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  • UTI and severe back pain

    about two weeks ago I started having burning my bladder and then started getting severe cramps around the suprapubic site, so I took a sample in to have tested, last Wednesday, and the doctor put me on 2 antibiotics Augmentin and I forgot the other one just to get it started until the culture came back. I called back on Friday to see what the results were and the nurse told me that it was clear. The severe cramping and stopped on Thursday, when I went to see the doctor, I told him that when I have cramping like that it's most likely Pseudomonas. He looked at me funny and asked me "you can actually tell the difference of what kind of bug that you have by how it feels?" And I responded "Yes I can" I have been through this before. Well I get a call back yesterday from the doctor saying my results came in showing I have Pseudomonas! He put me on tetracycline but now I'm having severe like Charlie horses in my low back sacrum area, I would go to the ER, but I don't want to have to sit there for eight hours get pumped full of drugs and send back home to deal with the same situation. My doctor doesn't have hospital privileges anymore, my physiatrist at Baylor won't see me anymore because the had to cancel and reschedule three appointments in a row so I don't have one anymore!

    Does anybody know a good physiatrist in the DFW, Texas area? I'm having a lot of health issues with a chronic wound on my ass that would heal up and then come back Stage I-II. I use a high profile Rojo Quattro and it is adjusted correctly. I have been pressure map and everything shows great. I'm also developing scoliosis, so I'm not sitting correctly in my chair. I'm having a problem keeping weight on. I'm down to about 125 pounds at 6'4 " I'm just skin and bones now. I'm eating everything in sight taking in proteins boost drinks, steaks, chicken,etc. I'm just really scared about getting really worse.
    Last edited by crppled007; 04-10-2013, 06:20 PM.
    C4 incomplete since 1985

  • #2
    Low back or sacrum pain is too low for kidney pain. Kidney pain usually occurs just below the ribs on the back, but depending on your level on injury and perception of pain, this could be kidney pain. Pain in the area of the kidneys (often known as flank pain) is often a symptom of urinary tract infection, along with fever, autonomic dysreflexia, pus in the urine, blood in the urine, urine with an odor.

    Was the urine tested with a culture and sensitivity lab test? Was tetracycline identified as the most effective antibiotic for Psuedomonas (was it aeruginosa?)?

    I have had a few Psuedomonas infections in 30+ years and tetracycline has never been on the sensitivity list. Oral Ciprofloxacin and Levofloxacin and intravenous Gentamicin have been the most commonly recommended antibiotics for this bacteria.

    All the best,
    GJ
    Last edited by gjnl; 04-10-2013, 06:40 PM.

    Comment


    • #3
      Originally posted by gjnl View Post
      Low back or sacrum pain is too low for kidney pain. Kidney pain usually occurs just below the ribs on the back, but depending on your level on injury and perception of pain, this could be kidney pain. Pain in the area of the kidneys (often known as flank pain) is often a symptom of urinary tract infection, along with fever, autonomic dysreflexia, pus in the urine, blood in the urine, urine with an odor.

      Was the urine tested with a culture and sensitivity lab test? Was tetracycline identified as the most effective antibiotic for Psuedomonas (was it aeruginosa?)?
      Yes, it was done with the culture and sensitivity and it was the aeruginosa. Yes tetracycline was identified as the most effective antibiotic.

      I have had a few Psuedomonas infections in 30+ years and tetracycline has never been on the sensitivity list. Oral Ciprofloxacin and Levofloxacin and intravenous Gentamicin have been the most commonly recommended antibiotics for this bacteria.

      All the best,
      GJ
      Levofloxacin where's the other script that he wrote. I have had pseudomonas before and had to have a PIC line with the six weeks antibiotic treatment. Yes, the pain is on the flank left side from my kidney down to my tailbone. Feels like a knife and a constant Charlie horse, I've been injured for 27 years and never had that instance of pain like this before
      C4 incomplete since 1985

      Comment


      • #4
        Are you supposed to take both antibiotics? First tetracycline, then levofloxacin, or concurrently?

        If the pain persists, talk to the physician who prescribed the antibiotics.

        All the best,
        GJ

        Comment


        • #5
          I'm supposed to take all three at the same time, I was about to call the doctor because the pain in my kidneys and bladder. I feel that it is a kidney infection, if it's not better by tomorrow I'm going to have to go to the hospital because last couple of times I've read this I had to get the PIC line, which that really SUCKED! I'm just taken my diazepam and pain pills and some other stuff to keep me relaxed and calm and just try to sleep
          C4 incomplete since 1985

          Comment


          • #6
            Originally posted by crppled007 View Post
            I'm supposed to take all three at the same time, I was about to call the doctor because the pain in my kidneys and bladder. I feel that it is a kidney infection, if it's not better by tomorrow I'm going to have to go to the hospital because last couple of times I've read this I had to get the PIC line, which that really SUCKED! I'm just taken my diazepam and pain pills and some other stuff to keep me relaxed and calm and just try to sleep
            I don't know where you live or what insurance coverage you have, but I have IV antibiotics and did not have to stay in he hospital to have them administered. My infectious disease doctor had me use elastomeric pumps at home that could be attached to the PICC (peripherally inserted central catheter) line as prescribed. See attached picture.

            Hope you start feeling better very soon.

            All the best,
            GJ

            Comment


            • #7
              oh yes I have done that about three times before with the same kind of infection, so I'm no stranger to that. but the pain is just beyond my control now and I'm going to the hospital tonight. On a 1 to 10 scale, about an eight and I have a good pain tolerance. However, OMG!!
              C4 incomplete since 1985

              Comment


              • #8
                Originally posted by crppled007 View Post
                about two weeks ago I started having burning my bladder and then started getting severe cramps around the suprapubic site, so I took a sample in to have tested, last Wednesday, and the doctor put me on 2 antibiotics Augmentin and I forgot the other one just to get it started until the culture came back. I called back on Friday to see what the results were and the nurse told me that it was clear. The severe cramping and stopped on Thursday, when I went to see the doctor, I told him that when I have cramping like that it's most likely Pseudomonas. He looked at me funny and asked me "you can actually tell the difference of what kind of bug that you have by how it feels?" And I responded "Yes I can" I have been through this before. Well I get a call back yesterday from the doctor saying my results came in showing I have Pseudomonas! He put me on tetracycline but now I'm having severe like Charlie horses in my low back sacrum area, I would go to the ER, but I don't want to have to sit there for eight hours get pumped full of drugs and send back home to deal with the same situation. My doctor doesn't have hospital privileges anymore, my physiatrist at Baylor won't see me anymore because the had to cancel and reschedule three appointments in a row so I don't have one anymore!

                Does anybody know a good physiatrist in the DFW, Texas area? I'm having a lot of health issues with a chronic wound on my ass that would heal up and then come back Stage I-II. I use a high profile Rojo Quattro and it is adjusted correctly. I have been pressure map and everything shows great. I'm also developing scoliosis, so I'm not sitting correctly in my chair. I'm having a problem keeping weight on. I'm down to about 125 pounds at 6'4 " I'm just skin and bones now. I'm eating everything in sight taking in proteins boost drinks, steaks, chicken,etc. I'm just really scared about getting really worse.
                In all my years of being treating for chronic UTI's...I have never had one put me on two antibiotics at the same time without a positive culture.

                I have always been given Cipro, Levaquin, or most commonly macrodantin until the culture comes back.

                I feel your doctor is prescribing antibiotics sort of a bit reckless without waiting on the culture to come back.

                The only time I ever took multiple antibiotics was when I had osteomylitis. If you got the culture back and the bacteria can be treated with one antibiotic...I don't see the need to take the other two.

                With a pressure wound, your pain may be more than just a UTI.

                There is real fear in developing a resistance to antibiotics taking them like your doctor seems to be prescribing.

                How long has this person been your doctor? It would concern me if he did not have admitting privileges at a hospital. But I realize in a huge city with multiple hospitals, the doctor may not be able to be at every hospital.

                I am glad to read you are going on to the hospital.
                T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

                My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

                Comment


                • #9
                  Originally posted by darkeyed_daisy View Post
                  In all my years of being treating for chronic UTI's...I have never had one put me on two antibiotics at the same time without a positive culture. If you read post #6 on this thread, the original poster states he is "supposed to take all three at the same time." I am unclear as to the three antibiotics he is supposed to take.

                  I have always been given Cipro, Levaquin, or most commonly macrodantin until the culture comes back.

                  I feel your doctor is prescribing antibiotics sort of a bit reckless without waiting on the culture to come back.The original poster states, "Yes, it was done with the culture and sensitivity and it was the aeruginosa. Yes tetracycline was identified as the most effective antibiotic."

                  The only time I ever took multiple antibiotics was when I had osteomylitis. If you got the culture back and the bacteria can be treated with one antibiotic...I don't see the need to take the other two.

                  With a pressure wound, your pain may be more than just a UTI.

                  There is real fear in developing a resistance to antibiotics taking them like your doctor seems to be prescribing.

                  How long has this person been your doctor? It would concern me if he did not have admitting privileges at a hospital. But I realize in a huge city with multiple hospitals, the doctor may not be able to be at every hospital.

                  I am glad to read you are going on to the hospital.
                  I hope "crppled007" gets some things sorted out at the hospital.

                  All the best,
                  GJ

                  Comment


                  • #10
                    If you cannot tolerate tetracycline and there are no other oral antibiotics that are sensitive to the pseudomonas bacteria in the culture and sensitivity then it's time to see a urologist for a work-up and a probably consultation to infectious disease. You may need IV antibiotics. Get your current doctor to refer you to infectious disease or urologist.

                    I also recommend lactobacillus to take with antibiotics to keep the GI flora on the interior of your intestines in balance.

                    pbr
                    Last edited by SCI-Nurse; 04-11-2013, 11:41 PM. Reason: added more info
                    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                    Comment


                    • #11
                      Originally posted by gjnl View Post
                      I hope "crppled007" gets some things sorted out at the hospital.

                      All the best,
                      GJ
                      If you had informed me that I needed your permission to post...I would have asked.

                      Blue is a nice color though.

                      I will repeat the point I was trying to make: two separate antibiotics (levafloxacin and Augmentin) prior to a culture is something I have never done and would not do if it were me. He didn't get the third (tetraclycline) until after the culture. If the pseudomonas is sensitive to the tetraclycline then why continue the other two? Is there a purpose to your nitpicking my response to the OP? He has had Pseudomonas in the past (as he stated) and he could well be colonized with Pseudomonas which is why I brought up that his pain and issues could be related to his wound.

                      Pseudomonas does happen to be considered a drug resistant bacteria so maybe that is why the doctor chose to treat with three very strong antibiotics. Pseudomonas is also considered an opportunistic bacteria in people with compromised immune systems. After googling, I see that one of the strategies for physicians to combat this resistance to antibiotics is to prescribe strong combinations of antibiotics like fluoroquinolone, gentamicin and imipenem.
                      T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

                      My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

                      Comment


                      • #12
                        Have you been checked for kidney stones?

                        Right now I have Pseudomonas in my bladder with a +100,000 count. I also have abdominal and back, let's call it... pressure, because it really doesn't hurt that much. My primary care doctor wanted me to be on Gentamicin, but my infectious disease doctor does not want to treat it unless I get a fever, chills, nausea, those type of symptoms. He's also very negative concerning Gentamicin because of all the side effects. He said there are plenty of other medications that are better than that with less potential problems.

                        Throughout the years I've had my share of battles with Pseudomonas and have used several different IV antibiotics to treat it. My infectious disease doctor is concerned that if we're treating when it's not really necessary, then at some point none of the medications will work with me. Since that is his field, and he has always "fixed" me, though I'm a bit reluctant, I'm going to trust him.

                        Since you have a suprapubic you should be drinking a LOT of water! I drink at least a gallon a day. My urine is clear and has no odor, however the bacteria count is high. I'm assuming that means my white blood cell count is not that high. I should've asked him.

                        I hope you've gotten some answers and some relief!

                        Best wishes!
                        2010 SCINet Clinical Trial Support Squad Member
                        Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature.

                        Comment


                        • #13
                          Update:

                          well, went to the emergency room in the ER doctor really didn't do anything but give me some pain meds and run a CAT scan on my bladder and found that I have another stone! I had one about the size of a nickel taken out back in September. The ER doctor looked at the results that I had taken the and with me from a sample and said that the tetracycline was working. I asked her about taking all three at the same time. Then she said that was good. So basically I just got some pain meds and got sent back home! That's last time I go to that emergency room, which is a brand-new hospital. I have been there before with no problem, my wife at her hysterectomy. There and it was a good hospital.

                          So I got a hold of my urologist over Baylor (which is about 45 min. away) and got an appointment with him for Monday morning. I'm going to have all my records from the hospital faxed over to him and I'm sure he'll get me in the hospital over Baylor, where they know how to work with quadriplegics. I didn't want to have to go to Baylor and then just gets him back home. I was really quite amazed how she didn't understand why I was there if the medications were working. I know my urologists will get me in to take care of the stone and that would give me an excuse to get into Baylor Rehab so I can get a tuneup for therapy and get my seating correct.

                          When I have my flap surgery over a Baylor, I love BIR. All the doctors are excellent, the therapists are excellent, the only ones I had a problem with where the transporters being in such a rush. They pulled out my catheter on the first day transferring me from the bed to a gurney after I told them to watch out for the catheter. And then after my surgery when they were transferring me from the bed. Back to the gurney to take me to back to BIR, they managed to pull out the drain tube and the surgeon came in about four hours later that do a checkup to see how is doing, and freaked out when he saw the drain tube laying on the side. So around midnight all the head doctors and head nurses were there to have to put the drain tube back in with the surgeon, which they had to give me pain meds after the fact that! They only had one stitch kit that they could find for the whole rehab on four floors, which was corrected the next day. I told him that I could sue them. But all I really wanted was not to see a bill, and I never did.

                          The pain does seem to be a little better today this afternoon, number letter does seem to be settling down, but I know it still needs to be addressed. Thanks everyone for their lives. Sorry about the long rant but just a little bit of venting
                          C4 incomplete since 1985

                          Comment


                          • #14
                            Originally posted by darkeyed_daisy View Post
                            If you had informed me that I needed your permission to post...I would have asked.

                            Blue is a nice color though.

                            I will repeat the point I was trying to make: two separate antibiotics (levafloxacin and Augmentin) prior to a culture is something I have never done and would not do if it were me. He didn't get the third (tetraclycline) until after the culture. If the pseudomonas is sensitive to the tetraclycline then why continue the other two? Is there a purpose to your nitpicking my response to the OP? He has had Pseudomonas in the past (as he stated) and he could well be colonized with Pseudomonas which is why I brought up that his pain and issues could be related to his wound.

                            Pseudomonas does happen to be considered a drug resistant bacteria so maybe that is why the doctor chose to treat with three very strong antibiotics. Pseudomonas is also considered an opportunistic bacteria in people with compromised immune systems. After googling, I see that one of the strategies for physicians to combat this resistance to antibiotics is to prescribe strong combinations of antibiotics like fluoroquinolone, gentamicin and imipenem.
                            Whoa! It was not my intention to nitpick your response. I'm really sorry you misinterpreted my remarks.

                            First:
                            You: In all my years of being treating for chronic UTI's...I have never had one put me on two antibiotics at the same time without a positive culture.
                            Me: If you read post #6 on this thread, the original poster states he is "supposed to take all three at the same time." I am unclear as to the three antibiotics he is supposed to take.

                            In this instance it was only my intention to refer to a comment by the original poster that I was unclear about. I was not disagreeing with you. To the contrary, I have never even been on two antibiotics at the same time let alone three and I was puzzled the need for so many, when sensitivity can vary so widely.

                            Second:
                            You: I feel your doctor is prescribing antibiotics sort of a bit reckless without waiting on the culture to come back.
                            Me: The original poster states, "Yes, it was done with the culture and sensitivity and it was the aeruginosa. Yes tetracycline was identified as the most effective antibiotic."

                            Because I was unclear about when the various antibiotics were prescribed, I too felt that maybe the antibiotics were prescribed before the culture and sensitivity results were final. That is why I asked the original poster the question. Of course, it isn't uncommon for an intermediate antibiotic to be prescribed to help relieve symptoms until final results are in. I have a long standing agreement with my urologist to start Macrobid when I have urinary tract infection symptoms only after I have taken a specimen to the lab. The Macrobid knocks the symptoms down enough that I can survive. If I had to wait for 3-4 days to get final culture and sensitivity, I would be dead or in the hospital because I suffer from extreme autonomia as a primary symptom of a urinary tract infection.

                            Sorry for the misunderstanding. I didn't mean this as a personal attack.

                            All the best,
                            GJ

                            Comment


                            • #15
                              Originally posted by crppled007 View Post
                              Update:

                              well, went to the emergency room in the ER doctor really didn't do anything but give me some pain meds and run a CAT scan on my bladder and found that I have another stone! I had one about the size of a nickel taken out back in September. The ER doctor looked at the results that I had taken the and with me from a sample and said that the tetracycline was working. I asked her about taking all three at the same time. Then she said that was good. So basically I just got some pain meds and got sent back home! That's last time I go to that emergency room, which is a brand-new hospital. I have been there before with no problem, my wife at her hysterectomy. There and it was a good hospital.

                              So I got a hold of my urologist over Baylor (which is about 45 min. away) and got an appointment with him for Monday morning. I'm going to have all my records from the hospital faxed over to him and I'm sure he'll get me in the hospital over Baylor, where they know how to work with quadriplegics. I didn't want to have to go to Baylor and then just gets him back home. I was really quite amazed how she didn't understand why I was there if the medications were working. I know my urologists will get me in to take care of the stone and that would give me an excuse to get into Baylor Rehab so I can get a tuneup for therapy and get my seating correct.

                              When I have my flap surgery over a Baylor, I love BIR. All the doctors are excellent, the therapists are excellent, the only ones I had a problem with where the transporters being in such a rush. They pulled out my catheter on the first day transferring me from the bed to a gurney after I told them to watch out for the catheter. And then after my surgery when they were transferring me from the bed. Back to the gurney to take me to back to BIR, they managed to pull out the drain tube and the surgeon came in about four hours later that do a checkup to see how is doing, and freaked out when he saw the drain tube laying on the side. So around midnight all the head doctors and head nurses were there to have to put the drain tube back in with the surgeon, which they had to give me pain meds after the fact that! They only had one stitch kit that they could find for the whole rehab on four floors, which was corrected the next day. I told him that I could sue them. But all I really wanted was not to see a bill, and I never did.

                              The pain does seem to be a little better today this afternoon, number letter does seem to be settling down, but I know it still needs to be addressed. Thanks everyone for their lives. Sorry about the long rant but just a little bit of venting
                              Too bad about developing another kidney stone so soon after having one removed in September. Did you suffer flank pain with that stone? Hope things get squared away for you at Baylor.

                              All the best,
                              GJ

                              Comment

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