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Post traumatic tethered cord surgery

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  • Post traumatic tethered cord surgery

    Hi,

    Not sure if this is in the right forum but I was hoping to find people that have had the surgery and how bad the recovery was and whether it made any difference. I am based in England and am aware that Dr Falci is the man to go to in the States but (un)fortunately I don't meet the SCI criteria for Craig. Was wondering if anyone has had the surgery done in England?

    Thank you

  • #2
    What is the criteria at Craig that you don't meet?

    pbr
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

    Comment


    • #3
      Originally posted by gittel14 View Post
      Hi,

      Not sure if this is in the right forum but I was hoping to find people that have had the surgery and how bad the recovery was and whether it made any difference. I am based in England and am aware that Dr Falci is the man to go to in the States but (un)fortunately I don't meet the SCI criteria for Craig. Was wondering if anyone has had the surgery done in England?

      Thank you
      If you have a tethered cord, you make an outpatient appointment at Craig to be evaluated. You don't have to meet inpatient criteria. I saw Dr Falci in August.

      https://craighospital.org/programs/r...e-neurosurgery
      T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

      My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

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      • #4
        I suffered an accident playing soccer April of last year. I then started having symptoms about 6 weeks later and they found a small syrinx. My neurosurgeon in London is of the opinion that I have post traumatic tethered cord but I spoke to Dr Falci's secretary and she said that since I don't officially have a SCI I am not eligible for Craig.


        Does anyone know how much an outpatient consultation costs at Craig?

        Thanks

        Comment


        • #5
          Originally posted by gittel14 View Post
          I suffered an accident playing soccer April of last year. I then started having symptoms about 6 weeks later and they found a small syrinx. My neurosurgeon in London is of the opinion that I have post traumatic tethered cord but I spoke to Dr Falci's secretary and she said that since I don't officially have a SCI I am not eligible for Craig.


          Does anyone know how much an outpatient consultation costs at Craig?

          Thanks
          You call the number that I posted. Tell the nurse your issues. Then you choose the therapies you want during your evaluation. I had Physical Therapy, seating clinic, Urologist/cystoscopy, and a visit with social worker/therapist. My 20% portion that Medicare did not pay was $335.00

          The consultation costs according to what services you request and use. My injury is T12-L3 so my visit was not as intensive as someone with a higher injury and more paralysis.

          I was there from Monday to Thursday and stayed in their patient housing.

          My consultation with Dr Falci was separate because they couldn't get me in that same week. So I went back in August.


          I don't know about your situation but I would call the nurse advice line and ask? It can't hurt. They did ask for documentation of my injury before the scheduled my outpatient visit. I sent them my last primary care visit from my physician and I believe my surgical report where they fused my vertebra.
          T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

          My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

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          • #6
            Well I'm of the opinion that a syrinx is an injury to the spinal cord
            How large is it?
            pbr
            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

            Comment


            • #7


              That is my syrinx. To be honest it isn't the syrinx itself that concerns me but rather the tethered cord. I have spent months doing research and my symptoms fit that of a tethered cord far more than they do of a syrinx, which makes sense given the size of my syrinx. I have obviously searched this forum for people's experiences of tethered cord surgery but most are from some time a go and was hoping to find people that have had it done more recently.

              Comment


              • #8
                I tried to post a pic of my syrinx but won't seem to allow me. will try again - http://postimg.org/image/m35hstbkv/

                To be honest it isn't really the syrinx that concenrs me, I dont think it is the issue given its size but rather the tethered cord which is causing my symptoms. Given all the research my symptoms seem to fit perfectly with a tethered cord.

                I have since spoken to Craig hospital and they are happy to look at my scans and potentially have a consultation with Dr Falci. Unfortunately Dr Falci's secretary explained that surgery would cost in the region of $300,000 which leaves me trying to find anyone that has had the surgery done in England?

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                • #9
                  I tried to post a pic of my syrinx but won't seem to allow me.

                  To be honest it isn't really the syrinx that concenrs me, I dont think it is the issue given its size but rather the tethered cord which is causing my symptoms. Given all the research my symptoms seem to fit perfectly with a tethered cord.

                  I have since spoken to Craig hospital and they are happy to look at my scans and potentially have a consultation with Dr Falci. Unfortunately Dr Falci's secretary explained that surgery would cost in the region of $300,000 which leaves me trying to find anyone that has had the surgery done in England?

                  Comment


                  • #10
                    let me try again -

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