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    Help help help!

    I really need some help! I have been trying to find a mattress type that will work for me for over five years now and have received little useful help. A doctor I recently sought help from recommended I try your site. I welcome suggestions from all and any, but in particular a nurse that the doctor recommended, Kathy Dunn.

    I have been a quadriplegic (C 5/6) for 16 years. I made it 14 years without any skin problems, but now am dealing with a closed pressure sore on my right buttocks
    and an open pressure sore on my upper left back. The sore on my back is between my scapula and my spine and has to open for 18 months. I know the ideal is to change position every two hours, but that this impossible for me because I don't have anyone at night to help with that. I am currently on a low air loss mattress from KCI called the BariMaxx II. It is poorly designed for my needs. My previous mattress was also a low air loss mattress by KCI.

    I am 6 feet tall and weigh about 260 pounds and you need a bed that is at least 48 inches wide. It also must be able to be used on a hospital type frame so that the head can go up and down as well as the entire bed.

    Are there any kinds of beds that can help me? I heard some talk about memory foam beds or alternating pressure mattresses, but don't know anything about them. I am at a point extreme frustration and would greatly appreciate some input... please!
    Last edited by Tanta; 26 Aug 2010, 7:01 PM.

    #2
    Hi Tanta, Sorry you are having trouble.
    Hopefully SCI nurse will see this post and have some good advice.
    If you can edit your subject (not sure if that can be done) maybe add MATTRESS it will let people scanning through the threads know what you need.
    Good luck!

    Comment


      #3
      Hello Tanta,

      I am a C5-C6 also and I got my DMS to order a bed here: http://www.goldentech.com/ I got the queen size and with prescription, only paid the difference from a hospital bed. If needed, find a good DME that will work with you.

      Good luck.
      Millard
      ''Life's tough... it's even tougher if you're stupid!'' -- John Wayne

      Comment


        #4
        i have been on a Soma mattress for 25 yrs w/ no problems yet. it's the kind w/ the water tubes.

        if ur 260lbs, i would suggest u drop some of that weight if u can. that would make ur life a lot easier and help w/ the pressure sores.
        http://www.dsportsman.com

        Comment


          #5
          hi tanta, i sympathize. i am just getting over my first pressure sore after being sci for 39 yrs. devastated me as i swore i'd never get one. my skin broke down on my L butt from undiagnosed scabies i caught from my dog!!!!!!! the year of nightmares.

          i was on an invacare adjustable bed that holds 450 lbs. i was told from my supplier that no hmo, ppos and medicare will pay for a wider bed unless you're over the 450 lb. max. it had siderails. can you turn with the help of those? if not, can someone prop a firm pillow behind your back and switch each night? also the mantra i heard over and over AND OVER again was protein, protein, protein!! that is a huge prescription for healing that MUST be followed if you want those wounds to heal, esp. if turning is difficult or impossible w/o help. one more thing, the rehab. OT computer mapped my butt. it was amazing! to see. the slightest shift of your body, even just your shoulders a couple inches either way while in your chair will change the pressure on your rear - maybe not much, but it's something.
          hope this helps.

          hi millard. i'm curious. what was the difference you had to pay. i really liked those adjustable features.

          Comment


            #6
            Hi,

            More details would help:
            How big and deep is the upper back sore?
            What mattress are you currently using?
            Do you sit in a wheelchair for long periods and what type of back surface is on your current chair?
            Is the upper back sore improving at all or getting worse?

            Thank you.
            AAD
            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

            Comment


              #7
              I use this

              http://www.phc-online.com/microAIR_M...acare-ma65.htm

              Used to have a Pegasus mattress, but that company is no longer.

              The mattress on this invacare product will wear down over time, but when you consider the money, time down, etc of a flap surgery.. this is a no brainer.

              I'm 6' 3" 210lb. and was told to eat 140 grams of protein a day to heal a sore/ per the healing wound center I visited.


              microAIR Alternating Pressure Mattress with on demand Low Air Loss
              with 50 LPM Compressor

              Inavacare MA65 Mattress Systems:

              * Standard MA65, 36"W x 80"L, 350-lb weight capacity
              * Standard MA65SRS, 36"W x 80"L, 350-lb weight capacity with raised side rails (bolsters)
              * Bariatric MA65B42, 42"W x 80"L, 1000-lb weight capacity
              * Bariatric MA65B48, 48"W x 80"L, 1000-lb weight capacity
              Last edited by ouch; 26 Aug 2010, 3:09 PM.
              www.myquadriplegia.com

              Comment


                #8
                Tempurpedic? I use a tempurpedic classic for better transfer height, I often sleep for hours without turning when really tired and have had no pressure sore problems. The tempur material IS a little different from memory foam, don't let people convince you it is the same. I used some alternating pressure matress pads before and they killed my back and would leave red spots if I slept too long without turning.

                Comment


                  #9
                  I think you are speaking of temprapedic.
                  The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                  Comment


                    #10
                    Originally posted by SCI-Nurse View Post
                    I think you are speaking of temprapedic.
                    lol
                    C5/C6 Complete since 08/22/09

                    Comment


                      #11
                      Sarah (C6/C7 incomplete) has a temprapedic adjustable bed. She has had it for about 6 months now. So far so good.

                      Comment


                        #12
                        Originally posted by SCI-Nurse View Post
                        I think you are speaking of temprapedic.
                        No, I'm speaking about Tempurpedic. I can read and spell and I know what I use.
                        http://tempurpedic.com/

                        Comment


                          #13
                          Hi SCI Nuse!

                          Thank you so much for taking an interest.

                          Here are some more details:

                          The mattress I am currently using is called a MaxxAir ETS and it is made by KCI.

                          I am in my bed longer than I am in my wheelchair. I am only in my wheelchair about seven hours per day. The bottom cushion I use is a J2 Plus and the cushion for my back is a combination of two different kinds of foams. Fortunately, I just got approved for a new wheelchair including Aspen RIDE cushions for both my bottom and my back. Hopefully, that will help while I'm in my chair. Do you have any input about that kind of cushion?

                          The open sore on my back is getting better. I just returned from a visit with the plastic surgeon that is following the progress of my sore since this spring. I have had a wound vac on it since June 10. When it started with this wound vac (this is my third time with a wound vac in 18 months) the sore was 7 cm deep and 8x4cm outside. It is now a little less than 3cm deep and 1.2x0.9cm outside. The problem with this sore is that it doesn't heal from the inside out... the outside always wants to close first. This is about the shallowest we have been able to get it. Since I have had this wound vac, I've been sleeping on my side for close to five hours a night. My father, who is 75 years old, has been getting up to turn me at 3 AM each night. I don't know how much longer the two of us can keep it up though.

                          I've been trying to find out what kind surfaces I should be on to help with the skin problems I have now and help to prevent any future problems. It was a long, difficult road but I was finally able to convince my insurance company (who has extremely limited experience with quadriplegia) to approve the new wheelchair and seating system, but I still don't even know what kind of mattress would work best for me. Only when I have one picked out can I begin to take on the battle with the insurance company. Their so-called wound expert has left it up to me to find a mattress.

                          I would truly welcome any input. Thank you so much.
                          Last edited by Tanta; 28 Aug 2010, 6:27 PM.

                          Comment


                            #14
                            Hello,

                            There are 2 turning mattresses that you could check out and see if they seem to have what you are looking for. Triline or Turn Q. I do not have athe site but should be able to google search them. We have had good luck with the Dolphin mattress but this does not turn.

                            If the sore is still deep you may consider a clinitron tub or right height, but these are usually rented and are very expensive. I have never heard of anyone purchasing them as tehy are considered for treatment and too expernsive for prevention. These do not require a person turn to relieve the pressure as they are sand bed types but turning does also help your lungs and heart. Let me know if you have other questions.

                            AAD
                            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                            Comment


                              #15
                              Hands down that the tempurpedic is the best bed for pressure sores and preventing them. I have had mine for years now and haven't had a sore yet (knock on wood!!) They are so comfortable and wouldn't ever go back to a normal mattress again. It's a little pricy,but well worth it. Better to pay high price for an amazing bed that can help with your issue, then have risk for a pressure sore and hospital time,money, ect... Hope this helps...

                              Here's the website to check it out!!
                              www.tempurpedic.com

                              Also, I know they used to do a thing where you can do a trial for a certain amount of time to see how you like the bed...Goodluck!
                              God is good

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