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    living with one kidney?

    Well, after having to have a very large staghorn kidney stone removed two years ago, and relapsing last year with a blockage which forced everything out of the surgery site in my back in the form of an abscess (lithotripsy's & nephrostomy's galore what fun) and apparently the same thing happening again, I'm off to the hospital in the morning to verify... my Doc seems to think that removing the troubled kidney is the best course of action!

    So my question is...?

    What should I expect as a C5 quadriplegic having to live with only one seemingly in really good condition kidney?

    If anybody has any information I would be extremely grateful if you shared, I feel somewhat in the dark as I could not find much information on the net and have not been able to talk things over with my Doc yet.

    Questions going through my mind are things like...

    1. Will I have to make dietary changes?
    2. How long can a quadriplegic go on one kidney before needing extra help like from dialysis?
    3. Is this going to flush my life expectancy down the toilet?
    4. Anything else you can think of?

    I'm going to be 30 this month, been sitting down since I was 16 thanks to a miscalculation at the beach diving into the water :-)
    I don't smoke, I only drink on special occasions, and I eat relatively healthy!
    On average I get through about six 32 liquid ounces (big gulps) of water a day plus a few cups of tea if this helps any, I am also fortunately on very little medication.

    So, there you go, my problem, any helpful response would be greatly appreciated
    Thanks
    Delbarto
    ¡ Más Vale Cholo - Que Mal Acompañado !

    #2
    My husband is a C5 and only has one working kidney. His other kidney is not working due to having backpressure from his bladder. They told him that there should not be any ill effects from only having one working kidney, as long as the one that is working keeps working properly. At this point it is important to take care of the working kidney. Dialysis is not needed unless the other kidney quits working.
    Rosie, wife to Bobby
    C5 due to MVA in 1981

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      #3
      One of my sisters donated a kidney to one of my brothers about 10 years
      she's doing fine, hasn't done anything different
      We must reject the idea that every time a law's broken, society is guilty rather than the lawbreaker. It is time to restore the American precept that each individual is accountable for his actions.
      Ronald Reagan

      Comment


        #4
        My mother had a kidney removed (due to a tumor) in 2001. Didn't have to change her life at all.
        Alan

        Proofread carefully to see if you any words out.

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          #5
          I have a c-5 friend who has been doing fine on 1 kidney for over 30 years. He is working full-time, and has not made any life style changes because of the kidney other than being certain to get urological checkups as recommended by his doc.

          If the remaining kidney has major probems, there may be issues.
          You will find a guide to preserving shoulder function @
          http://www.rstce.pitt.edu/RSTCE_Reso...imb_Injury.pdf

          See my personal webpage @
          http://cccforum55.freehostia.com/

          Comment


            #6
            I'm 30 and have never had two kidneys. C-5 quadriplegic for six years now. No troubles.

            That is a boatload of water by the way

            Comment


              #7
              Whether or not you have a spinal cord injury or not, having one kidney does not necessitate making major changes to your life. You should be able to live a healthy, long life as long as you take care of it. The amount of fluids that you drink is certainly a step in the right direction. You don't mention what type of bladder management program you are on. I would definitely ask your doc if that would be effected by removing one kidney.

              CKF
              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

              Comment


                #8
                im c6-c7 with one kidney, it ruptured along with my spleen when i got hurt. So far i cant tell the difference, did the bladder study twice, good pressured and flow. Every 4-6 hours or so empty it out, dont smoke and rarely drink alcohol, but drink about 2.5 liters of water some tea and juices. I am taking Oxybutinin 10mg 3 times daily for blader and like others sayed take care of it.
                c6/7 incomplete 6/30/07

                whats that smell? its me, cause im the shit.


                если я сейчас умру то нахуй я родился

                Comment


                  #9
                  Originally posted by SCI-Nurse View Post
                  Whether or not you have a spinal cord injury or not, having one kidney does not necessitate making major changes to your life. You should be able to live a healthy, long life as long as you take care of it. The amount of fluids that you drink is certainly a step in the right direction. You don't mention what type of bladder management program you are on. I would definitely ask your doc if that would be effected by removing one kidney.

                  CKF
                  I used condom catheters and had to stimulate my bladder roughly every two hours by banging it irepeatedly by hand in the pubic region, I do apologise for not knowing the name of this method properly in English as I had my accident in Spain.
                  I was often retaining, never fully emptying and felt like my life was dominated by this!

                  I now use a suprapubic catheter which is changed frequently and have much less problems from it, I also feel I have regained a lot of my life back!

                  Unfortunately the damage was already done...
                  ¡ Más Vale Cholo - Que Mal Acompañado !

                  Comment


                    #10
                    Originally posted by SCI-Nurse View Post
                    Whether or not you have a spinal cord injury or not, having one kidney does not necessitate making major changes to your life. You should be able to live a healthy, long life as long as you take care of it. The amount of fluids that you drink is certainly a step in the right direction. You don't mention what type of bladder management program you are on. I would definitely ask your doc if that would be effected by removing one kidney.

                    CKF
                    I used condom catheters and had to stimulate my bladder roughly every two hours by banging it irepeatedly by hand in the pubic region, I do apologise for not knowing the name of this method properly in English as I had my accident in Spain.
                    I was often retaining, never fully emptying and felt like my life was dominated by this!

                    I now use a suprapubic catheter which is changed frequently and have much less problems from it, I also feel I have regained a lot of my life back!

                    Unfortunately the damage was already done...
                    ¡ Más Vale Cholo - Que Mal Acompañado !

                    Comment


                      #11
                      thank you everybody for your wide and varied feedback, it is really appreciated and I'm feeling quite reassured that if the kidney has to come out I will do okay!

                      They have done various tests today to see what is going on and it appears to be that a blockage is forcing the urine to come out of my lithotripsy surgery site on the right-hand side of my back rather than drain down through my ureta into my bladder (I think I got all that right)
                      this is the second time it has happened and in between I have been suffering from a lot of uti's, the only time I felt relief was when I had a stent in the ureta helping urine drain from my kidney down into my bladder more freely.

                      over the last three years I have probably spent more than half of it feeling unwell due to the problematic kidney, hence the consideration for removal!

                      once again, I thank you all and I do feel a lot better and prepared if it has to be done and that is thanks to all of you!

                      Please keep sharing in case this is helpful to anybody else going through a similar situation and I plan to continue doing so myself!

                      Thanks
                      delbarto

                      PS it does seem like a lot of water, but I just keep my "big gulp" next to me at all times and I get through it easily... and crystal light keeps it interesting...
                      ¡ Más Vale Cholo - Que Mal Acompañado !

                      Comment


                        #12
                        Hi delbarto,

                        I have a c1-c2 SCI and I also had one kidney removed a couple of years ago. It didn't make a difference in my life. However, history repeated itself and I lost a second kidney. I'm 5 years on dialysis now waiting for a transplant. I'm convinced that losing one kidney does not necessarily result in dialysis but it's just a fact that you don't have a backup kidney anymore if the same happens with your second kidney (which could be a reality with SCI and uncontrollable bladder and kidney problems).

                        Good luck!

                        rh

                        Comment


                          #13
                          I had my right kidney removed about six weeks ago. Apparently I got a stone stuck somewhere which virtually killed my kidney.

                          I think it started last October when I ended up in intensive care with sepsis. I came within a hair's whisper of dying but luckily pulled through. It was then found that I was suffering from kidney stones. They removed a large stone to my left kidney and that seems okay now. But the right one was fattys leg.

                          This has been a really awful period of my life. I was very silly, I didn't go and get my kidneys checked for quite a few years. You are at a higher risk of developing stones when you suffer from a spinal injured,get yourself checked at least once a year.
                          http://www.tetraplegicliving.com

                          http://www.Oscarfishlover.com

                          Comment


                            #14
                            I had my left kidney removed on June 1st. They found cancer with a ct scan and I'm lucky it was contained in the kidny.

                            I don't notice any difference. I wish you a short recovery time. Good luck.

                            Comment


                              #15
                              You really shouldn't notice any difference with one or two kidney's .... As long as you remain vigilant about your renal care, you should do well.
                              CKF
                              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                              Comment

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