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    What Dr do you have

    Hello...Have a question...What type of Doctor do you use...

    Do you go to a Physiatrist or an Internal Medicine Doctor, a DO or both or someone else?
    If you see just a physiatrist does he/she treat everything...pain,flu,bladder issues...

    We have relocated and are starting the selection process over again and have physiatrist and Internal Med Dr in the area...we have gone to Internal Med Dr and a DO in the past....sometimes I feel like there is a learning curve for these Drs..that perhaps they don't understand the differences between and able bodied patient and SCI patient so trying to research before we choose. Any opinions would be appreciated.

    #2
    Only some physiatrists do primary care; many do not. Regardless, it is a very good idea to have a physiatrist on your health care team. An annual check-up with the physiatrist can address your SCI specific needs, and also make recommendations to your primary care physician for your on-going health care needs. This works best if you can get the physiatrist to recommend an internist that they already work with a lot.

    You can find a list of physiatrists here:
    https://www.e-aapmr.org/imis/imisonl...dphys/find.cfm

    It is especially helpful to have a physician who is board certified in Spinal Cord Medicine as well. Most are physiatrists, but there are other specialists who have this certification, including some urologists, neurologists, neurosurgeons and orthpedists.

    Don't forget that you need to have a regular urologist as well, and that is also a physician that you should see annually.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

    Comment


      #3
      Let me see..I've picked up quite a few over the years . I have a regular family practice guy who I see for an annual flu shot, physical etc. I have a a Physical Medicine and Rehabilitation guy specializing in SCIs. I see him twice a year. Finally, I have a urologist with SCI experience I see annually. Nice thing is they are all on the same electronic records system so they can all see what everyone else has done.
      Tom

      "Blessed are the pessimists, for they hath made backups." Exasperated 20:12

      Comment


        #4
        So, now I am confused. Is a physiatrist a better choice than a neurologist? An internal medician physician versus a family medicine practioner? I am a 32+yr s/p incomplete quad who is physically deteriorating [maybe due to spinal atrophy--aging SCI issues?? or some other neurological issue??]. Who should be on my medical team besides the urologist?

        Comment


          #5
          @peegy
          You beat me to it! I'm 25.5 yrs post c4 and I have a regular family Dr, a SCI Dr. But my family Dr is going to retire, so I'll check out the link SCI Nurse posted
          C4 incomplete since 1985

          Comment


            #6
            Originally posted by peegy p View Post
            So, now I am confused. Is a physiatrist a better choice than a neurologist? An internal medician physician versus a family medicine practioner? I am a 32+yr s/p incomplete quad who is physically deteriorating [maybe due to spinal atrophy--aging SCI issues?? or some other neurological issue??]. Who should be on my medical team besides the urologist?

            Neurologists excel at making a diagnosis and determining the cause of neurologic problems, and in medical (non-surgical) treatment of many neurologic problems, but very few know much at all about disability management or rehabilitation. Physiatrists are the specialists in this area. Few neurologists would be agreeable to managing all of your medical problems in addition to those that are neurologic (such as pulmonary, GI or cardiac problems), nor preventive health issues which would fall more under the expertise of the internist or family practice physician.

            Internal medicine physicians have a more extensive training and residency than family practice physicians, but the latter is preferable to a GP (general practitioner) who rarely has any board certification or extra training past an internship.

            (KLD)
            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

            Comment


              #7
              KLD,

              Thank you for your quick response. So given the new information, I should be adding another medical practioner to my team. My current team consists of:
              internal medicine physican
              urologist [who took years to find--8 residents and attending #3 later]
              neurologist [since 2008]
              So I guess I now need to find a physiatrist to fill in the pieces.

              Question: Should a physiatrist be the PCP [primary care physican] of an Internal medicine doctor?

              Comment


                #8
                I didn't see any doctors the first three of four years, then I got a family doctor, had him for a year or two, but he was hooked on drugs.
                then didn't have a doctor for about 15 or 20 years, then found out he was a DO, something about internal medicine my sister says, didn't really matter, i just see him about once a year for a blood test and a double dose of antibotics to have on hand
                We must reject the idea that every time a law's broken, society is guilty rather than the lawbreaker. It is time to restore the American precept that each individual is accountable for his actions.
                Ronald Reagan

                Comment


                  #9
                  Originally posted by peegy p View Post
                  KLD,
                  Question: Should a physiatrist be the PCP [primary care physican] of an Internal medicine doctor?
                  Some physiatrists will serve as a primary care physician, but many will not. If you cannot find one who will, then ask them to refer you to an internal medicine physician who works with them well so that they can communicate about any of your primary care needs that may need to be adjusted for your SCI.

                  (KLD)
                  The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                  Comment


                    #10
                    Bruce, you and I are so alike. I avoid doctors at all costs. However my overall strength and health has deteriorated over the years. I am now on my 3rd PCP who is an internal medicine doctor. 2 left the state. The 1st PCP would look up info on SCI and give it his best shot. The 2nd PCP upon our first meeting said "I don't know anything about your condition (SCI), but I have no problems making referrals." She lasted a year. The 3rd and current PCP just refers me to other specialists. It took awhile to convince him that I was serious when I said that I would not accept any antibiotics until the urinalysis and culture was done. I have had similar experiences with the urologists/urosurgeons. The hospital directly associated with the medical school (UNMH) actuallly sent my case to Grand Rounds and then exposed me to 8 urological/urosurgeon residents.

                    Knowledgable medical practioners in the State of New Mexico are rare. Most of the urological residents train at: University Hospital, the VA, another non-for-profit hospital and a specialized children's hospital/rehabilitation center. Then they leave the state.

                    I actually know of a new doctor who just became a physiatrist and a pain specialist but he works in an out-patient center in a rehab center. I guess I need to give him a call.

                    Thanks all for your input. May we all be lucky and find the right doctors who will be in it for the long haul with us. We can always be hopeful.

                    Comment


                      #11
                      Just a plain old family medicine doctor + urologist. In Canada things are not so hyper specialised like they are in the states. The majority of specialists tend to be generalists with ocaisonal sub specialist or a specialist with a interest in a certain area.

                      They must be doing something right, been a para for 41 years with no major issues.

                      Comment


                        #12
                        Originally posted by SCI-Nurse View Post
                        Only some physiatrists do primary care; many do not. Regardless, it is a very good idea to have a physiatrist on your health care team. An annual check-up with the physiatrist can address your SCI specific needs, and also make recommendations to your primary care physician for your on-going health care needs. This works best if you can get the physiatrist to recommend an internist that they already work with a lot.

                        You can find a list of physiatrists here:
                        https://www.e-aapmr.org/imis/imisonl...dphys/find.cfm

                        It is especially helpful to have a physician who is board certified in Spinal Cord Medicine as well. Most are physiatrists, but there are other specialists who have this certification, including some urologists, neurologists, neurosurgeons and orthpedists.

                        Don't forget that you need to have a regular urologist as well, and that is also a physician that you should see annually.

                        (KLD)

                        can't get the link to work, KLD.

                        Comment


                          #13
                          Looks like they just changed their website. Try this instead:

                          http://www.aapmr.org/patients/findph...s/default.aspx

                          (KLD)
                          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                          Comment


                            #14
                            that's it. thank you.

                            Comment


                              #15
                              Originally posted by SCI-Nurse View Post
                              Looks like they just changed their website. Try this instead:

                              http://www.aapmr.org/patients/findph...s/default.aspx

                              (KLD)
                              No surprise there is none on our area.
                              There is a cancer center in our area that is highly respected, but trying to find a good doc for a high level SCI has been maddening.
                              My husband has a PCP for every day type things and after much frustration we finally met a ENT that seems good.
                              The PCP worked in a rehab hospital while he was in medical school and is not uncomfortable with SCI, but is not a specialist.

                              Comment

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