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    pressure sore stories?

    I've been a quadriplegic since 1973.it was not until about a year ago that I experienced my first pressure sore. I've never really realized how blessed I am2 of gone so many years without a major problem. This time I guess I hit the jackpot! I have a small pressure sore located in the crease of my thigh. At its deepest, it was 2 centimeters and about a pencil eraser in width. I've been in bed for about 4 months and it still has to heal another centimeters. I understand this will now be a problematic area for me.I'd like to hear what other people do to avoid future problems.does everyone have recurring sores after they're healing?please tell me your stories. Especially the good ones. Thanks!

    #2
    What cushion do you use?

    Have you had your seating pressure mapped?

    All the best,
    GJ

    Comment


      #3
      I had a pressure sore on my isch. It was a surface wound that I was treating on my own (dumb) for several months. It didn't look deep and I continued to sit on it for 14-16 hours a day. I started running a fever and then a light bulb went off that I was a moron. I went to the wound care clinic and they admitted me to the hospital asap because the wound tunned about 4cm. The did a debris surgery, put a wound vac on and sent me home with home health care a few days later (August 2010). By December it still wasnt healed so we did the flap surgery (January 2011). I was on bed rest for 8 weeks in a clintron bed. I slowly started sitting up and have never had a problem since (knock on wood). My scar is about 4 inches long. Here are some things I do to avoid going through that nightmare again.

      Replaced all toilet seats with cushioned seats

      Remodeled my shower to a roll in and installed a fold down padded shower bench seat

      Added a memory foam mattress topper to my bed and a layer of medical grad sheep skin to sleep on at night. I do not sleep with clothes on because I don't want anything restricting my skin while I sleep.

      I put sween cream on my butt and legs a few times a week

      Get off my butt a couple of times a day when possible

      LOTS of pressure releases

      Drive with sheep skin in my car seat

      Take a travel toilet seat cushion to sit on at hotels or friends houses

      INSPECT my butt with a hand mirror every night when I get in bed. I also rub my hand all over my scar and surrounding area to ensure that everything feels right.

      Eat over 100 grams of protein everyday

      Take Vitamin D, C, and calcium

      Drink lots of water

      Smooth transfers to avoid shearing

      Carefully pick my clothing so that I'm not sitting on seams, buttons or anything else that would hurt my skin.

      MORE PRESSURE RELEASES, INSPECT YOUR SKIN EVERY DAY, BE AWARE OF WHAT YOUR SITTING ON AND DO SMOOTH TRANSFERS!

      Good luck to you getting this healed up soon. Pressure sores are such a life changer. I'm sorry you're going through this.
      DFW TEXAS- T-10 since March 20th, 1994

      Comment


        #4
        Oh yes, Have a seating specialist do a pressure mapping for you so you can ensure you're on the right cushion.
        DFW TEXAS- T-10 since March 20th, 1994

        Comment


          #5
          I got my first pressure sore one year post injury. A PT put me on an uncovered roho and sat my heavy gel cushion on my lap for the ride home. Saw here because I had red spot. Got worse. 3 VNA nurses were putting sauve in it and covering with a dressing.

          I later learned at UW that it was tunneling. Then I spent 8 months in bed trying to heal it. Then came the failed flap surgery.

          I finally healed it myself.... 17 years ago. Another area plagued me in the last few years. Tried everything.

          NO PRESSURE IS KEY.... and...
          I swear by the following 2 products. I put wound honey on a ischial sore and puracyn on top of it. Puracyn is amazing stuff. Finally healed fast after messing with it for months. I cover with a nonstick polymem foam dressing.. they aren't cheap but work for me. insurance covered the dressings.

          http://www.amazon.com/Eras-Natural-S...&tag=000md1-20


          http://www.amazon.com/Puracyn-Wound-...&tag=000md1-20

          watch youtube videos on microcyn.. same stuff as puracyn. GOOD LUCK.

          http://www.youtube.com/watch?v=sAiWWNCfYH4

          experience - 18 years of dealing with sores. Read the reviews on amazon. Puracyn is amazing. Its interesting that both are pretty natural products. The body can heal itself.
          www.myquadriplegia.com

          Comment


            #6
            I second the Puracyn (Microcyn) recommendation. That stuff is da bomb when it comes to wound healing. Soak a telfa pad with it, place on wound, tape in place, change twice a day with ZERO pressure on it, I mean zero, nada, zilch. Then expect miraculous healing.
            Wife of Chad (C4/5 since 1988), mom of a great teenager

            Comment


              #7
              Silver Sulfadiazine works great also
              Last edited by Roller For Life; 25 Feb 2013, 10:33 PM.

              Comment


                #8
                Just finished healing a stage 2 sore on my IT. Used a tegaderm hydrocolloid thin. Stayed off it for the majority of the day. Only getting up to eat and use the washroom. I use glutamine for post workout recovery and found out that it is used to heal burn patients so increased my intake of that. Also read that glutamine combined with l-arginine was shown to increase healing so I tried it. Can't say for sure but it seemed to have an effect. Took 4 weeks to completely heal.

                Comment


                  #9
                  Get checked for osteo. A non-healing wound that has a lot of wound exudate is a sure sign.
                  Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                  T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

                  Comment


                    #10
                    Weight shifts? pressure relief EVERY 15 minutes or sooner- no matter what!!!!
                    No matter what cushion- even the best- thas needs to be done to PREVENT breakdown. As well as high protein diet with vitamins , drinking enough water etc...
                    CWO
                    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                    Comment


                      #11
                      CWO moderator

                      okay, I have another question. What kind of protein maintenance diet is sufficient to keep that pressure sore from coming back? Also, how does a quadriplegic relieve the pressure every 15 minutes or less? Thanks! :-) :-)

                      Comment


                        #12
                        offroaderswife,

                        That is a great list of recommendations! Thanks for sharing it.

                        Comment


                          #13
                          He tilts his chair back or leans forward or does whatever to relieve the pressure or shift the pressure
                          CWO
                          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                          Comment


                            #14
                            Originally posted by Mary-Jane View Post
                            okay, I have another question. What kind of protein maintenance diet is sufficient to keep that pressure sore from coming back? Also, how does a quadriplegic relieve the pressure every 15 minutes or less? Thanks! :-) :-)
                            I eat the following foods for protein and nutrition.

                            Eggs
                            Lean meat
                            Cheese
                            Protein shakes
                            Lots of fruit and veggies
                            Yogurt
                            Protein supplements (taste nasty but its like drinking a shot)
                            Nuts
                            Protein bars
                            Vitamin supplements
                            DFW TEXAS- T-10 since March 20th, 1994

                            Comment


                              #15
                              Originally posted by offroaderswife View Post
                              I eat the following foods for protein and nutrition.

                              Eggs
                              Lean meat
                              Cheese
                              Protein shakes
                              Lots of fruit and veggies
                              Yogurt
                              Protein supplements (taste nasty but its like drinking a shot)
                              Nuts
                              Protein bars
                              Vitamin supplements
                              drink muscle milk with water and ice cubes taste like a milk shake i get my cocolate fix to
                              4 sc 600 cal 40g of protein

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