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    ? about bladder botox

    ive been just about burned out on meds so im thinking botox but will i get to used to it the meds worked for a long time but seem to have built a tolerance so i thought idask and see if the same thing happens with botox thanks for any advice or input oh and how long have you been on botox is the only way to urinate is cath or do you still leak thanks
    Last edited by wheelin 48; 30 Mar 2010, 7:35 PM.
    to alcohol the cause of-and solution to-all of lifes problems [homer simpson]

    #2
    I have had botox once so far, will be going in soon for another round. If I remember correctly there is the potential for your bladder to stop responding after while. Meaning years though, or after multiple treatments. Everyone is differnt though. All you can do is try it and see if it works. I know it has changed my life.

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      #3
      Last Wednesday I had my bladder Botoxed and some stones removed. Over the years I've probably had it done 5 or 6 times all of which was done under general anesthesia. Make sure they monitor your blood pressure and don't be alarmed if your urine has some blood in it for a day or two. Good luck!

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        #4
        if you get botoxdo you still leak at night or do you cath i wear a condum cath at night for leakage
        to alcohol the cause of-and solution to-all of lifes problems [homer simpson]

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          #5
          Some people, but not all, become less responsive to bladder Botox with repeated injections. It is very individual. If Botox fails, then an augmentation may need to be considered.

          Bladder (detrussor) Botox is nearly always used for people on intermittent cath to increase capacity and prevent leakage. It would rarely if ever be appropriate for someone using reflex voiding, because it paralyzes your bladder and would cause you to develop major retention problems.

          (KLD)
          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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            #6
            I've been getting botox for about 4 years now...pretty routinely every 6 months even if it hasn't wore off yet. I don't leak. I cath about every 6 hours..and go all night which is about 8-9hrs. No problems with UTI's. I just had another treatment on Friday and I asked my doctor if I will get immuned to it and he told me that immunity to botox is uncommon. He said the effects it has on people is different for everyone tho. I receive mine right in the office- quick & easy.
            Life is like a box of chocolates, you never know what you're gonna get.

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              #7
              That's interesting KLD. I have found Botox injections to be more responsive with repeated injections. 90+ percent of my A/D is a result of my bladder. I was once told by one urologist that I had a "twitchy" bladder. How's that for a medical term? I have a SP catheter and the only time I leak is when my catheter is clogged and I am having some massive A/D by that time. Should I be concerned about how my bladder empties? The urologist I have now seems pretty good and I've trusted her recommendation so far.

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                #8
                As long as you have an indwelling catheter, bladder Botox will not interfere with bladder drainage, but it would if you were to decide to try to change over to reflex voiding (condom catheter) since you would most likely not "kick off" at all.

                (KLD)
                The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                  #9
                  Thanks, KLD.

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                    #10
                    kld so id be ok with botox id just have to cath at night too right
                    i cath 6 or 7 times a day due to leaking and just wear the condum at night so id gladly cath at night if i didnt have to do it ever 2 hours hope im making sense hear
                    to alcohol the cause of-and solution to-all of lifes problems [homer simpson]

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                      #11
                      Originally posted by gurly2356 View Post
                      I've been getting botox for about 4 years now...pretty routinely every 6 months even if it hasn't wore off yet. I don't leak. I cath about every 6 hours..and go all night which is about 8-9hrs. No problems with UTI's. I just had another treatment on Friday and I asked my doctor if I will get immuned to it and he told me that immunity to botox is uncommon. He said the effects it has on people is different for everyone tho. I receive mine right in the office- quick & easy.

                      sounds like you have it figured out do you just watch your fluid intake during the day
                      to alcohol the cause of-and solution to-all of lifes problems [homer simpson]

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                        #12
                        Originally posted by wheelin 48 View Post
                        kld so id be ok with botox id just have to cath at night too right
                        i cath 6 or 7 times a day due to leaking and just wear the condum at night so id gladly cath at night if i didnt have to do it ever 2 hours hope im making sense hear
                        You dont have to cath at night. It stopped all my leaking, I can sleep 8-9 hrs straight. Now if u drink too much before you go to sleep you could wake with 800cc+ which is bad. So dont over drink just cause u stop leaking at night. I was cathing the same amount of times as you before botox, now it is 4-5 times a day, and only once in awhile I have to wake up and cath at night. Usually do to the fact that I drank too much before going to bed.

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                          #13
                          Originally posted by wheelin 48 View Post
                          kld so id be ok with botox id just have to cath at night too right
                          i cath 6 or 7 times a day due to leaking and just wear the condum at night so id gladly cath at night if i didnt have to do it ever 2 hours hope im making sense hear
                          You wouldn't have to wear the condom at night because you wouldn't be leaking and you might not have to cath at all during the night. Limit your fluids after a certain time, cath before bed & you should be good to go with no condom or cathing during the night.
                          Life is like a box of chocolates, you never know what you're gonna get.

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                            #14
                            cool thanks for the help i may check on the botox
                            to alcohol the cause of-and solution to-all of lifes problems [homer simpson]

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                              #15
                              Just wanted to update..I had botox on March 26 had some bleeding that nite, but had stopped by the next morning. Was clear all week & then thursday (April 1) had blood again. The blood was so bad it was clogging my cath & I wasn't able to drain all the way. I got really bad AD worst I've ever had thought I was going to die! I called 911 and then was admitted into the hospital. They spent two days irrigating my bladder to get rid of clots & blood then sent me home on Saturday with a foley. They sent me home with bloody urine still & about 3 hours after I was home I was calling 911 for myself again. I had AD again & the cath was clogged there was nothing I could do for myself. In ER they got a ton more clots out & then they hooked me up to an IV for a lot of fluids and put me in a room. During the night I had to call the nurses twice to get me unclogged cuz I was experiencing AD. Finally after the removal of all those clots my urine started getting clear & they really pumped the fluids to me. I got discharged last nite from the hospital and my urine has looked like water ever since. Really hoping I am done with that problem!!! I just wanted to share this with others as I have been getting botox for 4 years with no problems, and this was a huge suprise to me. I'm not sure what the doctor can do after botox so that this doesn't or if its just a chance u can take..just want to aware you of what happened to me.
                              Life is like a box of chocolates, you never know what you're gonna get.

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