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    Osteoporosis Treatment

    C5 C6 quad. Dr. wanted me to get a bone density test so I did.
    The results is what I expected, severe Osteoporosis.
    Dr. prescribed Alendronate. I don't like all the possible side effects from it.

    Any one here take Osteoporosis medications?
    Do prescribed medications help a quad?

    I don't want to take strong drugs if it's not going to do much good.

    #2
    The last bone density scan showed that I had moderate osteoporosis. At that time my primary doctor prescribe Reclast. I only took the IV once and decided not to take it this year based on some scientific studies showing the the Reclast and similar drugs really didn't do much at reversing the bone loss. From the information I've read, doing the FES bike 3 times a week or more was much more beneficial. I'm hoping to start back on my FES bike in about a week and then stay with it on a consistent basis like I had done in the past. I'll then have another bone density scan in Feb. 2017. About the only other thing I've heard is to increase calcium intake.
    DaDutchman
    C5/C6 since 2007 due to car accident

    Comment


      #3
      There is not good evidence showing that any of these drugs either prevent or correct osteoporosis in people with SCI.

      (KLD)
      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

      Comment


        #4
        There may not be any study evidence to support the use of the of the various osteoporosis medications for people with spinal cord injury, but over 15 years, I've gone through various treatments and I am holding my own, not getting worse, and in some instances my numbers are better than the last study. My endocrinologist is satisfied with these results. If you have an endocrinologist who is willing to work with you, you may be better off trying various modalities than not. Just because there aren't any studies doesn't mean some of the treatments won't at least keep you from getting worse, but maybe not better.

        The lack of studies doesn't mean that some of the treatments aren't beneficial, it just means there are a lack of studies. Spinal cord injured are just not on the radar screen of the major pharmaceutical companies who have medications for osteoporosis and so they haven't invested the time and money to set up a study.

        All the best,
        GJ

        Comment


          #5
          they put me on forteo.......

          Comment


            #6
            Originally posted by airart1 View Post
            they put me on forteo.......
            I've done Forteo. At this time, you can only take Forteo for 2 years.

            All the best,
            GJ

            Comment


              #7
              Actually, a number of studies have been done with SCI, showing no scientific evidence of benefit, and sometimes actual harm.

              (KLD)
              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

              Comment


                #8
                Originally posted by SCI-Nurse View Post
                Actually, a number of studies have been done with SCI, showing no scientific evidence of benefit, and sometimes actual harm.

                (KLD)
                This is not encouraging for those of us in chairs who are not SCI but just starting Osteoporosis treatment.
                I have had periodic paralysis all my life. I lost my ability to walk in 2011 beginning with a spinal block, which was used for a hip fracture caused by periodic paralysis.

                Comment


                  #9
                  Originally posted by SCI-Nurse View Post
                  Actually, a number of studies have been done with SCI, showing no scientific evidence of benefit, and sometimes actual harm.

                  (KLD)

                  Do you know where or how I can access these studies? My primary physician keeps wanting me to take something.

                  Thanks
                  DaDutchman
                  C5/C6 since 2007 due to car accident

                  Comment


                    #10
                    well, first I'd go to an endocrine doctor and make sure your parathyroid and calcium numbers are copacetic, mine were way out of whack, so my bones were being sucked dry.....and as far as the forteo goes, guess I'll find out when they do a bone density test after my 2 years of treatments....I'm half way through...

                    Comment


                      #11
                      Originally posted by SCI-Nurse View Post
                      Actually, a number of studies have been done with SCI, showing no scientific evidence of benefit, and sometimes actual harm.

                      (KLD)
                      Originally posted by DaDutchman View Post
                      Do you know where or how I can access these studies? My primary physician keeps wanting me to take something.

                      Thanks

                      Same here with my Dr.
                      Would be nice to have evidence/facts.

                      Comment


                        #12
                        I've been trying to find any articles online, but so far with no luck. I would like to shows som of this material to my endocrinologist as well. Especially since he's of the opinion that it can't do any harm. Sometimes I wonder if he's ever read the warnings on drugs
                        Tom

                        "Blessed are the pessimists, for they hath made backups." Exasperated 20:12

                        Comment


                          #13
                          This is a sample types of articles I found. None of them are exactly what I call definitive.

                          http://sci.washington.edu/info/forum...teoporosis.asp

                          http://emedicine.medscape.com/articl...04-overview#a1

                          http://www.sciencedirect.com/science...77065710002630
                          Tom

                          "Blessed are the pessimists, for they hath made backups." Exasperated 20:12

                          Comment


                            #14
                            I've searched for scholarly articles, and haven't had much success in finding definitive information.

                            It's frustrating to read sentences like the ones below. I don't understand why an author of a paper like this wouldn't go on to outline the negative side effects or offer educated conjecture as to why these drugs might be unsafe for someone with a spinal cord injury.

                            • "Negative side effects after long-term use have been reported recently in studies in the general population."
                            • "We don’t know how safe it is for individuals with SCI to use these drugs for the long-term."

                            http://sci.washington.edu/info/forum...teoporosis.asp

                            All the best,
                            GJ

                            Comment


                              #15
                              I saved this from a previous post by someone, but I don't remember who posted. I should have been searching my computer instead of the internet.

                              Actually, there are not great studies showing that bisphosphonates are effective in either prevention or treatment of osteoporosis in people with SCI. These drugs also are not benign, and come with the possibility of some fairly significant side effects. Also, we have virtually no published research about the effects of menopause on women with SCI, either related to osteoporosis or otherwise.

                              There is a significant problem with many of the studies because of the bone areas that were included in DEXA scanning. We know that the osteoporosis is worst in most people with SCI in the following areas: distal femur, proximal tibia, and proximal femur. It can also occur in the humerus in those with tetraplegia. Lumbar spine osteoporosis is relatively rare in people with SCI, unlike in post-menopausal AB women. Most DEXA scanners are only programmed to measure bone density in the wrist, lumbar spine, and femoral neck, so unless special software is obtained for the scanner to include the ability to analyze the SCI areas at more risk, the effectiveness of therapies may be misinterpreted.

                              Passive standing (ie, in a standing frame) has not been shown to be effective in either prevention or treatment. Vibrating plate therapy while standing holds some promise, as does FES.

                              Here are a few recent articles about osteoporosis in SCI.

                              http://journals.plos.org/plosone/art...l.pone.0081124

                              http://link.springer.com/article/10....914-012-0117-0

                              http://www.sciencedirect.com/science...03999314008909

                              http://www.sciencedirect.com/science...03999315014835

                              http://link.springer.com/article/10....198-015-3326-4

                              http://www.sciencedirect.com/science...34148214013586

                              http://link.springer.com/article/10....2557-5#/page-1

                              http://link.springer.com/article/10....1879-4#/page-1

                              http://link.springer.com/article/10....0602-x#/page-1

                              http://www.rehab.research.va.gov/jou...01/page17.html

                              http://www.aginganddisease.org/EN/ab...ct147370.shtml

                              http://www.tandfonline.com/doi/full/...14Y.0000000200


                              Here is a Cochrane Review of non-drug therapy interventions:

                              http://onlinelibrary.wiley.com/doi/1....CD010620/full
                              Tom

                              "Blessed are the pessimists, for they hath made backups." Exasperated 20:12

                              Comment

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