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Colostomy Questions For a Quad

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    #46
    Originally posted by peegy p View Post
    I believe most if not all stomas are below the waistline [belly-button]. I would think because of gravity. Some colostomy bags make noises when they are filling up. Your pants tend to muffle this nosie. Pants will also protect the appliance from being accidentally pulled on. If the adhesive begins to loosen from your skin than you are setting yourself up for leakage.
    Thanks Peegy for the insight! I tried a bag on to see the positioning of it, and when it is below my waist it folds at a 90 degree angle against my leg. As a beg fold maybe this won't be an issue. The placement definitely seems crucial to me.

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      #47
      Originally posted by Big Sky 50 View Post
      Thanks Peegy for the insight! I tried a bag on to see the positioning of it, and when it is below my waist it folds at a 90 degree angle against my leg. As a beg fold maybe this won't be an issue. The placement definitely seems crucial to me.
      The folding of the bag isn't a issue. Because you should change the bag once it's 1/3 full. Plus your probably getting your stoma in the sigmoid area which means your stool should be mostly solid not watery. Plus if you get it above your belly button it will show. Plus once you've been changing it for awhile it will get much easier.

      Let me put it this way. I went from my bowel program dictating my days to now there in after thought. I don't even think about them anymore. I change it when I have 15 to 20 minutes to kill.

      The only draw back. And it's not a draw back to me because I don't care what people think. It does farts at times. I'll be sitting in my office with clients and sometimes it will speak out. I fine it funny. The clients have never said anything about it yet. And it has happen atleast 20 times over the last three months. But if your worried about that just don't eat no gassy foods.

      Infact I'll tell you a funny story that happen today. I was on the phone trying to close a auto policy with a woman and while I was talking to her I stretched way back and let out a whopper. I knew she heard it but she just carried along like she didn't and I closed the deal. BTW, I had a steak bomb with everything on it including onions, and red and green peppers loaded on it. I need to control my eating habbits on working hours. But damn I just couldn't pass that sub up.

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        #48
        Originally posted by TheRainman View Post
        Plus if you get it above your belly button it will show.
        It seems like I'd need to get rid of my quad belly to put it below my belly button?

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          #49
          I haven't seen my belly button since my quad gut appeared either.
          C 5/6 Comp.
          No Tri's or hand function.

          Far better it is to try mighty things, to win glorious triumphs, even though checkered by failure. Than to take rank with those poor spirits who neither enjoy much or suffer much, because they live in the grey twilight that knows neither victory or defeat.

          Teddy Roosevelt

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            #50
            Originally posted by Big Sky 50 View Post
            Thanks Peegy for the insight! I tried a bag on to see the positioning of it, and when it is below my waist it folds at a 90 degree angle against my leg. As a beg fold maybe this won't be an issue. The placement definitely seems crucial to me.
            Mine is 1.5" below my belly button and I have always worn my bag at a 45 degree angle and it's never created a problem. Emptying it when it's a third full is not always an option for me. I couldn't imagine trying to conceal the bag above the waistline and being able to dress for business.
            "It is every man's obligation to put back into the world at least the equivalent of what he takes out of it. Try not to become a man of success but rather try to become a man of value." - Albert Einstein

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              #51
              hmmm i see my belly button everyday sometimes several. i use a 2 piece. change 2 to 3 time a day depending on what i have eaten


              lol the first time it whistle scared the poo out of me. its funny adnd embarrasing but nothing u can do. Not like my son who loves to fart he was not raised thaT WAY

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                #52
                Thanks for the input everybody! I do wear both slacks and jeans, depending if I'm at work or not. I can see how slacks will give a guy more room for the bag compared to my tighter fitting jeans.
                Rainman - Good stuff! The added story is great. Way to close the deal.
                Deadeye- I like your point of trying to conceal the bag for business.
                vjls - Where is the location of your stoma?

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                  #53
                  Mine is below the waist line and it was never a problem before I started irrigating last year. I wear all the same clothing as I did before but for the first few months I was a little swollen and wore mostly draw string pants or sweats. I started irrigating last December and now I don't really have to worry about emptying or dealing with the bag 99% of the time. Occassionally I might have a little present in my bag if I ate something that didn't agree with me. Adhering to a pretty strict diet helps a lot.
                  DFW TEXAS- T-10 since March 20th, 1994

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                    #54
                    I always start out with my pants above my belly button, but once up in the chair the belt and pants slide below my quad gut. I'm thinking about a colostomy (if I can muster the courage). Are there any quads with quad belly who've worked out a workable location for the stoma.

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                      #55
                      Originally posted by beckman View Post
                      I always start out with my pants above my belly button, but once up in the chair the belt and pants slide below my quad gut. I'm thinking about a colostomy (if I can muster the courage). Are there any quads with quad belly who've worked out a workable location for the stoma.
                      I think most quads have a quad belly to some degree. Mine isn't exactly a 6 pack or a keg, more like a mini-keg. This is my stoma and how I position my bag. My belt is typically right at the top each of ring. In the summer, and I have my shirt off, I simply fold down the top corner of the bag into my pants so it's not visible.
                      "It is every man's obligation to put back into the world at least the equivalent of what he takes out of it. Try not to become a man of success but rather try to become a man of value." - Albert Einstein

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                        #56
                        thanks Deadeye thats helpful

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                          #57
                          Mine looks exactly like deideye.

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                            #58
                            Originally posted by DeadEye View Post
                            I think most quads have a quad belly to some degree. Mine isn't exactly a 6 pack or a keg, more like a mini-keg. This is my stoma and how I position my bag. My belt is typically right at the top each of ring. In the summer, and I have my shirt off, I simply fold down the top corner of the bag into my pants so it's not visible.
                            DeadEye,
                            What kind of bag is that? Brand? I used a clear bag in the very beging now I use a bag that has cloth on it and it is the color of skin, also you can not see the poop in the bag because the bag is white and has the beige cloth over it. The filter on your bag looks big, does it work good? Does it get plugged up with poop sometimes? I am thinking about designing a bag and calling Hallister and seeing if they would be interested in making it. I have some thoughts about the placement of the filter so it does not get clogged.

                            Here is a photo of my bag that I use, it is from Hollister. The bag also has tabs that I guess you can strap it on as well.
                            It is the New Image and it snaps on to the wafer i put on my skin like Tupperware.
                            The first photo you can see the white filter that is filled with charcoal so it helps the smell for a while and still lets out gas. For a while I used to put drops of vanilla extract to help with the smell and I think their is a green pill that you can take to help with your smell.

                            Did you know that chewing gum makes you fart.

                            Stevie P

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                              #59
                              I tried these bag liners that go inside the ostomy bags. They say that they are disposable/flushable/biodegradable but they were really not. I talked to the guy who made them and he said if they were actually biodegradable (flushable) they would dissolve when they had poop in them. Sometimes they worked good and sometimes they would not hold and come apart at the seams. It would really depend how much you filled the bag. because if you filled the bag up it was hard to get out of the hole in the Hollister bag. They were kind of expensive. They would send you 1 or two to try out, but the smallest amount you buy was 100 of them for like $70 dollars. It did not work for me. I still have the liners if any one wants to try a few to see how they work.

                              Anyone ever try these? What was your experience?

                              What system does everyone use? Post some photos?

                              Stevie P

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                                #60
                                Deadeye - Thanks for uploading the photo. That is helpful to see the placement of the stoma and how it fits under your jeans.

                                My surgeon is recommending I have my stoma placed above my belly button. It would be nice to hear from somebody who has their stoma up higher.

                                The reasons to have the stoma below the belly button make sense, just trying to hear from different areas of placement.

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