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    In hospital with pneumonia

    I never thought I could f feel so bad. I am currently on vancomycin and cefzim. I had my pneumonia vvaccine but they Said that wouldn't prevent this type of pneumonia. I'm a T3 so it's hard for me to cough up the stuff. There's a big pocket down in my left lung.

    Since I left rehab I have been sick with one thing after the other. I do everything to be healthy and was healthy before SCI.

    Should I see Infectious disease?

    Please pray that I get well and stay well.

    Jason

    #2
    You should be evaluated for swallowing problems (dysphagia) if they think you may have an aspiration pneumonia. In addition, poor oral care is a risk factor for non-ventilator associated pneumonia. Have you been brushing your teeth at least 3X daily? Did you also have a flu shot? Are you smoking?

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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      #3
      Hi Jason,
      Sorry to hear you're in the hospital. Pneumonia is nothing to mess with as I recently learned. My 16 year old son had/has it and it's been 3 weeks since he was diagnosed. Hopefully they can thin up the mucus enough so you can some how cough it up. I know you said you can't cough though. Can they suction it out somehow?
      I can't give any advice about seeing a specialist but it seems to make sense to me. Maybe they have some ideas on how to help you maintain a healthy immune system.
      Get well soon.

      Comment


        #4
        I'm sorry to hear this. You have had one thing after another! I hope it gets better soon ... best get sorted while in hospital.
        Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

        T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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          #5
          I hope things go better. As usual, I don't have any actual useful advice, just can offer commiseration. Coincidentally I am also technically T3 but only incomplete at that level, no lung function impairment.

          When I am in hospitals, the only thing that keeps me kind of sane is an iPad (with cellular if the wifi isn't good). Catch up on your Netflix, basically. And try to get a private room, although I almost never succeed in this. Also, it's important to get out of bed as soon as possible, otherwise it can take a while to get strength back.

          Hopefully your hospital was not like mine though!

          That said, as long as you are in the hospital, it makes sense to see specialists and have tests there, so definitely an infectious disease specialist seems advisable, particularly given the UTIs you mentioned in the other thread the other day.

          Speaking of which, like yours, my doctor also recommended preventive low-dose Bactrim after I had too many UTIs. He said that Hiprex did not do well in studies. On the other hand, my doctor also believes in only 7-day antibiotic courses.

          Comment


            #6
            Originally posted by jbridges9 View Post
            Should I see Infectious disease?
            One of my consulting docs is an infectious disease's specialist. Tracks my antibiotic use to prevent resistant bugs!

            I had pneumonia once and that was once too many! Barely able to breath for 3 or 4 days.

            Originally posted by jbridges9 View Post
            Please pray that I get well and stay well.

            Jason
            Will keep you in my thoughts, just get better!

            Comment


              #7
              I hope you feel better soon.
              T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

              My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

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                #8
                Best wishes for a quick recovery!
                2012 SCINetUSA Clinical Trial Support Squad Member
                Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature.

                Comment


                  #9
                  Keep fighting

                  Comment


                    #10
                    Originally posted by xsfxsf View Post
                    I hope things go better. As usual, I don't have any actual useful advice, just can offer commiseration. Coincidentally I am also technically T3 but only incomplete at that level, no lung function impairment.

                    When I am in hospitals, the only thing that keeps me kind of sane is an iPad (with cellular if the wifi isn't good). Catch up on your Netflix, basically. And try to get a private room, although I almost never succeed in this. Also, it's important to get out of bed as soon as possible, otherwise it can take a while to get strength back.

                    Hopefully your hospital was not like mine though!

                    That said, as long as you are in the hospital, it makes sense to see specialists and have tests there, so definitely an infectious disease specialist seems advisable, particularly given the UTIs you mentioned in the other thread the other day.

                    Speaking of which, like yours, my doctor also recommended preventive low-dose Bactrim after I had too many UTIs. He said that Hiprex did not do well in studies. On the other hand, my doctor also believes in only 7-day antibiotic courses.
                    Can you PM me about the UTI stuff?

                    Comment


                      #11
                      Originally posted by darkeyed_daisy View Post
                      I hope you feel better soon.
                      Finally feel better enough this evening to actually use the computer. Last night and this morning I thought I was on my way to ICU I felt so bad.

                      Thanks Tonja.

                      Comment


                        #12
                        Originally posted by SCI-Nurse View Post
                        You should be evaluated for swallowing problems (dysphagia) if they think you may have an aspiration pneumonia. In addition, poor oral care is a risk factor for non-ventilator associated pneumonia. Have you been brushing your teeth at least 3X daily? Did you also have a flu shot? Are you smoking?

                        (KLD)
                        I will ask the IMS doctor tomorrow if I have aspiration pneumonia or what type of pneumonia I have, if not him then the pulmonologist will visit tomorrow and he will know what type for sure.

                        I have not been brushing my teeth 3X/day, I usually brush every couple days. Gross, I know. If I'm going out, I'll just use mouthwash. Could the teeth brushing be a contributing factor to pneumonia, and any other infections that I've had over the past 8 months? C. Diff (which I know now was related to not taking a probiotic and taking lots of antibiotics), Cellulitis, lots of UTIs (which I know now some of the reasons why I've been getting these -- holding urine in my bladder too long, holding too much urine in my bladder, and having high pressure bladder)

                        I did have a flu shot around the same time as the pneumonia shot, the GP recommended I get both due to the SCI. I do not smoke.

                        Thanks, KLD!

                        Comment


                          #13
                          I had a nasty bout last October. It was a type related to the Legionnaires disease which the pneumonia vaccine does not protect against. I was never pumped so full of antibiotics as I was then. I had to be suctioned a few times. But I did survive and had pretty much returned to normal after about a month. As other have said, that was my first and and I hope last bout. Pure hell. I hope you have a quick recovery.
                          You will find a guide to preserving shoulder function @
                          http://www.rstce.pitt.edu/RSTCE_Reso...imb_Injury.pdf

                          See my personal webpage @
                          http://cccforum55.freehostia.com/

                          Comment


                            #14
                            Yes, poor oral hygiene has been associated with acquired pneumonia, esp. in those who are at risk for aspiration. In the hospital, it is now routine for patients on ventilators, with trachs, and with other known aspiration risks to have oral care done every 4 hours using an oral antiseptic (either H202 or CHX), with teeth brushing done at least 2X daily, and the antiseptic swabbed inside the mouth at the other 4 times daily. This has decreased HAP (hospital acquired pneumonia) significantly when done as a regular routine.

                            (KLD)
                            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                            Comment


                              #15
                              Originally posted by SCI-Nurse View Post
                              Yes, poor oral hygiene has been associated with acquired pneumonia, esp. in those who are at risk for aspiration. In the hospital, it is now routine for patients on ventilators, with trachs, and with other known aspiration risks to have oral care done every 4 hours using an oral antiseptic (either H202 or CHX), with teeth brushing done at least 2X daily, and the antiseptic swabbed inside the mouth at the other 4 times daily. This has decreased HAP (hospital acquired pneumonia) significantly when done as a regular routine.

                              (KLD)
                              Really sorry to hear that you have had another complication. Wish you could catch a break here and have a good run for at least a few months.

                              I know it sounds tempting to go on prophylactic antibiotics to help prevent urinary tract infections, but the risks are great that you can/will develop antibiotic resistant bacteria, and then where would you be, with only limited antibiotics available to treat infections.

                              Any time you develop urinary tract infections, one right after another, it is a good idea to call in an infectious disease doctor. You have got to be careful, now that you are in the hospital, that you don't get slammed with a hospital acquired infection. I have read a resent study about the best way to try to avoid the hospital acquired infections like MRSA, Methicillin-resistant Staphylococcus aureus. Bathe daily, wash hands often, and swab the nose, daily, with Neosporin ointment.

                              Take care and get out of the hospital, ASAP.

                              All the best,
                              GJ

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