Announcement

Collapse
No announcement yet.

Help with bowel care.

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Help with bowel care.

    My husband was injury occurred on 4/25/09. We are still in Inpatient rehab at Frazier Rehab. He is a T12 complete. We are having a really hard time with his bowel program. He is currently taking colase and miralax twice a day. We do his bowel program everynight around 7:00. It's about 45 minutes after he eats supper. He lays on his side and I check for any stool, then I insert the enenmes, we wait about 25 minutes and then I do dig stem. He then transfers to a regular toilet, waits 15 mins and I dig stem him again. We do this for what seems like FOREVER. It starts hurting his back sitting there so long. He is sooooo frustrated. Can anyone tell me why it takes so long and we are still not seeing any results. They have done a scan/x-ray on his stomach to see if he is impacted but it showed clear. Any advice. Thanks

    #2
    IF his poop is coming out hard, add fiber to his diet along with magnesium citrate. Walmart sells fiber capsules and your husband could add one capsule with breakfast and one with dinner. Same with magnesium citrate.

    Comment


      #3
      Hello Darrels Wife,
      Thanks for being there for your husband. So sorry to hear he's having such a hard time with his BP. Have you tried the Magic Bullet suppository at all? Since his injury is new it might behoove him to have colostomy surgery. I have known of others that have an SCI that had the surgery early on after being hurt & they said it's the best decision they ever made. It will free you both up w/having to go thru what you both have been experiencing every night after he has eaten his dinner. There's no shame having a bag hanging on his belly. No one will ever now unless he chooses to tell them that he has a colostomy Check out the United Ostomy Association (uoaa.org web site which has a FORUM. Also do a GOOGLE search on this site & type in Colostomy & it will direct you to all the threads on Colostomy's.
      I've been experiencing bowel problems for a long time myself & I might wind up having the surgery myself. I've been diagnosed with redundant colon in other words I have more colon then I really need so it has slowed down the motility of my bowels. Keep us all posted here on how your both making out. I'm sure others here will chime in. You can always direct your question to the SCI Nurses & to Dr. Wise Young the developer of this fantastic site.

      Comment


        #4
        Its all starts that way(at least for me), i sat on the throne for a an hour sometimes longer(still do). 1 stool softener 2 laxatives daily and a magic bullet when its time. Dairy products daily and warm drink before i go helps. Bowels is the biggest stress.
        c6/7 incomplete 6/30/07

        whats that smell? its me, cause im the shit.


        если я сейчас умру то нахуй я родился

        Comment


          #5
          How about a raised, padded toliet seat? Would that take the strain off his back while he's sitting? It helps me pass the time if the TV is on where I can get lost in it rather than focus on the time I'm sitting.

          As to helping him "go"... well, that's all about finding the right combo of fiber and water in his diet. Most SCI's process food slower so what goes in today, might not come out until 3 days from now... or 20 minutes from now depending on how you're regulatated. Some folks have good luck adding Activia or flax seed to their diets. I'm sure one of the nurses will be by here to elaborate.

          Also, unless there is some additional issue other than his SCI, at his level, he can and should do his own bowel care. That's a major step to independence. There are reachers, wipers, etc to help if his ROM is compromised in some way.

          good luck.
          My blog: Living Life at Butt Level

          Ignite Phoenix #9 - Wheelchairs and Wisdom: Living Life at Butt Level

          "I will not die an unlived life. I will not live in fear of falling or catching fire. I choose to inhabit my days, to allow my living to open me, to make me less afraid, more accessible, to loosen my heart until it becomes a wing, a torch, a promise. I choose to risk my significance; to live so that which comes to me as seed goes to the next as blossom and that which comes to me as blossom, goes on as fruit."

          Dawna Markova Author of Open Mind.

          Comment


            #6
            takes a while to get it right, i'm the opposite of most, i take no fibre, no pills etc, maybe one calcium/vitamin D pill before lunch, don't drink nothing but pepsi's all day, do my BP tuesday and friday morning when I wake up, but i'm 31 years post, c8, sure the beginning was this easy
            We must reject the idea that every time a law's broken, society is guilty rather than the lawbreaker. It is time to restore the American precept that each individual is accountable for his actions.
            Ronald Reagan

            Comment


              #7
              Flaxseed oil added to his diet should help against constipation without giving him watery stools.

              I sit in my shower chair/commode, insert magic bullet (although I hear emineze works faster) eat breakfast, drink hot liquid beverage (coffee!!) and presto.

              (ok ok takes about 30-45 minutes but still.)
              And the truth shall set you free.

              Comment


                #8
                On Tuesday, ask your Doctor if your husband might have a lower motor neuron bowel. If
                so, suppositories and dig stim will be of no use. The answer will be dietary modification, Fibercon and rectal vault evacuation.

                Comment


                  #9
                  My daughter is T12, functional level L1. In rehab (left rehab 12/23/08) she would have temper tantrums because they would leave her in the bathroom so long. When we got home we tried what they said, but the magic bullet didn't seem to do much. Instead of making her sit so long I just removed the stool and got her off the toilet as fast as possible. The magic bullet made her stomach hurt and really didn't do much of anything. After being evaluated at Kennedy Krieger we found that she doesn't have a reflex, is flaccid and why the magic bullet really wasn't working. They confirmed that just removing the stool was the way to go and keep her somewhat constipated so she doesn't have accidents. Since then she hasn't had any accidents. She is now doing her own bp daily most days and still hasn't had an accident.

                  Comment


                    #10
                    At t12 why isn't he doing it on his own?

                    Comment


                      #11
                      I think trying everyday is what you need to get away from. Try an every other day program. Then try getting away from the colace and miralax, you need to at least try developing a program without any type of interventions, especially if you can feel when you have to go. Bottom line is that it takes time to get a system worked out.

                      Comment


                        #12
                        Thanks everyone. I am helping him with his BP because he is still in a shell and very hard for him to get in certain positions. He will be doing it on his on as soon as the shell is off. I think that might be some of the problem...He isn't very comfortable with me doing this stuff. He can't feel when he needs to go or how to push. i think we need to try it every other day.

                        Comment


                          #13
                          I agree. Why isn't he doing his own BP, since he has full use of his arms and hands? Personally, if it were me, I wouldn't want my spouse sticking their finger up my butt if I could do it myself. I found others doing suppositories and dig stim to be the most humiliating part of my entire SCI experience, shot the hell out of what little modesty I had left at that point. I question why rehab isn't promoting him to be more independent. Shoot, I was a quad, had no use of my hands yet and they were working with me on self-cathing, dressing, and stuff, as difficult/frustrating (ever tried to put on socks without using your hands?) as it was. They pushed the hell out of me, I used to tell my OT she was as mean as a snake, and my PT that she was a sadist. I am forever grateful to them, and I told them that too.

                          Is your husband depressed? I think he will feel better about himself the more he can do for himself and the less he needs to rely on others. I think that relying on your spouse is especially tricky and gets into dangerous territory. SCI is tough enough on a marriage without adding additional unnecessary stressors to the mix. Just my humble opinion, from somebody whose marriage of 15 years, like many, did not survive, due to the stress of caregiver related issues.

                          P.S. I just read your last post, it wasn't up when I wrote this. Why can't the staff do his BP? At Cardinal Hill, they always did mine, my husband never did it, or the cathing, couldn't imagine them have even asking him to, he would have freaked. Will his shell come off before he leaves, or will he be discharged with it, and that is why they need to have you know how to do it?
                          Last edited by dunwawry; 25 May 2009, 1:08 PM. Reason: added P.S.

                          Comment


                            #14
                            Yes dunwawry, he will still have his shell on when he leaves inpatient. He is being discharged in 2 weeks. We are going to be living here in louisville, ky so that we can do his outpatient at the same rehab. (Frazier Rehab). He will have to keep his shell on for another 2 months after discharged from inpatient. They have taught me how to do his BP, cath, and giving him a shot in his stomach (for clots). He is dong his own cathing now. He found a cath that he really likes. He doesn't even have to get out of the wheelchair. He just pulls up to the toilet. I have been doing everything else. He wants to do it himself but cannot reach everything. He has to have the shell on when he is sitting up higher than a 30 degree angle. He gets so frustrated with the BP. That is the only area that he is having problems. Therapy is going great, his spirits is up (for the most part...he has his days). Could the bowel problem be why he gets sick at his stomach sometimes?

                            Comment


                              #15
                              A big improvement on my bp was to increase my water intake and eat smaller meals to let everything digest properly. I still go every day, take miralax only if my poop is a bit harder the night before and try to have a hot beverage 30 min before BP.

                              Comment

                              Working...
                              X