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  • #76
    Originally posted by lynnifer View Post
    Foot: Not serious...My wound care doc and I are all over it....Hysterectomy: No idea. Have currently lost all bowel/bladder control that I had....My only complaint is that I'm completely out of shape and stamina from being sick on/off the past two years and spending a lot of time in bed....I get more out of helping others when I've been there....I'm not sure I'd participate in heavy exercise right now if I were you ... I made that mistake with my first bone infection and ended up with cellulitis by the end of that week. Gentle stretching maybe like the nurse advised earlier?...Full of good news I am! LOL
    damn, hysterectomy must be a biggie surgery for a woman as it is, psychologically not just from the physical aspect...and all the additional problems in your case....hope it'll go splendidly and without any resulting unpleasant side effects jenn...

    bowel/bladder control is huge for me....i get quite angry and depressed when an accident happens out of my ordinary bm/ic regimen....that i can somewhat relate to...

    i can also relate to the exhaustion/lack of energy....sucks a big donkey's... well, ya know hehe.....i make plans to meet people then reality hits and i have to cancel all that optimistic schedule due to lack of energy to stay in my chair or n-pain...and others don't get it despite knowing me for a time...likely think i'm letting myself go that way out of some egoistical sob trip hehe...

    ya don't seem to mind the planned rehab stay for a month or so...that's grand...i, myself however, hate having to be anywhere but my own place where i'm the bloody boss of everything hehe...if ya like the idea of having ot/pt though that's definitely the right outlook to have when faced with that prospect...

    as far as my arms, well, they're thinner than in my profile photo because i've lost about 25lbs due to all that 'bed rest' in the past several months...i have a quad belly but not much fat, so arm muscles and my ugly face are the first to go and shrink/thin considerably whenever i lose weight...plus any person working in medical field for several years should be able to tell a quad from a para just through a quick glance at the forearms/hands...that's where the difference is almost always immediately apparent....notwithstanding the fact that if i show up at a facility stating that i'm a c5-7 quad since 1990 due to a broken neck in a diving accident, one would think that after 21 years being in a bloody wheelchair, i'd know whether i'm a para or a quad hehehe...i mean, this was somewhhat surrealistic and bizarre whenn i heard him say that to the nurse....in my mind immediately have started to question their competence/professional level after such a weird experience...


    aye, i'll pass on the arms/shoulders exercise...i'll try to remember to do some light arm stretching prior to any transfers...

    well, keep me abreast of your sit-rep regarding the surgeries...i'll be reading your fb page for updates....
    };->
    Last edited by juras; 06-30-2011, 03:41 AM.
    wherever you go there you are...

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    • #77
      Originally posted by teena View Post
      Hi...just wanted to say I wish you the best! Take care!

      Teena
      i'm assuming that was specifically directed towards jenn...jenn's already been a big help, a veritable sesame of good advice/info and a staunch cheerleader for me hehehe...very nice of ya to stop by teena and convey your wishes...i second that of course and i have a feeling she'd put me to shame at present as far as being a real trooper goes....
      };->
      wherever you go there you are...

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      • #78
        Juras,
        Hey man, I was recovering from surgery myself but jumped back on here to check on you. Sorry that doc was such a 'yahoo" (my polite word for a string of four letter words that i really think of him) It sounds like moorestown may be better. But trust your gut. Sorry you're hurting too! Keep keepin us posted though. Maybe at least the imeediate bone biopsy willl tell you something. They won't do flap surgery again without clearing the bone infection first though. I think you got a bit of a wait bro.
        Liza R. McCollum

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        • #79
          Originally posted by mcco5543 View Post
          Juras,
          Hey man, I was recovering from surgery myself but jumped back on here to check on you....Keep keepin us posted though....I think you got a bit of a wait bro.
          hiya liza,

          hmm, most of the docs i meet lately seem to be yahoos and/or megalomaniacs...the higher the specialty [surgery, etc.] the larger the ego factor it seems...i had a cool, relatively young surgeon who did a good job on my legs following that 2003 pickup/tree wreck...we were both into cars too...the surgeons/physicians i meet at present seem to be a very elitist clique, not really concerned with my health status and certainly seem to think i'm too plebeian for them to be even given a time of day; never mind some good solid intel on my status quo...

          so ya've been under the knife recently as well, eh?...what was that all about??...damn, seems like i've found regular bleedin' purgatory of crippled souls and bodies by stepping into this forum haha...but i suppose that the ones without any serious problems don't need to visit such portals, much like i haven't up until now....

          ok, i also have some important updates with regards to my own crap...a few hours ago, i received a phone call from the morristown, nj [that's the 'new' place i've visited for the first time this past monday, just in case anyone might be getting confused hehe] infectious disease specialist/doctor and he said that he'd like me on the operating table by sometime next week...apparently, even though i didn't get to see him at that appointment, he's been informed quite thoroughly about my history following my visit and i finally see some real desire for action...at least on his part...
          he suggested that since it's the july 4th long holiday weekend coming up tomorrow, it'll be best to wait until the beginning of the next week to start the ball rolling because i'd just be languishing at the hospital without any meaningful treatment over the weekend...my feelings exactly and he told me to call him on tuesday if i don't hear back from him by 10 am on that day...

          apparently, they won't even have me on antibiotic iv for more than a few days [he said i'd likely spend only 3-5 days at the hospital for the surgery] prior to the surgery and maybe won't even require me to quit smoking completely at once...
          according to our conversation, i'd have to be on antibiotic iv for a few weeks post-surgery but that would be at my place, unless medicare decides not to pay for that 'picc line' thang...
          maybe i'll even be still able to hit the next wednesday's kool car show locally before hitting the surgery table...i haven't been to a single one yet this year and i don't think they'd admit me on tuesday or wednesday...more likely thursday or so...unless some other issue shall rear its ugly head and there'll be another case of 'hurry up and wait'....

          i'm still not certain about most of what will actually take place next week with regards to above news, as i have only that conversation today with him to go by, and based on my experience things of such nature usually can sway very rapidly from the initial plans... but things are seeming to be suddenly picking up and cogs are slowly starting to turn....

          will update as soon as i'll know more....thanks...
          };->
          Last edited by juras; 07-01-2011, 12:43 AM.
          wherever you go there you are...

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          • #80
            Now that's more like it!

            Teena was talking to you - she's our resident cheerleader
            Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

            T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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            • #81
              Thank the F Heavens!
              Now that is what I wanted/expected to hear...not the you need surgery part. That sucks. But it IS the requiired treatment for osteomyolitis and the correct treatment that will get you back in your hot rods ASA HUMANLY P! Moorestown guy sounds good and I like he's nto forcing the smoking thing on you at the same time (although I'm a huge fan of you not doing that to yourself either...but I can harp on that later..this is bigger).. YAY for wheels turning. Don't leave us hanging..Good vibes still being sent to you!
              Liza R. McCollum

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              • #82
                };->
                happy 4th of july to jenn, liza and everyone else!!!.....
                wherever you go there you are...

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                • #83
                  Happy 4th bro
                  Liza R. McCollum

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                  • #84
                    Sounds like he is planning to do a debridement of your wound, which would need to be done prior to considering a flap, to cut out dead and infected tissue. You are likely to have a much larger appearing wound after this, and may need to have a VAC on the wound then. Not sitting is still important, and of course so is nutrition and not smoking.

                    Be sure that they are prepared to manage any AD you can get in surgery or in the first 24-48 hours after surgery. With a debridement it can be significant.

                    (KLD)
                    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                    • #85
                      Hope the surgery goes well!!! Be kind to yourself and take it easy...and I hope you are doing better in the non-smoking area!!!

                      Happy July 4th to you too!

                      And oh yeah...I was talking to you...lol!

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                      • #86
                        Originally posted by teena View Post
                        hope you are doing better in the non-smoking area!!!....Happy July 4th to you too!...And oh yeah...I was talking to you...lol!
                        thanks teena,

                        hell, even just cuttin' down on smokes is hard for me, i seem to be down to less than 3/4 pack per day so far [from my regular 1 to 1.5 pack habit] and i'm already cranky...will try to stick with that reduction for now, until i can hopefully get comfortable with before trying for even less, rather than risk getting really out of whack and thus go back to my previous limit....

                        oh, ok hehe...jenn said ya're a 'resident cheerleader' and i'm certain she was included in those wishes as well...
                        };->
                        wherever you go there you are...

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                        • #87
                          Of course you will likely be on bed rest for this short hospitalization, and no smoking will be allowed, so use this time to start working on quitting. Nearly all hospitals are now totally non-smoking, even on the grounds.

                          (KLD)
                          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                          Comment


                          • #88
                            Originally posted by SCI-Nurse View Post
                            Sounds like he is planning to do a debridement of your wound...You are likely to have a much larger appearing wound after this....Be sure that they are prepared to manage any AD you can get in surgery or in the first 24-48 hours after surgery. With a debridement it can be significant.(KLD)
                            aaaah, hello back kld....
                            thanks as always for your much valued opinion...happy 4th...

                            errrrr....what is an 'ad'????....i tried fitting any logically context appropriate words/terms into it [infection, infectious disease...] but can't come up with anything....and i don't believe i'm in danger of suddenly developing alzheimer's disease post-op...i'm feelin' a bit thick with regards to that acronym hehe...

                            well, i've got another small bummer to add to my list of woes...just discovered a pretty bad ulcer just behind my left elbow...bastard must've been festering there for a while because it burned/hurt there for the past 2-1.5 months whenever i'd be leaning on it but i frequently hurt there a bit if i overdo using my left side to lean on therefore i didn't think much of it...the central part of my left elbow has been calloused and ugly looking for years [i need to support myself on that elbow in bed when i speak on the phone, eat or do anything requiring the use of my only usable right hand, and i also must use it for support while i drive] with very rough skin so it's difficult to tell by simply touching/feeling manually of that area whether there's an open cut or wound...and the place where the sore is currently, is simply impossible to see for me....

                            however, today morning that area just behind my elbow burned unusually intensively and i've noticed several bloody spots on my pillow/sheet wherever i had leaned with my elbow at, so i broke out a mirror and saw almost a dime size sore going right past all the epidermus layers into the flesh...worst part about it is that the skin around that wound is all cracked in a round radial pattern and to me seems like there's already some bad tunneling all around the sore...

                            damnnnnnnnn....just barely starting to get used to the idea of the imminent surgery [-ies] and all the other rather not so pleasant stuff pertaining to it which i'll have to deal with asap, and now this bleedin' addition hehe...i asked my mom to make a dressing on that wound as well and she reproduced a dressing currently being used to treat my hip pressure sore but on a smaller/shallower scale...and it's a real bitch to make that tagaderm adhesive [or any adhesive medium] to stick since it's right above, and slightly on, the elbow joint so it flexes/moves whenever i do almost any sort of shift/movement....i'm not catching many breaks here this year hehehe...
                            will have to show that new sore to the visiting nurse tomorrow, and whomever i'll see at the morristown 'wound care center' next week....

                            ha!!!...i think i just figured out the 'ad' acronym haha...'autonomic dysreflexia' right?...i normally say 'dysreflexia' at er/hospitals which are largely ignorant of sci terms, but should start using this acronym myself it as well since it's so much easier and faster to say/type...
                            hmm, i've been getting 'ad' more frequently and intensely lately so i'll be sure to ask and mention this pre-op....thanks....
                            };->
                            Last edited by juras; 07-03-2011, 08:39 PM.
                            wherever you go there you are...

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                            • #89
                              Originally posted by SCI-Nurse View Post
                              Of course you will likely be on bed rest for this short hospitalization, and no smoking will be allowed....Nearly all hospitals are now totally non-smoking, even on the grounds.(KLD)
                              aye, i'm painfully aware of that...as long as they won't keep me in the hosital for more than a week or so [hopefully will be able to get that 'picc line' at home] i'll manage somehow...once back i'll keep on trying hard...gradually....cold turkey worked [very painfully however] with hard stuff but doesn't with this, at least not for me...i don't think i'll feel the initial withdrawal symptoms too badly at the hospital...the last extensive surgery i've had was for both of my legs and stayed in the hospital for 10 days...at that time i was starting to go seriously nuts and so i signed myself out...but didn't really start feeling the withdrawals from smoking until about the 5thh or 6th day...and i did sneak a few puffs in room's bathroom on a couple of occasions...
                              wherever you go there you are...

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                              • #90
                                Yikes and ouch...you gotta quit needing high tech band-aids here! Glad you figured out that your elbow needed attention too!!!

                                Hey I was wishing everybody well, but you in particular...

                                I really BELIEVE you can quit smoking. Why? Because anybody who has a heart for old classic cars like your Studebaker (spelled wrongly I think) also has spunk and spirit...and you CAN let them go...you CAN.

                                See? CHEERLEADER! LOL!!!

                                BTW that truck I am standing beside in my Avatar is an old chevy...belongs to a friend at my old church...has only had THREE owners. The guy who owns it saw it when he was like 7 or 9 years old, and told the original owner..."One day I am gonna OWN that truck!!! (and he does!)... Cool truck...horn is brass and goes OOOHHHH-GGAAAAHHHHHH!!!

                                You are gonna get through all this...so keep trucking!

                                Take care!

                                Teena

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