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    Don't know where to post...I'm ready to have a baby

    Ok so I don't want to pop one out just yet but I'm ready to start the process. I've started coming off the meds for one. I'm coming off baclofen and I'm soooo much tighter. I'm worried about low blood pressure issues since I already take the ax midodrine plus florinef. What doctors do I need to get in line and how do I keep them on the same page with one another by the time I figure it all out its going to be time!
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    #2
    Rachelle, I wish you every success.
    Do you have a good ob/gyn doctor already? That would be a good place to start, finding someone you trust and is willing to learn more about the complexities of SCI.
    Some of the Moms here will be popping to to give you real advice and experience.

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      #3
      If you have a good physiatrist, ask them for a referral to an OB/Gyn who has some SCI care experience (if possible). Ask that they work collaboratively in helping you manage your pregnancy. Your urologist may also need to be involved at some point.

      In addition, try to identify a nurse (often an advanced practice nurse) who can help you with teaching staff where you plan to deliver about your special needs including positioning, skin care, AD monitoring and management, and post- partum care needs. It would be important to meet with the anesthesiologist(s) ahead of time so that there is a plan for an epidural if you should have AD or need a C-section.

      Congrats on moving on to the next stage of your life. Being a mother can be so rewarding (and challenging too!).

      Here are some additional resources:

      http://www.spinalcord.uab.edu/show.asp?durki=41588

      http://www.spinalcord.uab.edu/show.asp?durki=22442

      http://www.bcm.edu/crowd/national_study/PREGNANC.htm

      http://sci-pregnancy.org/

      http://www.modernmedicine.com/modern...date=&pageID=5

      http://www.centralpasci.com/id137.html

      http://nurs211f07researchfinal.blogs...nt-client.html

      http://www.newmobility.com/articleView.cfm?id=11851

      http://www.amazon.com/Disabled-Woman...927500&sr=8-28

      http://www.amazon.com/Mother-To-Be-G...927807&sr=8-42

      KLD
      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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        #4
        Those are great resources! Thanks!
        Www.rachellefriedman.com

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          #5
          I don't have answers to your questions on medication as I do not take any, nor do I know how the medical system works in the states, but just wanted to wish you luck.
          Emily, C-8 sensory incomplete mom to a 8 year old and a preschooler. TEN! years post.

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            #6
            Originally posted by ECUrach85 View Post
            Ok so I don't want to pop one out just yet but I'm ready to start the process. I've started coming off the meds for one. I'm coming off baclofen and I'm soooo much tighter. I'm worried about low blood pressure issues since I already take the ax midodrine plus florinef. What doctors do I need to get in line and how do I keep them on the same page with one another by the time I figure it all out its going to be time!
            Congratulations to you and your husband. Hope your pregnancy goes well w/o any problems. Don't spoil the baby to bad when he/she is born. LOL!!

            Comment


              #7
              I would definitely have a high risk obstetrician ( or at least one that has worked with women who have Neurologic disabilities), a physiatrist, a PT and OT, and an anesthesiologist. Depending on other issues you may have, you may need to add a specialist or two, like a urologist. I would do mynbest to keep the number to a minimum- easier to control! Lol
              Good luck - and IMHO, babies are meant to be spoiled as ,uch as you want to!
              CKF
              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

              Comment


                #8
                My nerve pain is a big issue but my biggest fear is BP. How will I control it if I can't take midodrine?
                Www.rachellefriedman.com

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                  #9
                  unless you take a huge dose of baclofen (i was on 40-60 mg/day), i don't see why that's an issue. to control bp during labor, an epidural blocks AD. i wasn't on pain meds at the time so can't nelp there. good luck!

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                    #10
                    Originally posted by cass View Post
                    unless you take a huge dose of baclofen (i was on 40-60 mg/day), i don't see why that's an issue. to control bp during labor, an epidural blocks AD. i wasn't on pain meds at the time so can't nelp there. good luck!
                    I think the blood pressure concern above was how to keep her bp up if she stops taking midodrine throughout the day during her pregnancy. Rachelle, I would start weaning off of it as much as you can. Even if you can start doing say 10mg before you get out of bed and then a 5mg later in the day and 2.5mg after that [or start out weaning not as drastic. i would def keep the full 10mg in the am to begin with]. I'm not sure your dosing, but at max I guess 10mg 3-4x/day? You need to keep track of what makes your bp tank and try to work around it. If meals make it worse, plan your meals around the time you're taking your midodrine. Use your binder. Drink A LOT of water. Try TED hose if your legs and feet swell.

                    Of course, consult your dr before messing with your meds.
                    Last edited by november; 27 May 2012, 2:09 AM.
                    Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee doesn't know that, so it goes on flying anyways--Mary Kay Ash

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                      #11
                      There are some medications that they will try to wean the dose, but not take you off of completely. I am not sure if midrodrine is one of them, but consult with your doctor. If you can 't tolerate being off of it, they my be able to tailor your dose some.

                      There are other Meds, like colace, that you might even be prescribed.

                      I would take with your SCI doc and OB before I started worrying too much.

                      CKF
                      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                      Comment


                        #12
                        I literally worry about it everyday. Plus that show paralyzed and pregnant scared the crap out of me
                        Www.rachellefriedman.com

                        Follow me on Facebook at
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                        Follow me on twitter at
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                          #13
                          Originally posted by ECUrach85 View Post
                          I literally worry about it everyday. Plus that show paralyzed and pregnant scared the crap out of me
                          Rachelle , I know 3 quad women who gave birth after their injury. all healthy and hapy babies. 2 of them are pregnant with number 2.. sigh..i wish i wasnt student so we could try..one day one day

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                            #14
                            Originally posted by ECUrach85 View Post
                            I literally worry about it everyday. Plus that show paralyzed and pregnant scared the crap out of me
                            Was that Michelle on the show? First, stop worrying. I'll see if I can get her to stop by to stay hi. I wish I had gone ahead with baby plans but I don't think our marriage would have survived the stress. I have low bp and there are ways around it depending on when it happens, how low it goes and how well you manage when it is low. You may need to change your bladder care during part or all of your pregnancy to keep your blood volume up. Actually, knocking out anti-spasmotics can make all that tone useful in squeezing your blood vessels. You don't want to over squeeze the baby though.

                            I really wish TLC would get someone like Emi on and how well she coped physically after her 2 babies. Michelle's first show was up to and just after delivery. Her second was where she had to stay partially reclined to in bed to maintain her bp. That's rare even in the SCI group for it to run 24 hours a day for so many years.
                            Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

                            Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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                              #15
                              Originally posted by ECUrach85 View Post
                              I literally worry about it everyday. Plus that show paralyzed and pregnant scared the crap out of me
                              No! Don't let that scare you! I have 2 very good higher quad female friends that have kids and did not experience the troubles she did. That was the worst case scenario imo.

                              First off, see if you can manage your bp with just water. I was taking midodrine for 2 yrs but haven't taken it in over a year. If I feel a bit lightheaded (usually in A.M. and meals) I drink water and it does the trick of raising my bp within minutes.

                              Go for it! You will make great parents!
                              Message me if you want a connect with my girls, they are amazing mothers and had births no different than any other typical births.
                              "The sweet is not as sweet without the bitter"
                              ~"Vanilla Sky"~

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