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  • Colostomy and mucus

    i just had my colostomy on nov. 3 and was told that every so often i will get a mucus discharge from my rectum. i still havent seen any evidence of this but the last few days i have been having ad a few times a day for 3- seconds to a few minutes and i am feeling pressure a few inches below where my stoma is. i am wondering if the mucus can get backed up or something and i have to get it out myself-and if so whats the best way? or could there possibly be something else going on. any ideas? thanks bunches.

  • #2
    Originally posted by summergirl89 View Post
    i just had my colostomy on nov. 3 and was told that every so often i will get a mucus discharge from my rectum. i still havent seen any evidence of this but the last few days i have been having ad a few times a day for 3- seconds to a few minutes and i am feeling pressure a few inches below where my stoma is. i am wondering if the mucus can get backed up or something and i have to get it out myself-and if so whats the best way? or could there possibly be something else going on. any ideas? thanks bunches.
    I wish you a speedy recovery from the surgery. Was this elective for you or was it done as an emergency? Hope it was elective on your part so you could plan ahead before surgery. Hope it went well for you.
    Have you consulted your doctor or ET nurse & told him or her what is going on? Arndog on Care Cure posted some thing about when some thing goes on when you have a colostomy & what to do about it. He had no choice in getting one as it was done immediately during the surgery for his skiing accident. May be if you GOOGLED his name you could find the post I think I saw him post or you could either e-mail him or PM him thru the site.
    He's a former ear, nose & throat doctor so he knows a lot about the body having been in the medical profession pre-accident.
    I will send you a message thru the site so you can tell me all about the surgery as I'm contemplating getting one myself. I'm going to see my pcp this coming Monday the 15th & he's going to talk to me about it. He seems to be pro colostomy when I asked him about it last time I saw him he said to "he thinks that practically everybody should have one because it makes life easier" & I think he was serious when he said that to me.

    Take care & again I wish you a speedy recovery.

    Regards,
    Bob
    Fellow CC Member & Fellow Wheeler

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    • #3
      thanks-i will look him up. yes, mine was elective as my bowel prog. just became to much-i had to go from every other night to everynight, was never able to eat anything, took 30 immodium a day, and my bp took 5 hours everynight. anything was better than that.
      i am still getting used to everything-trying to get on a new routine etc. but all in all it was worth it-just a lot to get used to and trying to figure out what new signals my body gives me is for. the 1st 2 weeks were hell and i wondered what i got myself into but i had a home health nurse come but a few times who assured me everything would get better-surgery is surgery-and it has gotten better.
      i havent called the surgeon b/c like many doctors i run into-they dont know much about sci patients so i end up explaining things to them instead of the other way around. however-he is a highly regarded surgeon in this field in my area so i knew he was the best to go to as far as the surgery itself.
      thanks and i wish you the best if you decide to go forward with yours.
      Amie

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      • #4
        Originally posted by summergirl89 View Post
        i just had my colostomy on nov. 3 and was told that every so often i will get a mucus discharge from my rectum. i still havent seen any evidence of this but the last few days i have been having ad a few times a day for 3- seconds to a few minutes and i am feeling pressure a few inches below where my stoma is. i am wondering if the mucus can get backed up or something and i have to get it out myself-and if so whats the best way? or could there possibly be something else going on. any ideas? thanks bunches.
        Yes, that is correct Summergirl. The part of the colon left unused, between the stoma and anus, produces that "mucus". That needs to be rinsed out occasionally. If not, there is possibility of colitis (inflammation, possible infection). I do mine every 2-3 months, others do it more often (2-3 weeks, I've seen posted). I was told to use an empty enema bottle and warm water, through the anus. The mucus, for me, comes out like a "plug" of semi-thick stuff. You should know if you have a "loop" or "end" colostomy, that's important. I have the loop, so sometimes that plug of mucus will come out my stoma on its own. Also, it's not been long since your surgery, maybe there are complications. Recommend talking to a Wound/Ostomy and Continence Nurse Specialist (WOCNS). They should be doing your follow-up anyway.
        All the best with it.

        Oh, I posted in your other thread what wafer I use, hope you saw it.
        get busy living or get busy dying

        Comment


        • #5
          Originally posted by quadvet View Post
          Yes, that is correct Summergirl. The part of the colon left unused, between the stoma and anus, produces that "mucus". That needs to be rinsed out occasionally. If not, there is possibility of colitis (inflammation, possible infection). I do mine every 2-3 months, others do it more often (2-3 weeks, I've seen posted). I was told to use an empty enema bottle and warm water, through the anus. The mucus, for me, comes out like a "plug" of semi-thick stuff. You should know if you have a "loop" or "end" colostomy, that's important. I have the loop, so sometimes that plug of mucus will come out my stoma on its own. Also, it's not been long since your surgery, maybe there are complications. Recommend talking to a Wound/Ostomy and Continence Nurse Specialist (WOCNS). They should be doing your follow-up anyway.
          All the best with it.

          Oh, I posted in your other thread what wafer I use, hope you saw it.
          thanks. see that is what makes me so mad-they made it sound like every now and then i may have some discharge but it wouldnt be a lot and would come out on its own. not once was i told i had to do anything. my hospital stay was not a good one-i was not informed of many things and were it not for this forum i would be a basket case. i dont even have an ostomy nurses name to call. i guess i could call the home health nurse who came by a few times right after i got home-she was very knowledgeable in this field. and if i keep having ad for short periods like i have been i guess i could call my surgeon to see if he wants to do any tests. since it isn't all the time i dont want to jump the gun but i do want to be cautious at the sametime.
          i did read your other post on the other thread i had. i tried staying still longer this morning when i changed wafers so we'll see!
          thanks again-
          Amie

          Comment


          • #6
            HI,

            I recommend you contact the surgeon and ask whether you are to do anything routinely for your rectum. Being so new, I would not do this on your own.
            Also ask him for the name of the ostomy nurse he works with (it is rare that GI surgeons do not work with one).

            If this doesnt produce results, you could contact the HH nurse, but it is the surgeons responsibility to help you troubleshoot your issues.

            Keep us posted.

            AAD
            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

            Comment


            • #7
              Summergirl -
              You are still in the early post of phase. I agree with AAD, don't stick anything up there without direct permission from your colostomy surgeon. The last thing you need is to stick fluid in your rectum only to have a suture line break down and then get some sort of peritonitis.
              Now with that said, when you do heal up, what Quadvet said is exactly right. This rectal stump ( about 7 inches of rectum) is a dead end. It is sometimes called a Hartmann pouch. The rectum lining makes mucous to make things slide by. As things slide by, the mucous is removed. But now, nothing is sliding by so the mucous can build up. Not only that , but people postulate that fatty acids from stool form part of the nutrition to keep the mucosa healthy. Now that the rectal lining isn't seeing stool, the lining can become inflammed, make more mucous and get red and angry. This is called "Disuse Proctitis". It doesn't happen often but it is good to know about it.
              I totally agree with QuadVet about management of the mucous. It occasionally needs to be washed out (once you have healed up from the surgery). I have to do it every 2 weeks and it takes only a few minutes. In the shower, I keep one of these enema bags and fill it up with tap water, stick the end in and rinse the rectal stump out. Clumps of dried mucous come out and I am done.
              Here is something that I had problems with and I don't know if Quadvet has had this but, since I am a burst L1 cauda equina syndrome with a secondary fracture of my sacrum, I have no sensation (other than neuropathic pain) from the waist down. So when I build up mucous or get some inflammation of the rectal stump, I get increased burning but can't for the life of me tell where it is coming from. So I go through my check list... 1. UTI 2. Rectal stump.. and I go rinse it out and low and behold the burning sometimes goes away. I can't tell you how long I struggled from this because no one ever explained disuse colitis to me.
              I hope this long winded explanation helps.

              Comment


              • #8
                Originally posted by arndog View Post
                Summergirl -
                You are still in the early post of phase. I agree with AAD, don't stick anything up there without direct permission from your colostomy surgeon. The last thing you need is to stick fluid in your rectum only to have a suture line break down and then get some sort of peritonitis.
                Now with that said, when you do heal up, what Quadvet said is exactly right. This rectal stump ( about 7 inches of rectum) is a dead end. It is sometimes called a Hartmann pouch. The rectum lining makes mucous to make things slide by. As things slide by, the mucous is removed. But now, nothing is sliding by so the mucous can build up. Not only that , but people postulate that fatty acids from stool form part of the nutrition to keep the mucosa healthy. Now that the rectal lining isn't seeing stool, the lining can become inflammed, make more mucous and get red and angry. This is called "Disuse Proctitis". It doesn't happen often but it is good to know about it.
                I totally agree with QuadVet about management of the mucous. It occasionally needs to be washed out (once you have healed up from the surgery). I have to do it every 2 weeks and it takes only a few minutes. In the shower, I keep one of these enema bags and fill it up with tap water, stick the end in and rinse the rectal stump out. Clumps of dried mucous come out and I am done.
                Here is something that I had problems with and I don't know if Quadvet has had this but, since I am a burst L1 cauda equina syndrome with a secondary fracture of my sacrum, I have no sensation (other than neuropathic pain) from the waist down. So when I build up mucous or get some inflammation of the rectal stump, I get increased burning but can't for the life of me tell where it is coming from. So I go through my check list... 1. UTI 2. Rectal stump.. and I go rinse it out and low and behold the burning sometimes goes away. I can't tell you how long I struggled from this because no one ever explained disuse colitis to me.
                I hope this long winded explanation helps.
                i was almost scared to scroll down to see the picture you posted based on the topic. lol thank you. everyone has been very informative. i have an appt. for a followup with my surgeon on dec. 29th. unless this feeling gets worse, which today seems to be better, ill just keep that appointment and sit him down for a long talk. i just hate to jump the gun and it be gas or cramping and i think if it were something serious the ad wouldnt let up.
                i am still pretty upset that no one informed me of what you just did-pre op when i was going for a consultation they went over several things and as i said early-they only said i would have some discharge occassionally but never was it brought up that i had to go up in there-not that its a big deal-i did dig. stem for almost 20 years-just the fact that nothing was mentioned to me.
                anyway-thanks again EVERYONE for all your support, ideas, suggestions etc. i would be going crazy right now without the support.
                Amie

                Comment


                • #9
                  Amie - it really isn't that big a deal. It is well worth it. In my case, it is 4 minutes every 2 weeks, to stick a tube in the rectum and rinse that out. I don't think the Gi docs and the GI surgeons know much about it. I would put it up there with the inconvenience of cutting my dog's nails before he scratches the floor ! ;-)
                  I don't know what kind of manual dexterity you have, but ask your surgeon if irrigation is an option for management of your ostomy too.
                  Good luck !

                  Comment


                  • #10
                    Originally posted by arndog View Post
                    Amie - it really isn't that big a deal. It is well worth it. In my case, it is 4 minutes every 2 weeks, to stick a tube in the rectum and rinse that out. I don't think the Gi docs and the GI surgeons know much about it. I would put it up there with the inconvenience of cutting my dog's nails before he scratches the floor ! ;-)
                    I don't know what kind of manual dexterity you have, but ask your surgeon if irrigation is an option for management of your ostomy too.
                    Good luck !
                    thanks. it isnt that i am worried about doing it-just upset i wasnt told to. i am c-7 injury level-i have my biceps and triceps but my fingers dont do much but i have learned to figure stuff out. i live by myself so i can get pretty creative if i have to.
                    thanks again!

                    Comment


                    • #11
                      Summergirl, I was actually told nothing about this, and don;t do anything for it. I DO have a loop ilieostomy tho', it sound like that might be the difference.
                      T7-8 since Feb 2005

                      Comment


                      • #12
                        Originally posted by sjean423 View Post
                        Summergirl, I was actually told nothing about this, and don;t do anything for it. I DO have a loop ilieostomy tho', it sound like that might be the difference.
                        Are you still watching this, sjean423? I just noticed your mention of your loop ilieostomy here, how it might be different than colostomy, dealing with mucus. Actually, there is a longer portion of disused bowel with the ilieostomy, more to keep clean. Just thought I'd mention that, doing some research and running across this old thread.
                        get busy living or get busy dying

                        Comment


                        • #13
                          Hi QV,'
                          This popped into New Posts, so I saw it.

                          You are right about about a longer stretched of unused parts.

                          I will have to ask my doc about this.

                          Thanks.
                          T7-8 since Feb 2005

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                          • #14
                            Cool, I hope it helps you.
                            get busy living or get busy dying

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