I had this guy I knew in rehab, same injury as me but I always envied him right from the gecko his bladder was just calm as can be it would hold 1000+ cc and not bother him at all, he had decent wrist function so he do an ic drain his bladder and he'll be good for six hours. Meanwhile when I was doing instrumented catheters, after I did one not even 30 minutes later my bladder would be forcing urine out my penis causing a UTI and autonomic dysreflexia , Which led me to switch to a suprapubic which gave me a little bit of a more open schedule in regards to bladder management but did nothing to prevent infections. Btw this guy didn't take any medication, didn't have Botox; his bladder just responded that way to the injury. Luck of the draw.
                      Last edited by JamesMcM; 09-04-2016, 06:22 PM.

                      Comment


                      • #12
                        After flushing with Renacidin this morning my symptoms have alleviated. I am still getting some chills but they are more external than internal. Some may know what I'm talking about but when I am getting a true UTI my chills feel like they're coming from inside out where as if I need to be say repositioned my chills feel like they are on the surface of my skin. I am on oxybutynin XL and I just ordered some d-mannose to try. I think sometimes I need to try to deal with my symptoms for a little while before I send in a sample. Also another test that I tried this morning was Flushing. If I have a bad UTI my bladder does not like having the renacidin in and I will get intense chills but this morning my bladder tolerated it fine. I need to be more cognizant of The Facts of antibiotic resistance. One of the reasons I was on multiple antibiotics was because I was having an allergic reaction to Bactrim which I've never had before. I always thought that I had to drink at least a liter of day but as I have been reading I should be drinking more. I drink a whole CamelBak a day and I think mine holds at least a liter. Time to start drinking more. I think I have been checked for stones last year but I will do a follow-up. Thank you everyone.
                        Marie
                        Unbroken by the grace of God

                        Comment


                        • #13
                          Originally posted by JamesMcM View Post
                          To you guys saying you've never had a fever since your injury because of an infection, well it's simple you just never had an infection that was at the point where it was life-threatening.
                          It is mostly about colony forming units (CFU) as identified in a culture & sensitivity (C&S) lab test of a urine specimen. In my case, each urinary tract infection I have had has been well above 100,000 CFU and no fever. The symptoms I experience are full blown autonomia, chills, dangerously high blood pressure, etc. If I ignored (it would be impossible) these symptoms and didn't get treatment for the infection, I would die from complications of autonomia.

                          "Typically, the presence of a single type of bacteria growing at high colony counts is considered a positive urine culture. For clean catch samples that have been properly collected, cultures with greater than 100,000 colony forming units (CFU)/mL of one type of bacteria usually indicate infection. In some cases, however, there may not be a significantly high number of bacteria even though an infection is present. Sometimes lower numbers (1,000 up to 100,000 CFU/mL) may indicate infection, especially if symptoms are present. Likewise, for samples collected using a technique that minimizes contamination, such as a sample collected with a catheter, results of 1,000 to 100,000 CFU/mL may be considered significant." https://labtestsonline.org/understan...ture/tab/test/

                          All the best,
                          GJ
                          Last edited by gjnl; 09-04-2016, 07:51 PM.

                          Comment


                          • #14
                            Originally posted by gjnl View Post
                            It is mostly about colony forming units (CFU) as identified in a culture & sensitivity (C&S) lab test of a urine specimen. In my case, each urinary tract infection I have had has been well above 100,000 CFU and no fever. The symptoms I experience are full blown autonomia, chills, dangerously high blood pressure, etc. If I ignored (it would be impossible) these symptoms and didn't get treatment for the infection, I would die from complications of autonomia.

                            "Typically, the presence of a single type of bacteria growing at high colony counts is considered a positive urine culture. For clean catch samples that have been properly collected, cultures with greater than 100,000 colony forming units (CFU)/mL of one type of bacteria usually indicate infection. In some cases, however, there may not be a significantly high number of bacteria even though an infection is present. Sometimes lower numbers (1,000 up to 100,000 CFU/mL) may indicate infection, especially if symptoms are present. Likewise, for samples collected using a technique that minimizes contamination, such as a sample collected with a catheter, results of 1,000 to 100,000 CFU/mL may be considered significant." https://labtestsonline.org/understan...ture/tab/test/

                            All the best,
                            GJ
                            I thinkI am doing Clean Catch right but would like confirmation When all or most of symptoms of UTI are present Iam para neurgenic bladder managed by IC I insert catheter drain into urinal then pull out catheter a litle reinsert fill specimen cup then back to urinal completely drain. Doing all of this in as sterile a manner as possible i.e. thorough wash hands ,gloves hand sanitizer wipes never touch catheter. Is this what is considered clean catch it was how i was taught so just checking.

                            Comment


                            • #15
                              Originally posted by pete4sake View Post
                              I thinkI am doing Clean Catch right but would like confirmation When all or most of symptoms of UTI are present Iam para neurgenic bladder managed by IC I insert catheter drain into urinal then pull out catheter a litle reinsert fill specimen cup then back to urinal completely drain. Doing all of this in as sterile a manner as possible i.e. thorough wash hands ,gloves hand sanitizer wipes never touch catheter. Is this what is considered clean catch it was how i was taught so just checking.
                              As I understand a "clean catch" it applies to an able bodied person who can us a sanitary wipe, void an amount of urine, then catch a specimen of urine in a sterile cup.

                              No one who uses a catheter/neurogenic bladder can get a "clean catch" because the urine does not come straight out of the urethra, the urine is diverted through a catheter.

                              Whenever you submit a specimen of urine for a urinalysis (UA) and/or culture & sensitivity (C&S), you need to indicate to the lab that the specimen you are submitting was acquired via an intermittent or indwelling catheter.

                              All the best,
                              GJ

                              Comment

                              Working...
                              X