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    Anyone else has this problem?

    My body gets tired of being in the same position really quickly and as a result I get AD ( not severely but I have to go to washroom quickly after). During the day I'm fairly active so overall its okay and I have to do catheter every 3 hours but the problem is the nights. When I go to bed , I have to go to bathroom 1 hour later. Then when I go back to bed I switch position. Again every hour after that my bladder is completely full and I have to get up and do catheter. Its really annoying because I have to get up 5-6 times a night and if I dont because i was tired i leak. Every time I got up during the night I feel that side of my body that i was lying is tired and my legs feels like when my legs goes to sleep back in my able body days. I don't have a bladder infection and I did a urodynamic last month. I know I have a super neurogenic bladder . I started Myrbetriq (mirabegron) 25 miligram a day. It helped during the day a litte but nights are still a disaster.. Any suggestion what to do?

    #2
    When you cath at night how much do you normally get?
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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      #3
      200 mil which is a full bladder for me ( at my urodynamic 170 was when I felt I needed to go). Plus when I wake up im super over heated

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        #4
        Originally posted by Wheelie_girl_ View Post
        200 mil which is a full bladder for me ( at my urodynamic 170 was when I felt I needed to go). Plus when I wake up im super over heated
        Having to cath every 3 hours during the day and 5-6 times at night is too much. As you are experiencing, your quality of life is is greatly impacted by having to cath so often. A good bladder capacity between caths is 400-500ml. You probably need to have a conversation with your urologist about an indwelling urethral catheter or a supra pubic catheter.

        All the best,
        GJ

        Comment


          #5
          Originally posted by gjnl View Post
          Having to cath every 3 hours during the day and 5-6 times at night is too much. As you are experiencing, your quality of life is is greatly impacted by having to cath so often. A good bladder capacity between caths is 400-500ml. You probably need to have a conversation with your urologist about an indwelling urethral catheter or a supra pubic catheter.

          All the best,
          GJ
          I DO have a neurogenic bladder hence the medication..I have talked to my urologist about Botox injections..but I was hoping for any other suggestions

          Comment


            #6
            I think a full bladder at 200ml is a bit low. I would have a discussion with your urologist if there is something you can do to increase the capacity. I have been Post-SCI for 35 yrs now, and over the years i have been able to get my capacity to 600-700ml with no issues. Some things I have noticed and you may want to consider. Some days, my legs for some reason, store a lot of fluid, and after I lay down it seems an hour or so later my bladder is full, after I use the rest room, I am fine and can sleep the rest of the night with no issues. Limit caffeine drinks to the morning. I limit caffeine drinks to the morning and no later that 3pm. Also, I drink more water earlier in the day, and only a 10 oz bottle of water in the evening. I konw it is easier said than done, but get in to a routine on daily liquid intake.

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              #7
              Originally posted by marvin_cr View Post
              I think a full bladder at 200ml is a bit low. I would have a discussion with your urologist if there is something you can do to increase the capacity. I have been Post-SCI for 35 yrs now, and over the years i have been able to get my capacity to 600-700ml with no issues. Some things I have noticed and you may want to consider. Some days, my legs for some reason, store a lot of fluid, and after I lay down it seems an hour or so later my bladder is full, after I use the rest room, I am fine and can sleep the rest of the night with no issues. Limit caffeine drinks to the morning. I limit caffeine drinks to the morning and no later that 3pm. Also, I drink more water earlier in the day, and only a 10 oz bottle of water in the evening. I konw it is easier said than done, but get in to a routine on daily liquid intake.
              May I ask how you increased your bladder capacity? are you taking any medications?

              Comment


                #8
                Do you have spasticity in your bladder? It sounds as though you might, but am just double checking. Do you take any other bladder medications? DO you have a routine for drinking, like marvin suggested?
                When you lay down, your kidneys work better, hence your need to get up more frequently. And has been said, 200 cc is a small bladder. The two together are a disaster for you.
                I would encourage you to speak to your urologist about this. Pretty soon (if you aren't alreay) you will be sleep deprived. In the meantime, I would take a look at your water/fluid intake pattern and see if you can readjust it some to have more of it in the morning and afternoon and decrease it dramatically in the evening. Also staying away from caffeinated beverages may help.
                CKF
                The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                Comment


                  #9
                  Originally posted by SCI-Nurse View Post
                  Do you have spasticity in your bladder? It sounds as though you might, but am just double checking. Do you take any other bladder medications? DO you have a routine for drinking, like marvin suggested?
                  When you lay down, your kidneys work better, hence your need to get up more frequently. And has been said, 200 cc is a small bladder. The two together are a disaster for you.
                  I would encourage you to speak to your urologist about this. Pretty soon (if you aren't alreay) you will be sleep deprived. In the meantime, I would take a look at your water/fluid intake pattern and see if you can readjust it some to have more of it in the morning and afternoon and decrease it dramatically in the evening. Also staying away from caffeinated beverages may help.
                  CKF
                  Yes VERY VERY spastic bladder. He prescribed medications but still not much of a difference. I don't know what my bladder capacity is but I know between 200-250 is when i leak

                  Comment


                    #10
                    Originally posted by Wheelie_girl_ View Post
                    Yes VERY VERY spastic bladder. He prescribed medications but still not much of a difference. I don't know what my bladder capacity is but I know between 200-250 is when i leak
                    There are other options to indwelling catheters, but they are major surgeries with a good deal of recovery time. That said, many people find these procedure to be life changers when small bladder capacity and very spastic bladders cause frequent catheterizations. These procedures are Mitrofanoff and Ileovesicostomy. You can search Care Cure or more information about these procedures.

                    All the best,
                    GJ

                    Comment


                      #11
                      I tried myrbetriq a few months ago and it was terrible for me. I honestly think it was worse than no medication at all. I was leaking with no warning in about an hour and with only about 100 to 200 ml. I can usually hold about 350-400ml. I went back to Vesicare.

                      You might consider using a foley at night so you can sleep. I also make a lot of urine as soon as I lay down so I put a foley in every night. Kind of a hassle and they aren't cheap but I think it's worth it to sleep all night.

                      Comment


                        #12
                        Originally posted by STOLhorse View Post
                        I tried myrbetriq a few months ago and it was terrible for me. I honestly think it was worse than no medication at all. I was leaking with no warning in about an hour and with only about 100 to 200 ml. I can usually hold about 350-400ml. I went back to Vesicare.

                        You might consider using a foley at night so you can sleep. I also make a lot of urine as soon as I lay down so I put a foley in every night. Kind of a hassle and they aren't cheap but I think it's worth it to sleep all night.
                        You may have a point, but cathing every 3 hours during the day is a real life style killer too. Been there with too many caths at night and too many during the day.

                        All the best,
                        GJ

                        Comment


                          #13
                          Normal for an AB woman is between 300 and 450. Remember most SCIs are still men and their levels are higher. I'd start by changing when you drink and make an appointment to try a different anticholeragenic drug. I would ask for the original short term oxybutynin chloride because several other newer drugs are based on it. I believe most start on 5 mg 3 to 4 times a day. If that works then ask about the extended working types like Ditropan XL as the long acting versions cut way back on the side effects such as dry mouth and constipation. You might want to lay down or raise your legs up for 45 minutes or so in the afternoon so your leg s give up some of that excess fluid before bedtime too.
                          Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

                          Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

                          Comment


                            #14
                            Good suggestions, Sue.
                            CKF
                            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                            Comment


                              #15
                              I take Oxybutynin 4 times a day and Sanctuary twice a day. I have major problems with wetting during the day. I have to cath at least 4 to 5 times a day and usually only once at night. When I travel or plan to be away from the house for more than 4 hours I use a Foley catheter. I have been in the wheelchair for 31 years and the older I get it seems the more I have to cath.

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