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  • Syrinx question

    Hello everyone.
    Thanks for this forum.
    I have had an arachnoid shunt installed at c7 sor a syrinx after I came back from a snowmobiling trip (my 4th as a para), when I took off my gloves, my hands were rubbed raw and I didnt feel it happening. This surgery was done in May of 2002. My original injury is T6-T12 due to an astrocytoma of the spine. The para deal happened in 1992.

    I am working and still active. However, recently I have been feeling stuff which I havent felt before....i.e. a very prickly(this is more uncomfortable than one may think) like stinging in my right leg, (I havnt felt stuff in my right leg in years), my arms and hands have been tingling more recently, and the tingling in the torso has also increased. I had a cervical and thoracic mfi w/ and w/o contrast done in April. The report is that it was status quo. How is a person supposed to decide if something crazy is going on or what? Since I work and do have insurance (for which I am very grateful for), the co-pays for MRI's can get costly.
    You know I really am not worried about running a mile anymore, 'cause I can get in enough trouble from a chair!......The discomfort is what sucks! .....Any ideas?

  • #2
    Are you sure that your shunt is working? That would be the first place I would start.
    Do you have a neurologist that has been working with you? If so, I would give him/her a call - if not, that might be a place to begin.
    CKF
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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    • #3
      My shunt has moved and the last time checked showed a lot of scar tissue. I refuse to have another surgery unless I notice some loss in my tri-cepts. Spinal surgeries are too dangerous.

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      • #4
        Short of a MRI showing changes, I would agree with you about the surgery. However, if you start having problems, you need to talk to your doctor. I am sure you are aware of the symptoms of a syrinx- the biggest being a neurologic change in motor and/or sensory function as well as sometimes pain. Please keep a check on it.

        CKF
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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        • #5
          Thanks.
          Are Craig or Miami still the places to go?

          Comment


          • #6
            yes, miami, dr. alan levi or dr. falci(?) i think colorado?

            http://neurosurgery.med.miami.edu/x66.xml?id=34789

            personal experience with Dr. Levi, my son had a shunt placed by him, twisted onced easy surgery to fix very personable and straigforward.

            http://www.craighospital.org/sci/rehabneurosurgery.asp
            "That's not smog! It's SMUG!! " - randy marsh, southpark

            "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


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            • #7
              Originally posted by lunasicc42 View Post
              yes, miami, dr. alan levi or dr. falci(?) i think colorado?

              http://neurosurgery.med.miami.edu/x66.xml?id=34789

              personal experience with Dr. Levi, my son had a shunt placed by him, twisted onced easy surgery to fix very personable and straigforward.

              http://www.craighospital.org/sci/rehabneurosurgery.asp

              Thanks a bunch!

              Comment


              • #8
                Let us know how you make out.
                CKF
                The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                Comment


                • #9
                  I have had spinal surgery and the surgeon was Allan Levi, may I suggest that you look for a different surgeon as well as a different hospital. If you wish to discuss this further I would be more then happy to relate the gory details of that nightmare!!

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                  • #10
                    Saltyone, with a totally blank profile, your comments will not bear much credibility here. Please complete it if you want to be taken seriously.

                    (KLD)
                    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                    Comment

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