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Please help ASAP! Blood-pressure unstable and being sent to skilled nursing facility

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    Please help ASAP! Blood-pressure unstable and being sent to skilled nursing facility

    How can I manage life with fluctuations of blood pressure? I am to be transferred to sub acute hospital or nursing facility tonight or tomorrow. I'm petrified and don't believe I need to go there; and worry my health will suffer more if I do.

    I have been in the hospital for nine days because my blood pressure swings too high and too low. AD will bring it up to the 200 levels and the hypertension will swing as low as 45/20. This happens because of my bowel routine and gas distending my belly that follows evacuation of the stool.

    The doctors here are unfamiliar with the idiosyncrasies of spinal cord injury. I think they are going overboard in keeping me here so long and now transferring me to a skilled nursing facility. We've done all kinds of tests including adrenal insufficiency, and tried several different drugs including midodrine and clonidine. All are negative.

    I believe that I just need some trick to manage my bowel routine and I could be safe at home instead of being monitored 24 hours a day. Here is what is happening:
    1. Magic Bullet suppository
    2. 2 to 3 hours digital stimulation for evacuation. Stool first, then lots of watery mucous. Sometimes bleeding.
    3. Abdomen fills up with gas and belly becomes very distended
    4. Pain, sweating, copious amounts of belched air
    5. AD kicks in. Blood pressure increases around 175, but up to 225.
    6. Take Norco for pain. *About an hour later, blood pressure drops to 60s, but as low as 40s. Dizzy, fainting and see white splotches.
    7. Blood pressure stabilizes to around 90/60 within an hour or two.

    I have been a C 5/6 quadriplegic for 29 years, very healthy and active. The only medications I need are a stimulant in the morning before I get out of bed and a Norco when I do my bowel routine. Sometimes in a blue moon, a Valium for muscle spasm.

    I drink 3 to 4 L of Gatorade, green tea and water a day. My diet is high-fiber, mostly vegetarian. I am very health conscious.

    I am considering a colostomy to manage bowel routine. Colecterol surgeon said it would help in management but would not be a solution for the gas that distends my belly.

    I found a post from long ago that sounded like my problem - gassiness, dizzy then low blood pressure. Stool changed from formed to soft at 25 years post injury. No answer though. Thought it might be related to my problem.
    Last edited by Broken Doll; 4 Sep 2012, 7:02 PM. Reason: Typos

    #2
    Miralax saved my life.
    Get involved in politics as if your life depended on it, because it does. -- Justin Dart

    I shall not tolerate ignorance or hate speech on this site.

    Comment


      #3
      Broken Doll, I completely understand your fears! Let's see if we can find something good to help with your gas problems and liberate you from skilled nursing before you ever arrive.

      At the risk of sounding like a broken record, are you taking any probiotics? I had terrible gas like you get, and found that the rate probiotic helped not only prevent the gas but also helped with constipation that I attributed solely to the narcotics I take. There are a number of probiotics and help with gas; the trick is finding the one that works for you.

      Have you tried activated charcoal? My understanding is that also helps with gas in the digestive tract. It tastes terrible, but if it'll keep you from going to a skilled nursing facility, then what's a little yuck?
      It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.

      ~Julius Caesar

      Comment


        #4
        Have you had a colonoscopy and a timed transit test yet?
        Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

        Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

        Comment


          #5
          Sounds similar to the symptoms I had. Would get better and back in for the same stuff. Found out the rectum quit working or something like that. Had a Sigmoid Loop colostomy and haven't had any trouble since. It took a while for them to figure it out. I sure feel for ya BD.

          Comment


            #6
            don't be afraid. It is temporary, until you get more stable blood pressure. I kinda see why, i have nutty blood pressure lately, and it is scary to see, and I puke all over.

            It happens for no reason too, or because I want a bath, or rode in a car, or stayed outside too long, anyway if you are passing out because of low or high blood pressure it must feel pretty scary. It does for me. scares the heck out of anyone who see's it.

            my friend with ms had the same thing, and it turns out she broke her femur trying to get from van to chair. kept passing out. as soon as they figured it out she went back home.

            im told to eat a lot of salt, and wear support sox. the support hose and an ab binder does help with the low blood pressure. Im supposed to drink a ton more water than Im used to try and keep the blood pressure stable.

            charcoal caps do help with trapped gas.

            Comment


              #7
              Thank you all for your kind words and advice. Unfortunately, I couldn't convince my doctor to let me go home and have a home health nurse monitor me while I do my bowel routine. Before I knew what was happening, medical transport was at my bedside to transport me to an LTAC, Kindred Hospital Long Term Aute Care in ICU surrounded by old comotose patients being monitored 24 hours a day.

              I DON'T BELONG HERE!!! My blood pressure is fine unless I take a Norco to sop the pain that causes the dysreflexia that then causes my blood pressure to drop. I need solutions, not a place to lay and rot with a monitoring system on me.

              I want to explore the options you've listed.

              Comment


                #8
                well you can't go getting AD you might get a stroke. oh, sound like my grammie. anyway can you go home when your blood pressure is stable?

                and what else have you tried?
                do you have a binder that squeezes you abdomen? I thought it would make me more faint, but if combined with knee high support, or waist, (the thigh ones give me AD)

                this probably won't work but someone mentioned ice, so Ive had a bucket of ice to put my feet in, and I havent felt like passing out. still have a crazy heart beat, but for so long. Instead of chips though ive had salted sunflower seeds, nuts, and dried salmon.

                I thought I was drinking a lot of water, turns out I need a lot more water not to be dehydrated, and faint. if I dont feel faint, I have a pounding headache. anyway, my blood pressure is better by drinking twice as much as I was, and gatoraid, im not so good with the gatoraid but it does seem to help.

                Comment


                  #9
                  ask your Dr. To call your SCI dr. and explain the basics.
                  Get involved in politics as if your life depended on it, because it does. -- Justin Dart

                  I shall not tolerate ignorance or hate speech on this site.

                  Comment


                    #10
                    Originally posted by Liz321 View Post
                    Miralax saved my life.
                    Miralax. It works.

                    Comment


                      #11
                      Originally posted by Liz321 View Post
                      Miralax saved my life.
                      How does Miralax work?

                      How much do you take?

                      Is it a laxative? I'm worried about a laxative making my intestines hyperactive and causing me dysreflexia.

                      Comment


                        #12
                        Originally posted by thehipcrip View Post
                        Broken Doll, I completely understand your fears! Let's see if we can find something good to help with your gas problems and liberate you from skilled nursing before you ever arrive.

                        At the risk of sounding like a broken record, are you taking any probiotics? I had terrible gas like you get, and found that the rate probiotic helped not only prevent the gas but also helped with constipation that I attributed solely to the narcotics I take. There are a number of probiotics and help with gas; the trick is finding the one that works for you.

                        Have you tried activated charcoal? My understanding is that also helps with gas in the digestive tract. It tastes terrible, but if it'll keep you from going to a skilled nursing facility, then what's a little yuck?



                        I just spent two days at a long-term acute care center (which appeared to be a nursing home for people with complex medical situations). It was horrible. I busted out. They expected me to be there for three months. I'm at home now.

                        I really do believe that if I can manage my gut, my autonomic dysreflexia and low blood pressure hypertension problems will be greatly resolved.

                        What brand of pro biotics do you use? I've tried several throughout the years, I'm not sure how much they really did help me. I did notice quite a big change in my digestive system with Activia yogurt. It was a little too volatile though. Also, I don't like eating that much sugar.

                        I also remember taking activated charcoal tablets for some cleansing or something I did a long time ago. I don't think I took them long enough to really notice any effect. But right now, I am so interested in anything that will make my life better.

                        Thank you so much for your posting.

                        Comment


                          #13
                          Originally posted by Sue Pendleton View Post
                          Have you had a colonoscopy and a timed transit test yet?
                          I am very interested in the colonoscopy and time transit study that you posted about.

                          What will this study show?

                          If it's motility, I would be very interested in finding out my motility rates so I can plan for better bowel routines.

                          Most of all, I would like to discover why my belly becomes so distended with gas and causes me so many problems.

                          Thank you for your posting. I really appreciate your interest.

                          Comment


                            #14
                            Originally posted by Patrick Madsen View Post
                            Sounds similar to the symptoms I had. Would get better and back in for the same stuff. Found out the rectum quit working or something like that. Had a Sigmoid Loop colostomy and haven't had any trouble since. It took a while for them to figure it out. I sure feel for ya BD.
                            Thank you for your empathy. This is no fun. And it seems so hard to find solutions.

                            Comment


                              #15
                              Originally posted by jody View Post
                              don't be afraid. It is temporary, until you get more stable blood pressure. I kinda see why, i have nutty blood pressure lately, and it is scary to see, and I puke all over.

                              It happens for no reason too, or because I want a bath, or rode in a car, or stayed outside too long, anyway if you are passing out because of low or high blood pressure it must feel pretty scary. It does for me. scares the heck out of anyone who see's it.

                              my friend with ms had the same thing, and it turns out she broke her femur trying to get from van to chair. kept passing out. as soon as they figured it out she went back home.

                              im told to eat a lot of salt, and wear support sox. the support hose and an ab binder does help with the low blood pressure. Im supposed to drink a ton more water than Im used to try and keep the blood pressure stable.

                              charcoal caps do help with trapped gas.
                              I am wearing a binder, hose and drink lots. I love salty food too!

                              Comment

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