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    #61
    Originally posted by Adrian View Post
    I was injured in 1998 and have only had one pressure sore so far. That was caused a by a stone on my kayak seat that I did not see when I got in and we paddled about eleven hours that day so it was a fairly nasty sore. It needed hospital treatment and what really worked for me that accelerated the recovery and made sure that it was good quality healing, with no dead/damaged tissue left in the wound, was maggot therapy. The maggots prevented the need for surgery. They put maggots that heve been bread in a sterile environment into the wound and put a dressing over the top; they stayed in about three days and then they were replaced for another three days amd after that it was simply a case of lying around and waiting. The maggots consume all the dead tissue but leave the healthy tissue alone and one of their secretions actually promotes granulation/new tissue growth. So I was in hospital for a while and I lay on my front with maggots in one of my arse cheeks which sounds stupid but it did miracles for my pressure sore, which has never broken or caused me any problems since despite doing lots of kayaking and other stuff that is not generally good for pressure relief.

    As a side benefit, maggots are very good at cleaning wounds infected with MRSA.

    Maggot therapy is available on the NHS here and is becoming more widespread as its efficacy is becoming more accepted. I have no idea how readily available it is in the US.
    Very true, wish it was used more often.
    My mouth is like a magician's hat, never know what might come out of it.

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      #62
      i'm 9 yrs post and no sores, not even a red spot. i attribute it to religious weight shifts and wigglin around in my chair.


      plus i use lotion on my board 4 times every morning. going from bed to chair to shower bench then back to chair and from chair back onto bed.

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        #63
        My son used to get a rash between his legs.. I bought some sham wows , I cut them into squares and made a big hole in the center to place his scrotum in and folded the edges alongside of his thighs against his legs. ....wowie they soak up the moisture and no more rash. SHAM WOW !!!!!

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          #64
          I highly recommend the Isch-dish cushion, it's been working reallllly well for me.

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            #65
            Hey gang, my turn to contribute. I use Eurecin cream in the jar because it is hella thick. Now here's my spin. Each time I use it I put several drops of Wild oil of Oregano, standardized to 70% Cavacrol (sp) The oil is anti-parasitic, naturally antibiotic and anti-fungal. Plus I understand it fights Staph pretty well, if only in a contraceptive role. Cheers!
            And the truth shall set you free.

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              #66
              Originally posted by wheels09 View Post
              I'd like to try that "Prisma".But it looks pricey,Liz. Can you buy a large one and cut it to size? Is it self-adhesive or do you tape it in place? Tia for your response....Bill
              Hello, sorry just saw this- yes you cut it to whatever size you need. place it over the sore, then put a 4x4 over it is all and tape. it can go a couple of days before you need to change it. check to see if your insurance will cover it. im not sure if i have any or id send you one to try.

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                #67
                Creams

                There is a great cream out called "POL". You can buy it online. It did not help to heal a sore, but works awesome to protect your skin. I love it! I have never used a cream that worked to get rid of the redness.. other than a diaper rash cream. You need the Zinc and it is in there. There is a vit in there you need also A, D or something but it is in the diaper rash creams. I worked with pressure nurses and they showed me how well it will heal a stage 1 and also (they say) is great for protection. I have one had 1 in 27 yrs and man, I do not want another. What a disruption of life!!! YOU can keep going if you want to.. but it will not heal.
                I miss life before that happened as I now look at my butt twice a day. Someone else should be looking (husband told)... LOL his job

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                  #68
                  Originally posted by wtf View Post
                  sleep on your stomach.

                  multivitamin, proper nutrition and enough fluids

                  squirm alot or weight shifts

                  and be happy/positive
                  When you sleep on your stomach do you still have ti get up and reposition every two hour?
                  T3 Complete
                  to my alarm: "quiet b*tch! I know what I have to do every two hr. Argggggg!!!!"

                  sigpic

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                    #69
                    I have two spots on my butt isheals that won't go away. The one on the right seems to be worse. I am currently treating it with Promogran after Aqua Cell AG didn't do much. I have heard that a Zinc coating works well to protect the skin. Does anyone use this or know anything about this? My butt is so thin and bony that I am concerned I'll be battling the sore issues for a long time. Any suggestions? Thanks
                    C3/C4. Complete

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                      #70
                      Originally posted by Sfedor408 View Post
                      I have two spots on my butt isheals that won't go away. The one on the right seems to be worse. I am currently treating it with Promogran after Aqua Cell AG didn't do much. I have heard that a Zinc coating works well to protect the skin. Does anyone use this or know anything about this? My butt is so thin and bony that I am concerned I'll be battling the sore issues for a long time. Any suggestions? Thanks
                      I would definitely attack it on multiple fronts. You need to add both slow digesting proteins (egg, micellar casein) and fast (whey protein isolate) to your diet, this added to daily intake of chicken fish and beef. The body can only use so many grams of protein at once so maybe 20-25 grams a setting. Make sure you are taking (while you are healing) a gram and a half of protein per pound of your body weight - per day. You can back off after.

                      Stay away from any proteins with sugar alcohol that might mess with your digestion. Just an fyi, I buy either "About Time Whey Protein Isolate" or I just bought this - http://www.musclefeast.com/Whey-Prot...a-5lb-p19.html Make sure you are taking a good mutilvitamin and a good probiotic as these will help boost your healing.

                      (Edit) I buy my multivitamins and probiotics at one of these two places - IHerb and Luckyvitamin.

                      I would also read through this thread for tips of what, if anything. to put on it. Maybe duoderm, maybe manuka honey depending on the wound stage. Has a wound care nurse/dr. looked at it? Most of all stay off of it.
                      Good luck.
                      Last edited by NoDecafPlz; 8 Feb 2011, 4:09 PM.
                      And the truth shall set you free.

                      Comment


                        #71
                        Microcyn liquid and hydrogel has helped many on this forum heal pressure sores and other wounds. There has been much written, but these two links can get you started

                        https://www.carecure.net/forum/showthread.php?t=136486

                        http://oculusis.com/dialogue/?cat=6
                        I'm back on Facebook again--up and running!

                        http://www.facebook.com/profile.php?...00000532232573

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                          #72
                          Thanks for your reply. I have had a wound nurse look at it and make some suggestions. I've been on strict bed rest for a few weeks now with little progress. My diet is okay, but could probably be better. I appreciate your suggestions.
                          C3/C4. Complete

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                            #73
                            This is a very helpful thread. Hubby saw the wound doctor friday but all he said was to use Balmex which is a diaper rash ointment. That was Friday and today is Sunday and now there is the beginning of another open place on his hip. The doctor said to sleep on his side but that's impossible because his spine is curved like a pretzel and because it is so severely curved it affects his breathing so he has to have his head elevated . He has a constant burning on his butt which is red to purple. Anyone have a suggestion what to use for the burning?
                            I have enough money to last me the rest of my life, unless I buy something.
                            - Jackie Mason -

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                              #74
                              Originally posted by Leila View Post
                              Microcyn liquid and hydrogel has helped many on this forum heal pressure sores and other wounds. There has been much written, but these two links can get you started

                              https://www.carecure.net/forum/showthread.php?t=136486

                              http://oculusis.com/dialogue/?cat=6
                              ccan you be allegic to micro or puricyn, as far as making the skin worse?
                              i touch hydro peroide antiibiotic wipes to my hands and ny fingers turn white and dried out in seconds
                              like putting my hands ina soilvent
                              cauda equina

                              Comment


                                #75
                                Aquacel AG

                                I cannot say enough about this product.


                                Last fall I had my first sore that kept me in bed for more than a week.

                                Coccyx area

                                Wound nurse debrided it a couple times removing slough with small scalpel. It kept returning then surgeon looked at it and debrided it making it twice the size and we went to wound vac, after 2 weeks slough is back, surgeon debrids, again now twice the size, down to bone, 2 more weeks wound vac, no luck, I called a sci friend and get told about flap surgery and get plastic doc, 6 weeks in hospital, back home for 3 week seating program. A good thing to this is I had chance to advocate about research to a lot of people.

                                2 months later I get another in different place, upper leg below butt cheek. It looked worse that when I had first surgeon look at the other one. Not real keen about getting cut on and spending time in hospital I googled Removing Slough and found Aquacell AG and got lucky and had a big sheet on hand. Changed it every 24 hours, it pulled off globs of slough every time, I think we changed it twice a day for awhile, it took say a month to hit bottom at a tendon, 1 inch deep about the circumference of little finger cone shape.

                                We then using Aqucell leaving small gap at bottom and it started filling in. 2 weeks its 1/2 inch, then switched to Prisma and 2 weeks later it's almost filled in, then back to Aquacell for one week and game over.

                                This stuff is spendy but search Amazon and Ebay I paid half price.

                                The nurses are right, If its red stay in bed.

                                I will try to post a couple photos later.
                                http://justadollarplease.org/

                                2010 SCINet Clinical Trial Support Squad Member

                                "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

                                .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

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