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Online Chordoma Support Group

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    Online Chordoma Support Group

    http://groups.msn.com/Chordoma

    This is an online support group for people affected by clival, spinal or sacral chordoma, a rare tumour occuring in about one in two million population.

    #2
    my son

    Hi my name is peggy and i have a nine year old son with chordoma and im want some advice on what it is and how can it be cured

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      #3
      Contact with support group

      Originally posted by peg1974
      Hi my name is peggy and i have a nine year old son with chordoma and im want some advice on what it is and how can it be cured
      Please contact the Chordoma support group here:

      http://groups.msn.com/chordoma

      or here:

      chordomamanagers@gmail.com

      We have been trying to contact you but email is bouncing.

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        #4
        The online Chordoma Support Group

        The Chordoma support group has moved to

        www.chordomasupport.org

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          #5
          Hello ! My name is Betsy and I am a 7 year clival chordoma survivor! I had 3 resections (brain surgeries) and completed Proton Beam Radiation in 2005. I am looking for others who have walked the walk so to speak that I can communicate with.

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