Announcement

Collapse
No announcement yet.

A head injury forum?

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    A head injury forum?

    I have been receiving heart-breaking emails from families who are struggling with head injury. They have no real forum to see what research is doing for them. As many as 25% of the spinal cord injury community have had some form of head injury at the time of their accident. So, I am thinking of creating a head-injury form (like the pain-forum). What do you think?
    40
    No, I don't think that we should have a head injury forum
    7.50%
    3
    Let us try a head-injury forum and see what happens
    17.50%
    7
    We should have a head-injury forum
    52.50%
    21
    We must have a head-injury forum
    22.50%
    9
    I don't care
    0.00%
    0

    #2
    Dear Wise,

    I think a head injury forum would be an excellent idea for our site.

    These are sites I have found tremendously informative and useful, both from a research, practical, and 'chat' viewpoint:

    www.neuroskills.com

    www.tbiguide.com

    www.tbichat.com

    _____________
    Tough times don't last - tough people do.
    _____________

    Comment


      #3
      Anybody else have an opinion?

      _____________
      Tough times don't last - tough people do.
      _____________

      Comment


        #4
        I have been lookiing for a forum

        I have been looling for a fourm. I had a open head trauma when I was 14. I am trying to find out about mood swings,that i think might be from that trauma.I have a lots of question.but can find no answers

        Comment


          #5
          I think it would be a great move. Head trauma and sci goes hand in hand for many. Plus it would give a great resource and home for this group. TIRR, where I was for rehab, had a head trauma and amputee floors as well as sci. My buddy that was in the wreck with me had been to TIRR when he was 14. Severe head trauma(brains on pavement) from a motorcycle accident. When he visited, he said it was like coming home.
          For the guy in the post above, my buddy has big mood swings, to anger in a heartbeat. I also do. And anger management classes don't help much. Hang around, there will be folks to talk to soon, I'd bet the Doc will hook ya up quickly.

          https://www.facebook.com/john.baxter.1213986

          Comment


            #6
            I think it's a fantastic idea.

            Comment


              #7
              It's needed. Please do it.

              Comment


                #8
                I vote no ...

                I'll dissent ... I think it would broaded the scope of care cure from sci to more than just sci. Next could be other worthy diseases and soon the focus goes from SCI to being injured in general. I would be for a limited forum of "SCI-related head injury" but that's all I would be comfortable with. -- Ami
                Wife of Chad (C4/5 since 1988), mom of a great teenager

                Comment


                  #9
                  Isn't the Politics forum already a head-injury forum?
                  De Omnibus Dubitandum

                  Comment


                    #10
                    As long as you can handle the extra expert only answers..you are the only world class genius that does this I feel .. it would be most appreciate by many for sure.
                    Life isn't about getting thru the storm but learning to dance in the rain.

                    Comment


                      #11
                      Sounds like a great idea. I suffered a concussion that lasted for days along with a bleed in my brain due to my accident. It could have easily been much worse. I welcome the new forum.

                      Comment


                        #12
                        I hesitate. Altough I have worked with manyTBI patients in my career, none of this experience is recent, and I believe this is true for most of the other SCI-Nurses. I don't feel that I would be able to field Care or New Injury type questions adaquently for those with TBI.

                        If we do this, we would need to recruit more moderators who have this as their area of expertise, and would need some separate forums for many issues. The behavioral and cognitive issues alone can be overwhelmning, so finding a good moderator who has this level of expertise would really be needed.

                        There are some sites that provide forums specific to TBI. I would be more comfortable referring folks there for such support and assistance.

                        http://www.birf.info/

                        http://www.biausa.org/

                        http://www.tbiguide.com/

                        http://www.braintrauma.org/

                        http://www.krempelsfoundation.org/

                        http://www.unc.edu/depts/recreate/spot/frame.html

                        http://www.bindependent.com/

                        If we want a Research (only) forum here, that is up to Dr. Young.

                        (KLD)
                        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                        Comment


                          #13
                          Md

                          Originally posted by marmalady
                          Anybody else have an opinion?

                          _____________
                          Tough times don't last - tough people do.
                          Phong Nhi~=TBI plebiean!

                          Comment


                            #14
                            Originally posted by Myc0
                            Isn't the Politics forum already a head-injury forum?
                            This made me LAUGH so hard! Thanks for the true enjoyment.

                            William

                            ... rolling since 1989
                            ...

                            BE NICE!It's free

                            P.S. ~ I have "handicapabilities"

                            TWITTER: @MacBerry

                            Comment


                              #15
                              Which head?

                              Comment

                              Working...
                              X