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Women with SCI, need your input! ... men, you can help too!

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    Women with SCI, need your input! ... men, you can help too!

    Hello everyone. My name is Kuen (sounds like Quinn) and I answer to anything that sounds close to my name. Being a c6/7 quad for 8 years from a MVA. Just got married to my boyfriend of 11 years last July. We are hoping to start a family soon.

    I used carecure a lot when i first got out of the hospital. (thanks Emi2 for suggesting this place) Just returned to this community after 6 years of absence.

    My biggest concern for the past 8 years: finding easy accessible comprehensive resources for women with SCI is a pain. for example, I'm reading a 700page book on disabled women and pregnancy for research right now, only 1 in every 20-30 pages is some what relevant. So, I've got funding from CPA and the Rick Hansen Foundation to develop a comprehensive multimedia resource package for women with SCI myself. I'd like to see and hear other women telling their stories.

    I just developed a short fill-able pdf survey to hear from other women and get more ideas. Do you have a few minutes to fill this out? Would you be interested in helping with the development of this resource? I'd appreciate it. Please feel free to send this to other women with SCI.


    Support me to help other women with SCI. Together, we are stronger.
    Last edited by ChinaDoll; 19 Sep 2009, 10:22 PM.
    "Always look at the bright side of life...."

    #2
    Done! Just so you know, the phone number box is screwy.
    Emily, C-8 sensory incomplete mom to a 8 year old and a preschooler. TEN! years post.

    Comment


      #3
      Thanks Emi for bring it up. I'll have to fix the glitch.
      "Always look at the bright side of life...."

      Comment


        #4
        what form? I do not see any form...
        "Unless someone like you cares a whole awful lot nothing's going to get better. It's not." - Dr. Seuss

        Comment


          #5
          It is impossible for me to answer any of the question because things are so different here that you want believe it. We only have one SCI doctor in the whole country and we go to usual spesialist who don't know anything about SCI.
          TH 12, 43 years post

          Comment


            #6
            Hi all, found a glitch and had to fix the form. Uploaded again. Thanks all.

            Em, if you don't mind to redo the survey again, I'm very grateful! and thanks for catching the glitch.

            Woman from Europe... your situation is exactly what I'm talking about. If a resource like this is available not only to women with SCI but doctors and the public, it will make things easier.

            The idea behind the survey for this dvd or video resource is: what do you wish you could find out (fast/easy) when you have questions, or when you were first injured?
            "Always look at the bright side of life...."

            Comment


              #7
              I am in the hospital just know, so I don't have my own mailadress, only my daughter's. I can do it when I am out of here in a couple of weeks.
              TH 12, 43 years post

              Comment


                #8
                Originally posted by woman from Europe View Post
                I am in the hospital just know, so I don't have my own mailadress, only my daughter's. I can do it when I am out of here in a couple of weeks.
                I hope you are doing okay. Take your time. Thank you.
                "Always look at the bright side of life...."

                Comment


                  #9
                  Of course you already know about our sister site, Mobile Women, right?

                  http://www.mobilewomen.org/

                  (KLD)
                  The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                  Comment


                    #10
                    Why can't I come inside in the mobilewomen? Is it only for Americans? I have tried for years, but it is impossible.
                    TH 12, 43 years post

                    Comment


                      #11
                      Is it just for Canadians?
                      Get involved in politics as if your life depended on it, because it does. -- Justin Dart

                      I shall not tolerate ignorance or hate speech on this site.

                      Comment


                        #12
                        Mobile Women is for everyone. We have a number of international members, so I am not sure why WFE cannot access it. I have no problem.

                        WLC, who is one of our members, actually runs Mobile Women, which has been supported by both the Keck Center and the Christopher and Dana Reeve Paralysis Foundation.

                        (KLD)
                        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                        Comment


                          #13
                          Originally posted by SCI-Nurse View Post
                          Mobile Women is for everyone. We have a number of international members, so I am not sure why WFE cannot access it. I have no problem.

                          WLC, who is one of our members, actually runs Mobile Women, which has been supported by both the Keck Center and the Christopher and Dana Reeve Paralysis Foundation.

                          (KLD)
                          Sorry KLD, I was referring to the original post. Yes Mobile Women is great but it doesn't get as much traffic as the women community here.
                          Get involved in politics as if your life depended on it, because it does. -- Justin Dart

                          I shall not tolerate ignorance or hate speech on this site.

                          Comment


                            #14
                            Originally posted by Liz321 View Post
                            Is it just for Canadians?
                            No, not just for Canadians. It will start here in Canada and I hope to send it through north America within the next 2 years.
                            "Always look at the bright side of life...."

                            Comment


                              #15
                              Originally posted by SCI-Nurse View Post
                              Of course you already know about our sister site, Mobile Women, right?

                              http://www.mobilewomen.org/

                              (KLD)
                              Yes, I've used this site before and I hope to build on that. I hope the resource I develop to reach people while they are in their hospital beds.

                              k
                              "Always look at the bright side of life...."

                              Comment

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