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    #16
    sleep on your stomach.

    multivitamin, proper nutrition and enough fluids

    squirm alot or weight shifts

    and be happy/positive
    A dolla makes me holla, honey boo boo! - borrowed from Honey boo boo child

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      #17
      Originally posted by fullsyz View Post
      Thanks for the advice guys, I'm listening. Question....Anyone have any experience with Ride Designs Cushions?
      I love my ride designs cushion. I've had it for nearly a year and have only one issue. The cushion is designed to basically suspend you, thus off-loading typical problem areas. Basically, because you are "suspended," passing gas is easy to do. It comes out whenever it wants and it can be embarrassing. Other than that, I've healed a semi-superficial open area on my ischial without a problem. The only other real issue is the fact that you have to be positioned on the cushion nearly perfectly, otherwise the cushion will be counter-productive and can actually CAUSE issues. Don't get me wrong, it is an excellent cushion if used/fitted properly and I swear by its effectiveness.

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        #18
        Anyone out there having problem with low blood pressure, low oxygen level

        Hi, I'm taking care of my my mother C3/C4 complete and she keeps running into problems with her blood pressure tanking. I've had to take her to the hospital two times and she would have died if I hadn't, it was 48/34 when she went unconcious. Also having a high fever, and low blood oxygen level. Anyone on this site taking care of a loved one run into this problem, if so, what caused it? Any info would be appreciated.

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          #19
          avoiding skin issues

          Is there a general purpose cream or lotion you would recommend for the backside? We haven't had any problems in the two years since my son was hurt, but he now has a suspicious spot on his upper thigh on the backside, just below the butt cheek.

          We started rubbing his legs down with Aveeno lotion, but I think the backside needs something a little stronger.

          Any thoughts?
          Ugh, I've been kissed by a dog!
          Get some hot water, get some iodine ...
          -- Lucy VanPelt

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            #20
            In my experience, the thicker the cream the better. I use Walgreens Theraputic Moisturizing Cream in the plastic jar. It's so thick you need to wear a glove. I love it!

            Originally posted by PeanutsLucy View Post
            Is there a general purpose cream or lotion you would recommend for the backside? We haven't had any problems in the two years since my son was hurt, but he now has a suspicious spot on his upper thigh on the backside, just below the butt cheek.

            We started rubbing his legs down with Aveeno lotion, but I think the backside needs something a little stronger.

            Any thoughts?
            And the truth shall set you free.

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              #21
              I have A&D ointment on hand. It's pretty freaking thick -- sometimes hard to get it out of the tube thick. Smells nasty though -- probably worth a trip to Walgreens!

              Thanks for the tip.

              Is it best to put it on daily and rub it in real well to encourage blood flow?
              Ugh, I've been kissed by a dog!
              Get some hot water, get some iodine ...
              -- Lucy VanPelt

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                #22
                Bag balm...nuthin' better!
                Rick Goldstein
                GO! Mobility Solutions
                facebook.com/goes.anywhere

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                  #23
                  PeanutsLucy, I use a cream called Udderly Smooth -- all the same benefits as Bag Balm, but without that greasy petroleum jelly consistency.

                  I do use the cream daily, and firmly believe that the act of massaging the area thoroughly to rub it in is as beneficial for my skin's health as the moisturizing effects of the lotion.
                  It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.

                  ~Julius Caesar

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                    #24
                    Thanks! I will hit the stores tomorrow in search of it.

                    I don't think we've been paying enough attention to his skin since he hasn't had any issues until now, but last night I really noticed how dry it is.

                    Now I know not to take it for granted.
                    Ugh, I've been kissed by a dog!
                    Get some hot water, get some iodine ...
                    -- Lucy VanPelt

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                      #25
                      A&D is fine for diaper rash, although it will stain your clothing with grease stains. There is no evidence that massage or any topical cream helps to prevent pressure ulcers...in fact, massage over a red or pink spot can make it worse. Use only enough moisturizing lotion to prevent cracking of skin (which can lead to infections), and use one that disappears like Udderly Smooth. I buy it at Trader Joe's, but have seen it at Long's, Walgreens and CVS as well.

                      (KLD)
                      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                        #26
                        Thanks, I will check the Walgreens down the road first.

                        Trader Joes in on the other side of town, but it will give me an excuse to go there (love the place! ).
                        Ugh, I've been kissed by a dog!
                        Get some hot water, get some iodine ...
                        -- Lucy VanPelt

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                          #27
                          Prssure Sores

                          I have a sore in my butt crack. A little bit bigger around than a pencil would be. I also have been having trouble cathing....getting cath into bladder, WTF???? Any help would be appeciated.

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                            #28
                            Lantiseptic at night, great stuff
                            Bike-on.com rep
                            John@bike-on.com
                            c4/5 inc funtioning c6. 28 yrs post.
                            sponsored handcycle racer

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                              #29
                              OK, so we went to the doctor on Wednesday and it is a pressure sore -- combination of pressure problems, moisture problems and sheering (sp?). Got a script for ointment to help it heal and he needs to keep off his fanny as much as possible. Also said much of it could be from his playing wheelchair basketball since he gets sweaty and he said the fast rolling action puts more pressure on his bum -- makes sense, but the kid only plays once a week for an hour and he changes before he leaves and when he gets home, so I don't think that's the sole culprit.

                              Can't thank you guys enough for the advice, we really didn't get any skin care advice in rehab except for basic pressure relief. Nothing about moisture being bad or putting ointment or cream all over to protect the skin. I shudder to think about how many other things we weren't told in rehab.

                              Once we get the area clear, the wound care guy said there are a variety of products on the market to put on the skin 1-2xs a day to keep it healthy, guess that will be our next research project.
                              Ugh, I've been kissed by a dog!
                              Get some hot water, get some iodine ...
                              -- Lucy VanPelt

                              Comment


                                #30
                                For the person who asked about the rashing and skin breakdown under his wife's breasts and in her groin, I have that problem sometimes and what works for me is to wash that area at least once a day with vinegar or vinegar in some water. The smell doesn't stay but it keeps those areas from getting rashy, smelly and sore. It also clears up a rash but it burns like the devil for a little while. I'd rather prevent the rash. But it will clear up a rash overnight.

                                Another good remedy for rashes in those areas is to use plain yogurt applied to the skin after washing and drying it.

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