No announcement yet.

Folley Cath. vs. Mitrofanoff Reconstruction

  • Filter
  • Time
  • Show
Clear All
new posts

  • Folley Cath. vs. Mitrofanoff Reconstruction

    Hello. I am a new member but NOT a new SCI patient. My SCI was a result of Spina Biffida Occulta at birth. However I did quite well as a child and needed very little support. Not until I began having complications such as tethered cord and Syringomyelia, did I really start living with the full reality of SCI
    My LAST spinal cord surgery was in 2008 and I didn't get the best results. I am now completely INCONTINENT with my urinary systems.
    I have been wearing a FOLLEY CATHETER since 2008, of course with reg. cath. changes. But I feel like this folley RULES MY LIFE! I'm so tired and ashamed of my cath bags. LEG BAGS don't work for me as I am an amputee. I have just recently learned about MITROFANOFF RECONSTRUCTION. Most info. I can find is for pediatric cases so I am working on finding a specialist in my area. I do have a HIGH infection rate Post-operatively and I have had 2 MRSA infections in past 10yrs.

    Does ANYONE have ANY info. to share or are you tired of dealing with a folley too. I am info. starved at this point.
    Thanks for this great Site for SCI folks. Its obvious that an infinite amount of hours go into its management.

  • #2
    It is very likely that after using an indwelling catheter for 4 years that your bladder has significantly shrunk. I would doubt that you could now switch over to intermittent cath without also having an augmentation surgery (this is a BIG surgery), which could be done along with a Mitrofanoff. Have you discussed these options with your urologist?

    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.


    • #3
      I have been using a foley for close to 8-10 years now, and do quite well. I would look into a "Belly Bag" made by Rusch. It straps around you like a fanny pack. There are no extension tubes, is close to your body, and your drain is placed in an atatomicly in the right place for a male. (I am a female.) I find it discrete, comfortable, reduces accidental extractions, and no one knows you have it. It can be warn with shorts, a shorts type bathing suit, short skirts, and other forms of summer light dress. All you have to do is wheel up to the toilet (or unial if you are a man in the men's room), swing away your leg rests, do your busness, and no one would know. My only problem is it has a twist valve and you MUST be careful that it is fully twisted shut when you're done.

      The device works off the internal pressure of your bladder, allowing the urine to enter the bag. They are quite pricey so you may have to badger your insurance company documenting any accidental extractions or problems (not cosmetic) so you can get coverage.

      This system can help avoid surgery and its complications as well as the problems and embarrassment of a CD bag, leg or thigh bag. Then it will become your freedom tube, not a burden. Good luck!
      Disability is not a medical problem with social issues, but rather a social problem with medical issues.
      Franklin D. Rosevelt