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    #46
    Originally posted by gjnl View Post
    Posted this on your thread: http:///forum/showthread.php?232015-...ubic-negatives
    I was wondering if there may be some alteration to underwear that you could do like add a slit for the tubing to pass through. If the underwear fits snugly enough you might be able to secure the catheter to the underwear with tape. It wouldn't be ideal, but it may secure the catheter better than using nothing. Sorry, I can't be more specific on how you might do this. I'm more of a concept person, than a designer. ;-)

    All the best,
    GJ
    Thanks! I did see that and typed out a reply... But I guess I didn't submit it, I don't remember what happened. Been a long day. I'm not sure if that would work but I may try it with one of my older crappier pair of underwear lol. Mine are all really stretchy so my concern is a hole stretching out. Even if reinforced, which would be a lot of work to do to every pair of underwear, I think it could just stretch out in the area as soon as the reinforcement ends. Maybe it won't though, can't know for sure without giving it a shot. I am a bit of a seamstress so that helps. My boyfriend was actually making fun of me recently for altering my underwear. I had 2 different kinds of "string" bikinis (6 pairs of each). One has a thick 1 inch wide elastic band around the top, but the underwear was too high in the back. So I removed it from the elastic band, then cut down the fabric and reattached it. The other kind had a very thin elastic band, and were both too low and too tight. A size too small, my bf had bought me the package thinking a size too small would be sexy.... Don't know how he got that idea, flesh pudging up around too tight clothes is not sexy. So I just cut off the sides elastic, and used a 1.5 inch band of soft elastic to make them taller and fit perfectly around me. Now I'm going to try altering underwear for a SPC haha.
    Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

    I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

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      #47
      Okay I see my surgeon on Friday to get my first catheter change, going to probably go up to a 16 fr, but I am constantly pissing my pants, usually only happens at night, but now it happens when I am in my wheelchair like right now I am soaked!! And we just irrigated on Monday, The saline went through easily.

      Don't get it, the past two weeks I've probably pissed myself nine out of 14 days, like every night it's just like fear of waking up covered in the morning. At first it was kind of working good, now this. I can see sediment in the two but it's flowing pretty well, I drink lots of water and take vitamin C, drink cranberry juice organic no sugar. Is it really easy to get infections with this thing too, because I'm getting intense flank pain which is a symptom of mine along with a lot of A.D. when I leak.
      Last edited by JamesMcM; 27 Aug 2014, 7:12 PM.

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        #48
        I don't remember if we have discussed anticholinergics in this thread. But, it sounds like you've been having bladder spasms. Ask your urologist about Oxybutynin or similar drug (Vesicare, Enablex, Sanctura, Toviaz, Detrol, or generic equivalents to help quiet the spasms and reduce leaking.

        Possibly going to the 16Fr will help too.

        Many of us who have suprapubic catheters use Vetericyn. https://www.carecure.net/forum/showt...to-Dr-Young%29

        All the best,
        GJ

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          #49
          Definitely seems like spasms are triggering the leakage, and the size 14fr isn't helping.

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            #50
            Little late to the topic;
            I've had my supra pubic for about 13 years. Was started with a 22fr and it's what I still use today. The site around the tube(stoma) is cleaned morning and night with an alcohol wipe with a little neosporin on it. This works for me and my Urologist has always said my sp looks better than any he's ever seen. I drink plenty of water. In the time I've had my sp, I've never had a UTI. *KNOCKS ON WOOD*

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              #51
              Originally posted by wheelman21 View Post
              Little late to the topic;
              I've had my supra pubic for about 13 years. Was started with a 22fr and it's what I still use today. The site around the tube(stoma) is cleaned morning and night with an alcohol wipe with a little neosporin on it. This works for me and my Urologist has always said my sp looks better than any he's ever seen. I drink plenty of water. In the time I've had my sp, I've never had a UTI. *KNOCKS ON WOOD*
              Congratulations on your success with your suprapubic. When I got the suprapubic, I started out cleaning my stoma with alcohol wipes too, but the skin around the stoma got very irritated and I developed quite a rash. I used Bacitracin to clear up the rash and started to clean the stoma area with Betadine and haven't had any more irritation around the stoma since. Just saying different people can have different reactions and experiences with cleaning methods.

              All the best,
              GJ

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                #52
                Had my SP for a bit more than four years now, started with 22fr, using 18fr now. The only thing that gets to my skin/stoma (wasn't there a commercial with that line?) is sterile saline and some polysporin. Anything else and my skin screams bloody murder, something hospital staff nevere wants to believe. Haven't had any major problems except the rarer UTI, always due to a caregiver not doing something right.
                There's always something magic, there's always something true. And when you really, really need it the most, that's when rock 'n roll dreams come true. Meat Loaf

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                  #53
                  What's the best medication for bladder spasms? One with the least side effects. Thanks

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                    #54
                    A new medication Myrbetriq (http://www.myrbetriq.com/) has been introduced into the US market for treatment of Over Active Bladder ((OAB) with symptoms of urge urinary incontinence, urgency, and urinary frequency. The reviews I have read indicate that there is little or no dry mouth side effects as there are with other anticholinergics.

                    All the best,
                    GJ

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                      #55
                      Anyone know how long it takes for oxybutynin er to take effect? I had my surgery friday and I've basically felt like I've had to pee 24/7 since then. My Dr called it in yesterday but I wasn't able to pick it up, my roommate is getting it for me right now. If I stay in certain positions and don't move its not too bad, but every time I move it gets worse and especially bad when I'm moving around out of bed. I've barely had any pain from the procedure, but the bladder spasms are driving me nuts.
                      Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

                      I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

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                        #56
                        Originally posted by gjnl View Post
                        A new medication Myrbetriq (http://www.myrbetriq.com/) has been introduced into the US market for treatment of Over Active Bladder ((OAB) with symptoms of urge urinary incontinence, urgency, and urinary frequency. The reviews I have read indicate that there is little or no dry mouth side effects as there are with other anticholinergics.

                        All the best,
                        GJ
                        Thanks for the reply. I more concerned about constipation. Especially with my colostomy.

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                          #57
                          Originally posted by HACKNSACK44 View Post
                          Thanks for the reply. I more concerned about constipation. Especially with my colostomy.
                          Here is the full 23 page prescribing circular. Scroll down to page 3 through 5 for side effects. Constipation was a minimal side effect.

                          The major benefit of this new drug, as I see it, is the dry mouth problem. People who need an anticholinergic and can't take one because they cannot tolerate this side effect have a new alternative.

                          All the best,
                          GJ

                          Comment


                            #58
                            Originally posted by gjnl View Post
                            Here is the full 23 page prescribing circular. Scroll down to page 3 through 5 for side effects. Constipation was a minimal side effect.

                            The major benefit of this new drug, as I see it, is the dry mouth problem. People who need an anticholinergic and can't take one because they cannot tolerate this side effect have a new alternative.

                            All the best,

                            GJ
                            Thanks!

                            Comment


                              #59
                              Just read this on the web site. I'll pass.

                              The most common side effects
                              of Myrbetriq include:

                              increased blood pressure
                              common cold symptoms (nasopharyngitis)
                              urinary tract infection
                              headache

                              Comment


                                #60
                                I'm worried about the constipation effect as well. I've had issues with that all my life from slowed motility through my digestive system. Hopefully I will not be on them long term myself... But only until my body gets used to the SPC.
                                Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

                                I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

                                Comment

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