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Please help...parents want to put me in a nursing home

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    #31
    Wow - that robbery sounds very very scary. You are so incredibly lucky that something bad didn't happen to you. Actually, that would freak me out a little if I was your mom. It puts a little different perspective on your parent's fear about you being home alone.

    While I agree with the others that it is awful you feel your parents aren't more supportive of keeping you at home, I also agree that now's the time to work your butt of in inpatient therapy and go for the stars. You can do it. You can be completely independent. With your level of injury, you can be independent - walking OR in a wheelchair.

    I would love if you could somehow work through these weeks/months and end on ok terms with your parents. Keep talking to them about how they made you feel.

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      #32
      Totally different perspective. I get your mother's worry now.
      Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

      T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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        #33
        None of us are in your shoes, but a lot of us are rooting for you. I'm so glad things are falling into place. As for the nursing home...would one even admit you with your level of independence? Not in Oregon, but I don't know the rules in CA.

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          #34
          Mandy Texted

          She said the paramedics were in her room to take her to Cas Colina. She was pretty excited as was I. She asked me to let you know as she was in transit and will post when she gets settled in.

          This kid, err young lady, is going to be okay. She has a good idea of who she is and where she wants to go in life. I'm in her corner with the spit bucket as she goes another round in life.

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            #35
            ^^^^ Like ^^^^
            Adaptive Sports Forums.com
            http://adaptivesportsforums.com
            Non-commercial adaptive sports user community

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              #36
              Originally posted by CurvySAT05 View Post
              Oh, and as for some of the posts about the stairs to the front door, I have the ability to get in/out of the house through the garage, back door or side door my moms concern comes because we had our house robbed shortly before my generator was removed and the police think the robbers knocked on the door and I didn't hear it (I was in my room upstairs) and since there was no response they assumed no one was home and broke in through the back window. My step dad had the day off and I thought he was home, so I shrugged off the noise in the backyard and the movement upstairs (DSF is normally very noisy) until the robber opened my bedroom door. When they realized I was home they split really quick. There were 3 distinct shoe prints). That's why being able to respond to the front door was so important to my mom.
              Oh, that makes sense now. Your mother is off the hook. I understand her thinking now.

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                #37
                Hurray! Thanks for the update Patrick.
                LETS GET READY TO RUMBLE...
                Ding Ding Ding

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                  #38
                  Why not just install ADT or another alarm system that notices when windows are broken or doors jimmied? I agree that finding an apartment or sharing a place is better than staying with your parents.

                  When your Mom visits you once you're living independantly I hope you run over her feet if she worries about your step-dad not staying home to answer the door...
                  Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

                  Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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                    #39
                    Thanks Patrick for updating everyone in my absense/transit. I am now updating from the library at Casa Colina. I was very lucky to be admitted here and the nurse who saw me in the acute care hospital was hopeful that we could get 2-3 weeks of treatment here through insurance. If you are interested in contacting me I am in room 1104B and you can call the main hospital and they will put you through to the nurses station who will then transfer you to my bedside phone. I was able to talk to Patrick for a bit after I arrived. The cell coverage here is CRAP, so I was happy to find out they have a patient library where I can log on to the internet.
                    Today has been a long day. I got in around 8:00 last night and got settled. I was ready for meds when I got here as my pain meds have been given every 4 hour around the clock to stay on top of my pain. It took a while to get the orders transferred over and approved by my attending physician here. I tried calling Patrick from my cell, but he couldn't really hear me, so I gave him the number for Casa and he called bedside. It was good to talk to a friend and know that somone is on my side. My mom has come to visit me a few times, my dad and step mom came to visit for a few when I was at the acute care hospital the night after I was admitted, and my step dad came to visit me yesterday before I was transported here. I did find out though that he was also there to complain about how he and my mom were treated by the "hospital" when they dropped me off (aka having APS called local PD called, etc) and wanted to have that taken care of. He was almost in tears when I told him that the only "bad" service I had was in the ER and that once I was transferred to my room everyone was amazing, from the nursing care to the PT's. I never ONCE was treated poorly, felt like I was being ignored or not taken seriously, etc.
                    I am going to go now as I need to take some pain meds. I don't feel like I can sit in my chair any longer right now. I hope everyone is doing well. Please, if you feel like talking give me a call. I can use some friends right now.
                    Mandy
                    ~Mandy~
                    SCI as a result of spinal surgery
                    TiLite Aero Z!!!

                    Comment


                      #40
                      Originally posted by CurvySAT05 View Post
                      Thanks Patrick for updating everyone in my absense/transit. I am now updating from the library at Casa Colina. I was very lucky to be admitted here and the nurse who saw me in the acute care hospital was hopeful that we could get 2-3 weeks of treatment here through insurance. If you are interested in contacting me I am in room 1104B and you can call the main hospital and they will put you through to the nurses station who will then transfer you to my bedside phone. I was able to talk to Patrick for a bit after I arrived. The cell coverage here is CRAP, so I was happy to find out they have a patient library where I can log on to the internet.
                      Today has been a long day. I got in around 8:00 last night and got settled. I was ready for meds when I got here as my pain meds have been given every 4 hour around the clock to stay on top of my pain. It took a while to get the orders transferred over and approved by my attending physician here. I tried calling Patrick from my cell, but he couldn't really hear me, so I gave him the number for Casa and he called bedside. It was good to talk to a friend and know that somone is on my side. My mom has come to visit me a few times, my dad and step mom came to visit for a few when I was at the acute care hospital the night after I was admitted, and my step dad came to visit me yesterday before I was transported here. I did find out though that he was also there to complain about how he and my mom were treated by the "hospital" when they dropped me off (aka having APS called local PD called, etc) and wanted to have that taken care of. He was almost in tears when I told him that the only "bad" service I had was in the ER and that once I was transferred to my room everyone was amazing, from the nursing care to the PT's. I never ONCE was treated poorly, felt like I was being ignored or not taken seriously, etc.
                      I am going to go now as I need to take some pain meds. I don't feel like I can sit in my chair any longer right now. I hope everyone is doing well. Please, if you feel like talking give me a call. I can use some friends right now.
                      Mandy
                      What should have had them in tears was the way that they make you feel unwanted and like an embarrassment in your own home. I think that this confirms my original opinion that they are selfish people. How do they think they made you feel? It seems to be all about them.

                      I am glad that you are in a protected and supportive environment now.
                      Anything worth doing, is worth doing to excess

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                        #41
                        Im wondering if her parents actually do need some extra help with care. maybe through this you can find some resorces you didnt know about. three weeks isnt enough time to find an apartment, as you may need to be on a waiting list. are you going to get occupational therapy? or learn life skills so you can avoid a nursing home?

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                          #42
                          The number for the hosp. is (909)596-7733. I hope its okay with the moderators. It's Casa Colina so I doubt it's a problem.

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                            #43
                            Sounds like you're taking control! You'll need this to go on and find your own place ... s'all good!
                            Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                            T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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                              #44
                              glad things are looking up! If the cell reception can handle it, feel free to text me if you're bored or want to talk! I know where I used to live the reception was horrible and it dropped calls or went straigt to voicemail; but texting always worked fine. I prefer texting too, I hate talking on the phone. (phone anxiety)
                              Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

                              I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

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                                #45
                                Hi All,
                                I am still here at Casa and am getting daily PT and OT as well as speech for some unrelated conditions. I have hit the wall with emotions the last few days since it is the holidays, my brother is coming home on leave from the Army today (we generally get to see him once a year at Christmas since his home base is in Italy), tomorrow is my brothers birthday, etc. Monday, Dec 26th will be my 5 year injury anniversary, and 3 of my 4 major surgeries have been in December, so it is overall a hard month for me.
                                My stubbornness actually got me somewhere the other day since we had a group SCI meeting on Friday (we have one every Friday) and I could not get in touch with my CNA or RN to help me out of bed so I could brush my hair (I was already dressed). With 5 minutes to go until the meeting, and not knowing if someone was going to come get me and take me, or if I was just expected to show up to some unknown room (to me), I decided to take matters into my own hands. The beds here have alarms on them that go off if the weight in the bed suddenly is removed. The alarm must be turned off before going to therapy, having your BP, etc. so I knew where the control was for it, I just had to learn how to turn it off. I have always been independent in my transfers anyways, so I knew that I wouldn't harm myself by transferring that one time without help. Wouldn't you know about two minutes after I turned the alarm off and was in the middle of brushing my hair my OT walks in to tell me where the meeting was. I told her what I had done, and she tested me later that day to make sure I could transfer without help to and from bed safely, then had PT test me to do the same, and once I proved myself safe to both PT and OT I was given a green band allowing me to transfer without assistance, which also allows me to have more independence here as to when and where I want to go.
                                I will get a day pass tomorrow afternoon to go to my doctors office and have my spinal cord stimulator reprogrammed. I am hoping once this is done that I can have my IV removed (still getting IV pain meds) and not have to go up on my pain patch to control the constant pain I have been having.
                                My rehab doc is wondering if I am not a higher level injury than we originally thought since I have a history of AD twice (at T10 I shouldn't get AD, usually it is T7 and above). I think at some point we are going to do a full ASIA test (which has never been done on me) and determine for sure if I am complete or incomplete and at which level my sensation starts to change, etc. I really like all the staff here so far. The Director of the hospital comes in once a day to see how things are going and make sure the staff are treating you well, that the food isn't coming with allergens, etc. The Director is actually really funny (I met him back in the beginning/middle of November when I had AD in Outpatient therapy and they called rapid response meaning that one of the doctors comes to assist, etc.). When he arrived he asked me if I could open my eyes, so I did and he introduced himself and asked if he was handsome, at which point I chuckled (not the right thing to do Mandy!) and he was like, what, you don't think I'm handsome? I said "No...both of you are" (I was seeing double) and he got a kick out of that. When I saw him around a few days later I said thank you to him, and he was like, "for what, I didn't do anything" and I told him thanks for talking me into going to the ER. He said "well...you didn't really have a choice, but glad I could make you more comfortable with going" LOL.
                                Anyways....enough of that story. My dad came to visit me the other day and having visits from my parents has been weird. Anyways, when he was here he was sitting in my chair (I was in bed) since I didn't have a bedside chair in my room. When he was in it, something popped REALLY loud, and we thought maybe it was a balloon that was in my room, but it was still floating. He checked my tires, and sure enough my left tire had blown. It scared everyone half to death. My dad didn't have the right size tire at home (he rides bikes), I couldn't even begin to think of where my spares were, and we didn't know if the hospital had spares since it was night and there was no one to check. The next morning I told everyone I could that my tire was popped so that hopefully my chair could get fixed ASAP and I wouldn't have to push a tank (aka hospital chair). With no luck, they had to bring the tank in (20x18 instead of my 17x17) and one of the PT aides later said that he would fix my tire or take it to the bike store up the street to get it fixed. To no avail, it didn't get fixed that day (Thursday), so Friday when we had the group SCI meeting I was still in the tank. When I went to PT (or maybe it was OT) later I went up to the aide and was like, "what chair am I in?" and you saw him sink behind a standing frame a bit "and what chair am I SUPPOSED to be in?" and he sinks even lower then tells me he will get it fixed that day he PROMISED and came around and gave me a big hug. Sure enough, he came up to my PT with about 30 min left in the session and asked if he could take the last 30 min of his shift to go get my tire fixed. So he went to my room, grabbed my wheel and off to the bike shop he went. I was hoping that my chair would be ready before I went back to my room, but he didn't show up and JUST as I was (slowly) pushing the tank out the door I hear "where are you going?" and I turn around and there he is, with MY chair in tow. I was never so excited to be pushing my chair, LOL. I transferred to the PT mat so I could get my cushion back on my chair, then transferred to MY chair and felt like I was in a sports car. Now I am back to zipping around the halls here (making trouble) as if nothing happened. I sure hope that is the last of my chair troubles while I am here!
                                Anyways, I am going to log off now for a while. I am starting to get tired and want to go lay down. I will read some of the other threads on my phone, but wanted to update you all on how I am doing here at rehab.
                                I definitely miss being on CC everyday, and I miss having my laptop to type from (I am in the patient library again). Hopefully my mom will bring my laptop soon so I can watch movies and post to CC more regularly.
                                Mandy
                                ~Mandy~
                                SCI as a result of spinal surgery
                                TiLite Aero Z!!!

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