Announcement

Collapse
No announcement yet.

had a stroke 15 years ago...

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    had a stroke 15 years ago...

    Hi. I had a stroke due to hydrocephalus when I was 15 and I am now 30. Not only have I been in a wheelchair since then but I have been unable to speak since then. I can't stand it. I am just looking for some form of support from you guys. I have been a member of this forum site for years and don't know why I haven't looked for help regarding this before. Thank you.
    I'm Sam.

    #2
    Any help?
    I'm Sam.

    Comment


      #3
      I think I was a bit too vague in my original post. Does anyone else have a similar problem? I've not met anyone else that can't speak and I'd really like to meet someone who can't and talk to them about how they deal with it. Or be pointed in the right direction.
      I'm Sam.

      Comment


        #4
        Check with your local Heart Association chapter. In some areas they offer stroke survivor support groups.

        (KLD)
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

        Comment


          #5
          I'll try that. Thank you.
          I'm Sam.

          Comment


            #6
            There are also Facebook groups for stroke survivors.
            Partner of an incredible stroke survivor. Limitations: hemiparesis and neglect (functional paralysis and complete lack of awareness on one side). Equipment: TiLite ZRA 2 and 2GX, Spinergy ZX-1, RioMobility Firefly. Knowledge: relative newbie for high-level equipment (2012), but willing to try to help others who are new with similar limitations (definitely not a guru, but inquisitive).

            Comment


              #7
              More details would help. Are you able to drive, take care of yourself, etc. If you did your post yourself, you have no difficulty with typing on a computer?
              Reaching out to others is great. I'm assuming you went through some sort of rehabilitation program. I believe an Occupational Therapist would be one type of person to work with someone with stroke related speech loss. And, believe it or not, a Speech Therapist evaluation might be useful to identify help.

              Do you think you have explored all the special technology advances made since you had your stroke? Such as computer-speech? Smart phones with disability features? A specialist such as an OT or Rehabilitation Engineer may help with this.
              I worked as a counselor and once had a client with no speech due to a stroke. She was non-disabled otherwise. This was before computer technology so help was limited.
              Are you also looking for this kind of support?

              Comment


                #8
                I don't really know what I'm looking for. I wanted to see if anyone else on this forum was in a similar situation as me. I use computer technology in the form of my iPhone or my laptop. Thank you for the suggestions.
                I'm Sam.

                Comment


                  #9
                  Hope you stay in touch.

                  Comment


                    #10
                    I can't help much on the technology, but I have been able to help my husband who had strokes with configuring wheelchairs and other equipment to fit his needs with hemiparesis and neglect. Let me know if I can be of any help in that way.

                    Originally posted by sam10685 View Post
                    I don't really know what I'm looking for. I wanted to see if anyone else on this forum was in a similar situation as me. I use computer technology in the form of my iPhone or my laptop. Thank you for the suggestions.
                    Partner of an incredible stroke survivor. Limitations: hemiparesis and neglect (functional paralysis and complete lack of awareness on one side). Equipment: TiLite ZRA 2 and 2GX, Spinergy ZX-1, RioMobility Firefly. Knowledge: relative newbie for high-level equipment (2012), but willing to try to help others who are new with similar limitations (definitely not a guru, but inquisitive).

                    Comment


                      #11
                      I know there are a number of aphasia apps. Here are a couple of links:
                      http://www.aphasia.org/aphasia-resources/aphasia-apps/
                      https://www.stroke.org/sites/default...-Apps-List.pdf
                      Partner of an incredible stroke survivor. Limitations: hemiparesis and neglect (functional paralysis and complete lack of awareness on one side). Equipment: TiLite ZRA 2 and 2GX, Spinergy ZX-1, RioMobility Firefly. Knowledge: relative newbie for high-level equipment (2012), but willing to try to help others who are new with similar limitations (definitely not a guru, but inquisitive).

                      Comment


                        #12
                        You might also want to try posting in the forum Computers
                        Partner of an incredible stroke survivor. Limitations: hemiparesis and neglect (functional paralysis and complete lack of awareness on one side). Equipment: TiLite ZRA 2 and 2GX, Spinergy ZX-1, RioMobility Firefly. Knowledge: relative newbie for high-level equipment (2012), but willing to try to help others who are new with similar limitations (definitely not a guru, but inquisitive).

                        Comment


                          #13
                          Originally posted by elarson View Post
                          You might also want to try posting in the forum Computers
                          Thank you for the help.
                          I'm Sam.

                          Comment


                            #14
                            I am quite sure you have some opinions you can express in some of the forums. So go at it. Don't expect every one to agree with your opinions, that is what discussions are for ! It makes you think, and express yourself. We all have some sort of problem, and can discuss our opinions from that point of view.

                            Comment


                              #15
                              Sam, are you able to make 'sounds' but not able to move your lips and tongue to form syllables? Is it your throat muscles that won't cooperate?
                              Female, T9 incomplete

                              Comment

                              Working...
                              X