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considering Forteo haven't seen any new posts since '14 is there new info out there??

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    considering Forteo haven't seen any new posts since '14 is there new info out there??

    I've had 2 fusion failures and now looking at a third due to charcot spine. Surgeon wants me on forteo for 3 months before even considering surgery. T score is -3 in hip/. All the side effects make me nervous because I have lupus that seems to complicate everything. Anyone want to share any input on forteo, or any new alternatives?

    #2
    I would consult an endocrinologist for an opinion. Forteo is a man-made form of a hormone parathyroid. It is used for high risk osteoporosis. Lab work of hormone levels would be in order in addition to having the specialist follow you through a proposed treatment would be in order with use of this medication.

    per
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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      #3
      Originally posted by shelwheels View Post
      I've had 2 fusion failures and now looking at a third due to charcot spine. Surgeon wants me on forteo for 3 months before even considering surgery. T score is -3 in hip/. All the side effects make me nervous because I have lupus that seems to complicate everything. Anyone want to share any input on forteo, or any new alternatives?
      I agree with seeing an endocrinologist and having him/her opine (and work with your surgeon) on Reclast or Prolia vs Forteo to meet a goal of rebuilding bone structure before a surgery.

      All the best,
      GJ
      Last edited by gjnl; 23 Jun 2016, 12:11 PM.

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        #4
        Was on it for over a year and it did not change a thing.

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          #5
          Ryan had very good results with this drug. With this said, he was prescribed by an endocrinologist and followed by same. Ry's bone density test (ordered by PCP but recommended by physio started it). He did 16 months of shots and increased his weight bearing (we purchased a standing frame) and calcium and vitamin D supplements to where his bone density is now well within a range acceptable for his age (24).

          Forteo in itself is not enough. You need the mineral support and the weight bearing (as recommended or intelligent) to make it work. It is not a permanent fix. You should not take it long term and it is not recommended for younger patients. Ry was younger than the recommended but his ortho issues made it worth considering. You need to consult an endocrinologist and weigh you options, risks and rewards. --eak
          Elizabeth A. Kephart, PHR
          mom/caregiver to Ryan-age 21
          Incomplete C-2 with TBI since 3/09

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