Announcement

Collapse
No announcement yet.

A memoir by a woman paralyzed by Polio - lets it all hang out!

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    A memoir by a woman paralyzed by Polio - lets it all hang out!

    I'm halfway through this book, Such a Pretty Girl by Nadina LaSpina (alert - there are a couple of other books with this title), and wish I could be in a discussion group of disabled women as it's dealing with so many issues confronting a woman with paralysis - she and her family seem to focus on her walking with braces and crutches - it seems obvious to me she needs a wheelchair to get around. I'm only halfway through the book and she's already broken bones in her legs from several falls while "walking".
    I've experienced so many things she writes about - I'm Polio paralyzed, a wheelchair user, who was taught to "walk" with braces and crutches, but with paralysis from high thoracic level, I never became proficient enough to use them for daily life. LaSpina had some muscle transplants so she was apparently able to get around, but I'm aghast at the broken bones she endured to continue using the braces.

    I loved her discussion of being invisible to the opposite sex and how she struggled through her teen years. Her and her close wheeler girlfriend would go to clubs (in their wheelchairs) and flirt, often to no avail.
    In Sicily until about age 12, she's damaged goods - 'such a pretty girl' the neighbors lament, with the unspoken message 'no man will want her'.
    She struggles with being disabled, then discovers the disability rights movement and begins to accept herself as different, but strong and ok.

    The writing style is painfully honest, a riveting read.

    #2
    I’m going to look for this book.
    Thanks for sharing.
    jl
    Secondary Progressive Multiple Sclerosis, Epilepsy, Head Injury, Chronic Pain Disorder

    Comment


      #3
      I'm going to look for it, too. Thanks, triumph.
      MS with cervical and thoracic cord lesions

      Comment


        #4
        It's on Amazon. When I looked for it a couple of weeks ago it was on pre-order, for $5 discount, as it was only days away from publication. This is a book that should definitely be ordered by a library.

        Hope you'll make comments if you decide to read it.

        Comment


          #5
          It's on my wishlist and there are already used copies available (quite reasonably priced). I'll probably go ahead and order it and will report back if I do.
          MS with cervical and thoracic cord lesions

          Comment


            #6
            Originally posted by Bonnette View Post
            It's on my wishlist and there are already used copies available (quite reasonably priced). I'll probably go ahead and order it and will report back if I do.
            Hope you do. I'm pages away from finishing it and an old friend has asked me to do a review for an online site. May try it.

            Comment


              #7
              Originally posted by triumph View Post
              ...an old friend has asked me to do a review for an online site. May try it.
              If you do, I'd love to read your review.
              MS with cervical and thoracic cord lesions

              Comment


                #8
                Originally posted by Bonnette View Post
                If you do, I'd love to read your review.
                My review is on Facebook site The Heumann Perspective - it's located under "posts". Don't think anyone's found it though.

                Comment


                  #9
                  Thanks, I found the FB site - glad it's public.
                  MS with cervical and thoracic cord lesions

                  Comment


                    #10
                    Just wondering if anyone has comments about this memoir. I watched an interview of the author on YouTube, but I heard there's also one done by PBS but I haven't found it. I think that one was broadcast about a week or two ago.

                    Comment


                      #11
                      I have not read it yet, and my search on the PBS website came up empty; do you know which show she was on? PBS or NPR?

                      I did find reference to a short interview with her on WBAI (NYC) but it is not available on-line except by downloading the MP3 file for the entire show for 8/1/19 (The Joy of Resistance) here: https://www.wbai.org/archive/program/episode/?id=5193

                      Here is the book at Amazon: https://www.amazon.com/Such-Pretty-G...s%2C212&sr=8-1

                      Here is her website: http://www.disabilityculture.org/

                      and here is her writing website: http://www.nadinalaspina.com/

                      (KLD)
                      Last edited by SCI-Nurse; 27 Aug 2019, 11:09 AM.
                      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                      Comment


                        #12
                        Pretty sure it was on PBS.
                        Thanks for the info on websites!

                        Comment


                          #13
                          I did search for 'PBS interview Nadina LaSpina' and found an appearance of her C-Span. She is introduced by Lynne Elizabeth and LaSpina discusses the book for most of the appearance, then answers audience questions. It was noted by moderator that the book Such a Pretty Girl sold out the first printing.
                          This may be the "interview" I heard was on PBS (tv).

                          Comment


                            #14
                            Originally posted by triumph View Post
                            Just wondering if anyone has comments about this memoir. I watched an interview of the author on YouTube, but I heard there's also one done by PBS but I haven't found it. I think that one was broadcast about a week or two ago.
                            i will look for the interviews. I did buy the book on EBay for $9 shipped, but haven?t started it yet but I will and also report back.
                            Jnanda
                            Secondary Progressive Multiple Sclerosis, Epilepsy, Head Injury, Chronic Pain Disorder

                            Comment


                              #15
                              Originally posted by jnanda View Post
                              i will look for the interviews. I did buy the book on EBay for $9 shipped, but haven?t started it yet but I will and also report back.
                              Jnanda
                              Great! I would be interested in what others think of this book. Her decision for treatment at one point in the book has me pretty unsettled, so I'm wondering about others' reaction.

                              Comment

                              Working...
                              X