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Where's the best SCI Rehab for chronic SCI (30+ years)

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    Where's the best SCI Rehab for chronic SCI (30+ years)

    I'm a c4/c5 quad (injured 1982) and have been unable to find medical assistance in my area who can help me with bilateral hip pain. The SCI rehab in my area has collapsed since our University closed their Medical Rehab Department.

    I'd like to find the best rehab center in the U.S., or at least a top 5 list to research. I'm hoping to get a complete re-evaluation of my condition, seating, likely time for a new wheelchair, and identify the source of the pain.

    Then, maybe they can set up a therapy routine or other treatment that might minimize the pain.

    Where's the best chronic sci rehab? How can I find information that will identify, and help me choose, an institution with a great program for chronic spinal cord injury.

    Thanks for any help you can offer!
    Tim

    #2
    Jefferson in philly. moss rehab. there should be something close for you though in new York state. do you mind saying what area you live in?

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      #3
      How about Rusk institute http://rusk.med.nyu.edu/
      "Life is about how you
      respond to not only the
      challenges you're dealt but
      the challenges you seek...If
      you have no goals, no
      mountains to climb, your
      soul dies".~Liz Fordred

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        #4
        Shepherd Center in Atlanta, GA is top of the line! Call and find out about "the day program." It sounds like exactly what your looking for and ATL is awesome. I've been twice and got soo much out of it.. I wish I lived closer. Its beyond a rehab, I never got to do so many great things. Its like college for sci.. Every sci should experience it.

        You have a daily schedule that includes pt,ot,classes on sci, weight training, wheelchair endurance, ect. and then they have awesome outings. They had me even scuba dive with whale sharks n sharks at the ATL aquarium for example.

        The best part about it is covered by most ins companies for up to 3 weeks and they provide you the living(and its nice). If you want more info message me cuz I can go on and on about it.

        More info:
        http://www.shepherd.org/
        Last edited by Padred123; 14 Jun 2013, 6:41 AM.
        C5/6 since Feb '07

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          #5
          second look program rehabilitation institute of chicago

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            #6
            Originally posted by mstephan View Post
            second look program rehabilitation institute of chicago
            this is pretty good

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              #7
              I'm partial to Kessler rehabilitation in West Orange New Jersey. I've been going there for over 25 years and their doctors are just incredible.

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                #8
                Originally posted by jody View Post
                Jefferson in philly. moss rehab. there should be something close for you though in new York state. do you mind saying what area you live in?
                Thanks. Magee Rehab. in Jefferson Health System was one of the programs a DO sent me info on. Are Magee & Moss competitors?

                I live in Buffalo, NY

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                  #9
                  Thanks! It's one I hadn't heard about.

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                    #10
                    I've heard about Shepherd, but I thought they focused more on acute injuries and lower levels than mine. I've also heard of Chicago's "Second Look" program and was going to do more research on that also.

                    Any additional knowledge is appreciated.

                    Tim

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                      #11
                      Things I heard were that Kessler focused on ventilator level injuries. Others had suggested Chicago and Shepherd over Kessler, but maybe they're wrong.

                      Nice painting!

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                        #12
                        Other options may include Mt. Sinai in NYC, University of Pittsburgh, TIRR in Houston, and Craig in Denver. Although all of these are primarily acute rehab programs for new injuries, they all have a steady track record of both research and practice in the area of chronic sustaining care and management of aging issues in people with SCI.

                        I assume you are not a military Veteran and eligible for care through the VA SCI Center programs.

                        (KLD)
                        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                          #13
                          Kennedy Krieger.

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