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    Botox for bladder

    Anyone had this done or know the pros and cons???

    #2
    Originally posted by newbee View Post
    Anyone had this done or know the pros and cons???
    Have you done a basic search yet? There are countless threads on the topic.
    stephen@bike-on.com

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      #3
      Discussed here many times in the past. A search on this site right now using the terms "bladder + Botox" resulted in 458 results. Please review a few threads:

      http:///forum/showthread.php?t=12585...=botox+bladder

      http:///forum/showthread.php?t=13324...=botox+bladder

      http:///forum/showthread.php?t=12930...=botox+bladder

      http:///forum/showthread.php?t=12497...=botox+bladder

      http:///forum/showthread.php?t=12656...=botox+bladder

      http:///forum/showthread.php?t=11669...=botox+bladder

      (KLD)
      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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        #4
        thanks!

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          #5
          k you said your practice uses 300 units of botox right? I'm being told there's been no real difference shown between 200 and 300 units [tho I don't know hw many sci'd patients they have]. do you know of any studies I can use as evidence or is it still anecdotal?
          Embrace uncertainty. Hard problems rarely have easy solutions. Jonah Lehrer

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            #6
            I just got botox'ed a couple weeks ago. My Uro uses 200 units(thankfully since it was OOP), and did 20 spots.

            He did a clinical study, that I missed out on, but it was not on the amount of botox, just it vs. a placebo. It is not done yet, so no pub results.

            For me, I seem to have gained about 50% more capacity, and almost no leaking. I'm happy so far.
            "a T10, who'd Rather be ridin'; than rollin'"

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              #7
              Originally posted by McDuff View Post
              I just got botox'ed a couple weeks ago. My Uro uses 200 units(thankfully since it was OOP), and did 20 spots.

              He did a clinical study, that I missed out on, but it was not on the amount of botox, just it vs. a placebo. It is not done yet, so no pub results.

              For me, I seem to have gained about 50% more capacity, and almost no leaking. I'm happy so far.
              cool sounds good mcduff keep us postedim thinking of the botox too
              to alcohol the cause of-and solution to-all of lifes problems [homer simpson]

              Comment


                #8
                Originally posted by leschinsky View Post
                k you said your practice uses 300 units of botox right? I'm being told there's been no real difference shown between 200 and 300 units [tho I don't know hw many sci'd patients they have]. do you know of any studies I can use as evidence or is it still anecdotal?
                bump for kld

                thanks mcduff
                Embrace uncertainty. Hard problems rarely have easy solutions. Jonah Lehrer

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                  #9
                  Originally posted by McDuff View Post
                  I just got botox'ed a couple weeks ago. My Uro uses 200 units(thankfully since it was OOP), and did 20 spots.

                  He did a clinical study, that I missed out on, but it was not on the amount of botox, just it vs. a placebo. It is not done yet, so no pub results.

                  For me, I seem to have gained about 50% more capacity, and almost no leaking. I'm happy so far.
                  Your uro is likely part of the same nationwide Allergan-sponsored Dignity study as mine, in which two different strengths of Botox (200 units and 300 units) were being compared to placebo, not just one. The study, btw, is still being conducted, however the trial is now closed to new participants.

                  I just passed the one-year mark for my second injection procedure as a participant in the Allergan study (the makers of Botox) and based on the duration of my results thus far, it seems likely that I received 300 units (30 injection locations). I'm entitled to 11 more procedures over the next 3 years (though clearly I won't need more than a small handful) all guaranteed to be at the same dosage strength, per the study's protocol.
                  stephen@bike-on.com

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                    #10
                    I have had the injections twice. I do not recall the numbers, but was told that per protocol, I was being started at the lower dosage. It helped but could have been better. Second round was a higher dosage and it made a huge difference.
                    Adaptive Sports Forums.com
                    http://adaptivesportsforums.com
                    Non-commercial adaptive sports user community

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                      #11
                      Our protocol is for 300 units (3 vials of 100 units each) for each procedure.

                      (KLD)
                      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                      Comment


                        #12
                        Originally posted by My395 View Post
                        I have had the injections twice. I do not recall the numbers, but was told that per protocol, I was being started at the lower dosage. It helped but could have been better. Second round was a higher dosage and it made a huge difference.
                        Where in Cal did you go?

                        Stephen it was your experience I related to my doc's nurse after she said there was no real difference, I'm waiting to hear back if he'll do the 300, sigh. prima donna docs.

                        thanks kld.
                        Embrace uncertainty. Hard problems rarely have easy solutions. Jonah Lehrer

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                          #13
                          Originally posted by leschinsky View Post
                          Where in Cal did you go?
                          USC in Los Angeles. The doctor is very experienced with SCI. I believe that he does a lot of Botox treatments.

                          It has been 8 months since my last treatment. I'm going again on the 18th and can get specific information if you'd like.
                          Adaptive Sports Forums.com
                          http://adaptivesportsforums.com
                          Non-commercial adaptive sports user community

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                            #14
                            thanks but my procedure is unfortunately on the 15th.
                            Embrace uncertainty. Hard problems rarely have easy solutions. Jonah Lehrer

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                              #15
                              well I got my way, he gave me the 300 units. I hope it works longer than the 200 did.
                              Embrace uncertainty. Hard problems rarely have easy solutions. Jonah Lehrer

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