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    Vitamin D deficiency question...

    So I was told by my doctor today that I have a very large vit D deficiency. I have been given a prescription for Ergocalciferol 50,000 units once per week for 12 weeks then I have to go back and have my levels redrawn. I was just wondering if anyone has taken this. If this is an appropriate dosage, etc. Thanks for the info in advance!!

    Becky
    T8-9 according to latest scoring.......
    since 1/3/04

    I am the best at being me. No matter how that happens to be!!

    #2
    This drug is used to treat extreme vitamin D deficiency and rickets. I am concerned that your PCP is not going to do any tests sooner than 12 weeks though. The boundries between a therapeutic and toxic dose are very close with this drug.

    According to RxList, you should be monitored like this:
    Blood calcium and phosphorous determinations must be made every 2 weeks or more frequently if necessary. X-rays of the bones should be taken every month until condition is corrected and stabilized.
    although this is for DAILY (not weekly) dosing.

    I would recommend that you read this material and then call your physician and ask about the need for more close monitoring with this.

    http://www.rxlist.com/calciferol-drug.htm

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

    Comment


      #3
      Thanks so much KLD!! I will call my PCP first thing in the morning. She did say that my deficiency was severe. I was shocked because I drink a lot of milk. Thanks so much for the info!!!

      Becky
      T8-9 according to latest scoring.......
      since 1/3/04

      I am the best at being me. No matter how that happens to be!!

      Comment


        #4
        I would try eating lots of tuna & salmon, all dairy product & spending at least 10 minutes a day in the sun. If you like fish, cheese and sunshine it will definitely help you both physically & mentally!

        Try catching the morning sunshine on your face if possible. It will improve lots of things. Really.
        ____________________

        "We are the ones we've been waiting for. We are the change that we seek."
        - Barack Obama

        Comment


          #5
          Thanks so much Flicka, I do eat lots of fish. I love Tuna . I also get a good deal of sun already. I know by looking at me you wouldn't be able to tell . But seriously I am outside quite a bit. Thanks again for the advise.

          Becky
          T8-9 according to latest scoring.......
          since 1/3/04

          I am the best at being me. No matter how that happens to be!!

          Comment


            #6
            I was also diagnosed with Vitamin D deficiency and prescribed 50,000 units weekly. I was advised to come back and get retested, it was two months, I think. Since then I have been advised to continue on with the same dose weekly, and had my level checked again with my yearly exam last winter. So, I had my PCP prescribe this too. Since my initial diagnosis and treatment my PCP left the practice and I switched to another practice. My new PCP has taken over refilling the prescription and checking my levels, and he also agrees that 50,000 units weekly is advisable.

            I did some brief research on the net about Vitamin D deficienct treatment. While this doesn't make me any expert on the subject, it leads me to believe that we are getting treated appropriately.

            Comment


              #7
              /forum/showthread.php?t=108669&highlight=vitamin

              here's my thread about vit d deficiency. it has a lot of good info there about drisdol.
              Never take life seriously, nobody gets out alive anyway

              Frank's blog:
              http://www.franktalk-scurry.blogspot.com
              My regular blog:
              http://www.ithinkithinktoomuchblog.blogspot.com

              Comment


                #8
                Cali, thank YOU for posting your thread~

                I also am in the midst of treatment for Vit. D deficiency. I am going to go back and read that entire thread tomorrow (Fri..today really) when I am more awake...lol.

                I am taking 50000 IU per week of Vitamin D, manufactured by Pliva.

                Sorry to hear y'all have the condition too, but at least glad to know we are in this together.

                KLD, thanks for your info here, and on the other thread too...

                Comment


                  #9
                  Thanks Cali (Teena beat me to it ). I was just wondering if they did any additional monitoring and how often they did it. The monitoring that is. Are you still taking the 50.000 IU?

                  Becky
                  T8-9 according to latest scoring.......
                  since 1/3/04

                  I am the best at being me. No matter how that happens to be!!

                  Comment


                    #10
                    Becky, same problem here. I was put on 50,000 units too, and blood monitoring every three months. It was OK for me and my levels rose. Then I came off it and they fell again. Apparently my body just doesn't utilize enough of what is available in food and sunshine. Now I am back on the high dose again.

                    Comment


                      #11
                      i took the drisdol for i think a month, i can't remember off hand. then they took a blood sample and that was it. i haven't taken anything other than the calcium and vit d supplements since.
                      Never take life seriously, nobody gets out alive anyway

                      Frank's blog:
                      http://www.franktalk-scurry.blogspot.com
                      My regular blog:
                      http://www.ithinkithinktoomuchblog.blogspot.com

                      Comment


                        #12
                        Becky, do you take steroids/prednisone (sp.?)? If so, that can zap your vitamin D.
                        "The truth will set you free. But first, it will piss you off." -Gloria Steinem

                        Comment


                          #13
                          Well, I talked with the doctor today and asked about monitoring and she said I didn't need to be monitored which really shocked me from reading what KLD said and sent. I am going to be taking this for three months and after three months she is going to re check my vit d and calcium levels but thats it. It just seems very weird that she isn't going to check it until three months. I am being stupid or does that seem odd to anyone else?

                          Danine, I am not on steroids. I haven't taken steroids since I was about two yrs old.

                          Becky
                          T8-9 according to latest scoring.......
                          since 1/3/04

                          I am the best at being me. No matter how that happens to be!!

                          Comment


                            #14
                            Becky,

                            I also recently found out that I was Vitamin D deficient. My count was 9, and the Dr. told me the count for an adult should be between 40 and 50. I am taking 15,000 mg of Vitamin D3 a week. I just had my second blood test in two months but have not gotten the results yet.

                            I also found out that the Didronel, which I have been taking for the last 10 years for my HO is what was zapping all the Vitamin D out of my body.

                            Since I have been taking the Vitamin D I get really bad joint pain, the Dr. told me that is normal because your bones are re mineralizing.

                            Comment


                              #15
                              Originally posted by bcsimpsons View Post
                              Danine, I am not on steroids. I haven't taken steroids since I was about two yrs old.
                              I had low Vitamin D once after taking high doses of steroids for an extended period of time.

                              My doc just told me to spend more time in the sun, but I'm sure mine wasn't as severe as yours.

                              Hope you get this fixed real soon!
                              "The truth will set you free. But first, it will piss you off." -Gloria Steinem

                              Comment

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